Year in update

Just a quick update. I am half way through a 2 week break from abxi. Prior to this I took 600mg of Rifampicin daily for a little over 2 weeks and in that time a 5 day Flagyli pulse. I had no reaction to these abxi, so as I am on holiday I decided this was a good time to start intermittent. Nothing to report so far, feel fine.

One excellent piece of news. Since my dxi with MSi I have been unable to save saunas as they would leave me nauseous, dizzy and unable to walk (I would need to remain still for 20-30 minutes to recover). So reluctantly I gave up having saunas, but a couple of days ago, while at a spa, I thought I would try a sauna again, to see how I faired. I was amazed as I stayed in a very hot sauna for about 20 minutes and when I left I felt great, no symptoms at all. I think this is great news as heat is a big problem for MS sufferers and I love saunas!

 

Comments

Malcolm, you are to be

Malcolm, you are to be applauded for making fast strides - you attacked this early after diagnosis - congratulations. Please keep careful track of your intermittent protocol.

Now to business: you may or may not be aware that last week my doctor asked me (read "us" on this site) to gather extensive information about MSi people here - and get it to him to show to some infectious disease people he knows.

Two years ago I did a simple survey of the 10 or us who were here then. He was very interested then and is more so now, because I have continued to progress through some major events that SHOULD, in his opinion, have been huge setbacks, and simply weren't. So, after all this rhetoric, I ask you - will you participate? The call may come soon or late, but come it will, unless another unforeseen disaster strikes.

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Of course Rica, if I can

Of course Rica, if I can help I will happily do so.

Malcolm

Wheldon Protocol since July 07. Doxyi 200mg July 07, Naci 1200mg July 07, Azi 250mg 3xweek Aug 07, Flagyli pulses Oct 07, diagnosed MSi Aug 06. Intermittent Aug 08.

Rica, I had a moment of

Rica, I had a moment of 'hmmm, MSi persons', then realized I was one. Three years ago, it was my focus. Now, it's almost an anecdote (in only the best way, Sarah). Very cool. Good to see it's soon to be in Malcolm's past, too.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Congratulations, Malcolm.

Congratulations, Malcolm. Now it is the right time to add your story to the Patients Stories.

Best of luck. B.

Cured of multiple sclerosisi, stopped the Wheldon's protocol in Nov,2008. Use only LDNi.

I think that the exercise

I think that the exercise you are doing will go a long way towards repairing the myelini.   Dr P might change his mind when you see him a few years down the line without progression.   Good luck with the intermittent protocol.... Keep us posted.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Michele, the saunas were

Michele, the saunas were great news for me because it does suggest I have kicked the brain fog/fatigue into touch. I still have my walking issues, but I think they are improved (I am surfing in Cornwall this week). It is slightly nerve wracking (no pun intended) not taking abxi and it will be informative to see if I have any reaction when I resume next week. I am keen to see what I can do to repair me myelini damage, diet seems to be a promising line of enquiry. Any thoughts?

On the subject of doctors, Dr Pallit does as I ask, but he puts my improvement down to the relapsing/remitting nature of MS. I have to be very assertive with him, if I showed any doubt I think he would be less helpful. 

Malcolm

Wheldon Protocol since July 07. Doxyi 200mg July 07, Naci 1200mg July 07, Azi 250mg 3xweek Aug 07, Flagyli pulses Oct 07, diagnosed MSi Aug 06. Intermittent Aug 08.

Malcolm, you lucky dog, you

Malcolm, you lucky dog, you seemed to have kicked this MSi into touch.   I'm so pleased for you, not just for the saunas but also for the rest of your life.

I hope your doctor is pleased too and maybe used the protocol for other MS sufferers.   There are 4 doctors in that surgery and if they share their information it might spread the word a bit further.  

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Wow, scarey, Im excited for

Wow, scarey, Im excited for you though. Best of luck, we are all behind you.

 

 

 

 

 

&nbs

Great to hear your report

Great to hear your report as you go on intermittent. Keep it hot!

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Your post inspires me to

Your post inspires me to keep on.

Thanks. 

CAPi for M.S. 8/2007 - 3/2009.  Twentieth pulse metronidazolei + INHi completed 3/12/2009.  Intermittent treatment thereafter until 11/20/2009.  

Fantastic Malcolm!!! You

Fantastic Malcolm!!! You can now do saunas more often.Maybe even get your own at home. It's a great way to keep all infectionsi on the run!

Raven

CAPi since 8-05 for Cpni and Mycoplasma P. for MSi and/or CFSi<

Also EBVi and HHV6

Feeling 98% well-going for 100. Very low test for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NACi,BHRT, MethyB12 FIRi Sauna. 1-18-11 begin new treatment plan with naturopath

Malcolm, great improvement!

Malcolm, great improvement!

minocycline, azithromycine, metronidazolei 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitisi (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)