Cpnhelp.org - Chlamydia Pneumoniae Treatment

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On CAPi since Sept '05 for MSi, RAi, Asthmai, sciatica. EDSSi at start 5.5.(early cane) Now 6 (cane full time) Currently on: Doxyi 200, Azith 3x week, Tinii cont. over summer '07, back to pulses of flagyli winter '08 all supplementsi. "Color out side the lines

John - Hope you are okay !  Rough way to start the day.  Hope the rest of it went much better !

^{Daisy - Husband on CAPi 5/07.   Roxyi, Diflucan, Rifampin, Bactrim DS, Mepron 4-6, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli, Minoi}

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Daisy - Husband on CAPi 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

John I sympathise. I did exactly the same thing a couple of weeks ago except mine was a full flight and I didn't trip, I just stepped out into mid air and slid down knees first. I actually didn't hit my head for a change.

Methinks stairs and mornings are a no go.

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supplementsi. Doxyi 200mg. Zithi 250mg M/W/F.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008.

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Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008. First pulse June 2008

Hi Marie

I can only wish that was the bottom but since I've done it more times then I can count, I think it's pretty unlikely.  But here's to hoping!

all my best

John

RRMSi/EDSSi was 4.5, was 4.???, now 5 on Wheldon Protocol (naci, doxycycline, azithromycin, metronidazolei) since 04/12/2006. Added Rifampin 2x150mg/daily on 08/19/2007. Added INHi 300mg/daily on 03/17/2008.

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all my best

John

RRMSi/EDSSi was 4.5, 5, now 6 on Wheldon Protocol (naci, doxycycline, azithromycin, metronidazolei) since 04/12/2006. Added Rifampin 2x150mg/daily 08/19/2007. Added INHi 300mg/daily 03/17/2008 stopped 05/08

Hi Daisy

No, it didn't so much.  I didn't have any spills or anything, just been having trouble all day long, more so then usual.  Not sure why exactly.  I think it's time for another blood test. 

all my best

John

RRMSi/EDSSi was 4.5, was 4.???, now 5 on Wheldon Protocol (naci, doxycycline, azithromycin, metronidazolei) since 04/12/2006. Added Rifampin 2x150mg/daily on 08/19/2007. Added INHi 300mg/daily on 03/17/2008.

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all my best

John

RRMSi/EDSSi was 4.5, 5, now 6 on Wheldon Protocol (naci, doxycycline, azithromycin, metronidazolei) since 04/12/2006. Added Rifampin 2x150mg/daily 08/19/2007. Added INHi 300mg/daily 03/17/2008 stopped 05/08

Hi Andesine

Stairs are the devil!  They haven't been my friend lately but then, it was somewhat brought on by my lack of spending time at the gym lately as I used to do.  I've been giving more thought to restarting that up again but it's so nice to have free time. 

all my best

John

RRMSi/EDSSi was 4.5, was 4.???, now 5 on Wheldon Protocol (naci, doxycycline, azithromycin, metronidazolei) since 04/12/2006. Added Rifampin 2x150mg/daily on 08/19/2007. Added INHi 300mg/daily on 03/17/2008.

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all my best

John

RRMSi/EDSSi was 4.5, 5, now 6 on Wheldon Protocol (naci, doxycycline, azithromycin, metronidazolei) since 04/12/2006. Added Rifampin 2x150mg/daily 08/19/2007. Added INHi 300mg/daily 03/17/2008 stopped 05/08

Aha, the exercise routine has slipped... You want to read this book to motivate you into going back. Daisy first mentioned it and I bought it and found it fascinating, motivating and really a beacon of hope for people with brain and CNSi diseasesi. Maybe this is another tome that is required reading for people with neurological diseases. We need a review here. Anyone? if no one feels enclined I'll get round to it eventually. Ella is reading the book at the moment so I will have to wait til she has finished.

