Cpnhelp.org - Chlamydia Pneumoniae Treatment

Just so all you know the only symptoms remaining for me are: -occasional bouts of fatigue after too much exercise and stress. -minor inflammationi of the vagal nerve which seems to lead to irregular heart beats or skips when I change position or swallow at times. -minor twitching. -occasional blurry vision. -rare brain fog if I drink too much alcohol. This is quite minor compared to my laundry list of symptoms when I started CAPi in 06' and could barely function. I also went very slowly as reactions to Doxyi and Zithi sent me to the ER several times with tachycardia and all kinds of porphyriai symptoms (I learned my lesson!). I have done very few Flagyli pulses because of my work load and still feel quite well now but my Dr. will be making sure I add it in once I have adjusted to the Rifampin. I tested positive for Bartonella which is why he wants me on Rifampin and thinks this will take me to remission (I hope). Thanks all! Chris

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CAPi since 11/06 for Cpni, Lyme, Bartonella, Myco P, CMV, HHV-6 infectionsi. Doxyi 200mg daily, Zithromax 250mg MWF. NACi 2250mg daily. All other supplementsi.

Chris,

My husband has been on Rifampin 600mg once a day for about 9 months.  He has definitely made improvement while taking it. 

Here's a good thread I was reading today re Bartonella on another website. 

Best of Luck!

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Daisy - Husband on CAPi 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

Chris- It's a pleasure to hear how well you are doing given your starting place, and your agonizing 'way back when about protocolsi. I'm so glad! I'll be interested to hear how your Rifampin journey goes as I'm still Rifampin-phobic (an irrational fear of...). You are another "poster child" for secondary porphyriai, aren't you! Look forward to hearing another rifampinaut journey.

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

Chris, this is indeed good news, like Jim I remember the hard times you were having not so long ago.   I hope you do well on the Rifampicin, but I know that you will feel it at work.

 

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Chris I added Rifampin back in August 2007 and still take it. In my case, I stick to the 2x150mg dosage a day levels. Mostly, I don't notice any reaction from it...mostly. However, that's after being on it nearly a year now. When I first started taking it, I did notice it more. In my case, it would feel like a flare up in symptoms briefly (maybe for an hour) and then subside.

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all my best

John

RRMSi/EDSSi was 4.5, 5, now 6 on Wheldon Protocol (naci, doxycycline, azithromycin, metronidazolei) since 04/12/2006. Added Rifampin 2x150mg/daily 08/19/2007. Added INHi 300mg/daily 03/17/2008 stopped 05/08

Thanks for everyone's comments and I will keep you posted! Chris

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CAPi since 11/06 for Cpni, Lyme, Bartonella, Myco P, CMV, HHV-6 infectionsi. Doxyi 200mg daily, Zithromax 250mg MWF. NACi 2250mg daily. All other supplementsi.

Chris,

I am taking rifampin 300 mg twice a day.  I am following the Vanderbilt protocoli with zithro and flagyli also.  I would say that rifampin has been the easiest antibiotic for me.  I don't really notice any side effects that I can attribute to it.  The zithro give me stomach problems sometimes and the flagyl makes me more tired and can also cause stomach upset.   I do experience dizziness at times but I had that before I started rifampin. 

Lori 

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