The Brain That Changes Itself: Stories of Personal Triumph from the Frontiers... by Norman Doidge

Here is a mini review from Citulike:

Editorial Reviews From Publishers Weekly. For years the doctrine of neuroscientists has been that the brain is a machine: break a part and you lose that function permanently. But more and more evidence is turning up to show that the brain can rewire itself, even in the face of catastrophic trauma: essentially, the functions of the brain can be strengthened just like a weak muscle. Scientists have taught a woman with damaged inner ears, who for five years had had "a sense of perpetual falling," to regain her sense of balance with a sensor on her tongue, and a stroke victim to recover the ability to walk although 97% of the nerves from the cerebral cortex to the spine were destroyed. With detailed case studies reminiscent of Oliver Sachs, combined with extensive interviews with lead researchers, Doidge, a research psychiatrist and psychoanalyst at Columbia and the University of Toronto, slowly turns everything we thought we knew about the brain upside down. He is, perhaps, overenthusiastic about the possibilities, believing that this new science can fix every neurological problem, from learning disabilities to blindness. But Doidge writes interestingly and engagingly about some of the least understood marvels of the brain.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle               

It really depends on how you look at it.  When I was going to the gym daily, spending 2 - 2.5 hours there, I had problems but not as signifigant as I have now, definitely.  I now try to excercise at home on a Healthrider, which is a far cry from what I was doing at the gym.

So, the real challenge with respect to this is how to get back into it.  I've been there, done that many times over.  I really like having free time instead of living at the gym but it comes at a cost/price for sure.  I'm not at all sure how I might get motivated to start again and once I am motivated, how to actually do it.

At this point, walking out to my car is a challenge.  Walking into the gym then out to a machine, then excercising is a  major mountain to climb.  I'm not sure I can get going.  And here I am, thinking back a year ago at how I urged people to do what I was doing.  Now I totally understand why they didn't.

all my best

John

RRMSi/EDSSi was 4.5, was 4.???, now 5 on Wheldon Protocol (naci, doxycycline, azithromycin, metronidazolei) since 04/12/2006. Added Rifampin 2x150mg/daily on 08/19/2007. Added INHi 300mg/daily on 03/17/2008.

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all my best

John

RRMSi/EDSSi was 4.5, 5, now 6 on Wheldon Protocol (naci, doxycycline, azithromycin, metronidazolei) since 04/12/2006. Added Rifampin 2x150mg/daily 08/19/2007. Added INHi 300mg/daily 03/17/2008 stopped 05/08

The exercise dilemma just caught my eye. Aerobic exercise can have risks if a infection is present.  Gentle exercise like Tai Chi or Qi Gong can be adapted to even chair or bed.  These can be very helpful to many of the body's systems -  and enjoyable.

There are many DVD's, etc., but if you can take a class or private lessons, that is best as even subtle changes in your form will less the effectiveness and it's hard to tell how exact you are when learning from a video.  Precise positions, movements do matter and it's best to learn correctly.  You also could hire an instructor to come and teach the whole family or a group of friends.   Having a practice group in your inner circle will help facilitate this as a routine and be a bonding experience.

 Qi Gong is easier than Tai Chi and requires less moving around, especially less moving of the head.  There are hundreds (if not more) forms of each and some are a bit more militaristic than others so be sure to research a particular form before you spend you money.   Qi Gong is also spelled Chi Kung.

I recall my first class about 12 years ago.  I was actually debating whether I should go the to ER or the class.  As doctors had done me no good in those years, I opted for the class. It was a 100-hour class, several all-day sessions.  I was miserable and had to lie down most of the time in the back of the room. However, I later found a practice group in my neighborhood and that helped.  

So, if one is not up for a long class, asking the instructor about shorter classes or private tutoring. Many community centers offer classes now. 

I would caution, however, to find an instructor who is non-judgmental and does not believe this (or your thoughts) can cure everything but one who believes they can help and be an important part of the overall plan.   I've had a few instructors who did judge me for not getting well after a certain time.  That being said, there have been some remarkable recoveries from various conditions by those who do either Tai Chi or Qi Gong.  Same for yoga - many types - and philosophies; some great outcomes.

 I found it best, though, to drop my expectations and just enjoy the movement and enjoy feeling better from doing it.  It may not be a quick and magic cure, nevertheless, the process is enjoyable and I could feel the subtle benefits. 

Real Men (and Women) do Tai Chi, etc. 

 Although it was a very rough start, it was the best thing I've ever done.  Even PubMed has abstracts on all this regarding effectiveness for various conditions to help strengthen.  It's also been used to help regain inner ear balance.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi

 PubMed Search:

 Tai Chi – 356 abstracts

 Tai Chi, cardiac – 15 abstracts

Tai Chi, balance- 100 abstracts

Qi Gong – 2110 abstracts

Qi Gong, cardiac- 85 abstracts

Qi Gong, balance – 24 abstracts

Yoga - 1061 Abstracts

I understand what John is saying about actually getting to the gym or centre for exercise - that process is difficult before the actual exercise programme begins! So I rely on housework, the never ending up and down the stairs business, shopping, just the daily chores of living along with the Chi machine and the airwalker. 

I just wish that I could still dance - well in a controlled way, rather than impromtu sidesteps <sigh>. 

New Forest, UK. Progressive MSi dx 12/06 LDNi 3/07 CAPi 6/07: Wheldon version. Pulses so far #10

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Progressive MSi dx2006. LDNi & CAPi: Wheldon version. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.Pulses #12...I can because I think I can.

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Hi Sarah    

Well, you know, cracking my head on concrete was all I could do for the attention! lol  I'll probably have to do it again since everyone was at work or on the way and not around to see it.  I'll just consider that an audition!

I've been watching prices on elliptical trainers for months and months.  Ever since I stopped going to the gym, I've been thinking of buying one.  The prices are a bit too high for one that's really worth the price but I keep looking, almost daily.  I used to use one almost daily when I went to the gym.  It does help a lot with walking.  I find that while the HealthRider I own and use helps some, it's not at all as effective as the elliptical trainer. 

Actually, I didn't start going to the gym to lose weight.  I had already lost 160 lbs. when I started.  It was really about building some muscle mass and tone to replace what I lost.  I did wind up continuing to lose and topped out at losing 215 lbs.  I've since bounced back, regaining 40 - 50 since I stopped going.  :(

all my best

John

RRMSi/EDSSi was 4.5, was 4.???, now 5 on Wheldon Protocol (naci, doxycycline, azithromycin, metronidazolei) since 04/12/2006. Added Rifampin 2x150mg/daily on 08/19/2007. Added INHi 300mg/daily on 03/17/2008.

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all my best

John

RRMSi/EDSSi was 4.5, 5, now 6 on Wheldon Protocol (naci, doxycycline, azithromycin, metronidazolei) since 04/12/2006. Added Rifampin 2x150mg/daily 08/19/2007. Added INHi 300mg/daily 03/17/2008 stopped 05/08

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This'll be fun maybe to see:

HERE a Story about a quadriplegic person who did the IRONMAN!! His agressive PT program has resulted in recovery to near normal. Interview with the guy

It starts right up and is a video story on the Washington Post. I probably registered with them sometime ago becasue I like politics,so I bet you'll have to also to see it...
marie

On CAPi since Sept '05 for MSi, RAi, Asthmai, sciatica. EDSSi at start 5.5. Currently on: Doxy 200, Azith 3x week, Tini cont. since April '07, all supplementsi.
"Color out side the lines!"

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On CAPi since Sept '05 for MSi, RAi, Asthmai, sciatica. EDSSi at start 5.5.(early cane) Now 6 (cane full time) Currently on: Doxyi 200, Azith 3x week, Tinii cont. over summer '07, back to pulses of flagyli winter '08 all supplementsi. "Color out side the lines

Hi Marie,

I think I  have posted these videos on cpnhelp before, but I couldn't find them again.   Anyway, they are presentations from Dr John McDonald, of Kennedy Krieger, the doctor who speaks in your video above:

Neurorestorative Princples of Rehabilitation - 35 min - Jul 22, 2006 

Neurorestorative Principles of Rehabilitation - 33 min - Apr 27, 2007 

The ability to produce significant or total recovery even with a small percentage of undamaged spinal cord left intact certainly is great news... 

On Combined Antibiotic Protocol for Cpn in Rosaceai 01/06 - 07/07, On Vit D3 + NACi since 07/07 and daily FIRi Sauna since 08/07

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On Combined Antibiotic Protocol for Cpni in Rosaceai 01/06 - 07/07, On Vit D3 + NACi since 07/07 and daily FIRi Sauna since 08/07