My GP has agreed to give me a lab order and I can go to either Lab Corp or Quest Labs but he says he has no idea what specifically to test for and which diagnostic codes to use for diagnosis to have the tests paid for by Medicare.
Someone had mentioned Mayo? Do they have a walk in lab if they are preferred as long as one has a requisition from their Dr? (I would prefer to use Quest if possible)
Do you have some suggestions for testing? Does this have to be done before using NAC? Are there additional tests that would also reveal information such as Mycoplasma and what would those be called specifically.
Thanks in advance 
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NACi 2400 mg, Zithii 250mg/MWF, minoi 100mg/BID, Tiniii 500mg/BID pulses, Iodoral 37.5mg, Supps, CFIDSii/FMSii, Hashimoto's, Psoriasis, PA, IBSii, Secondary Addisons
Don't believe everything you think!
I used the arthritis
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zero negative sjogren's diagnosed 2/03, 200mg minocin daily, biaxin,plaquinel mwf, flagyli every 3 weeks.
On the prescription, my doc
On the prescription, my doc just wrote:
chlamydia pneumoniae IgM and IgGi
mycoplasma pneumoniae IgM and IgG
Diagnosis: respiratory infection.
My lab did not need the codes. they looked it up themselves in their book.
Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80,. right arm neuropathy. + cpni, myco, EBVi, CMV. NACi 4000mg, doxyi 100-2xday, azith 250 m/w/f/sun, progesterone,
estriol, synthroid, pulseflagyli,tinii<___________________________________________________________
Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80,. right arm neuropathy. + cpni, myco, EBVi, CMV. NACi 4000mg, doxyi 100-2xday, azith 250 m/w/f/sun, progesterone,
estriol, synthroid, pulseflagyli,tinii<Quest has a diagnostic codes
Quest has a diagnostic codes list website somewhere on the net here, I dont have the exact page but I remember stubmling upon it and saw all the cpni tests and codes
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CPNi pcri and antibody positive , treating MSi,
CFSi, TMJ, trigeminal neuralgia,IBSineutropenia, pus found in facial bone,Doxyi 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi pulses each month.Sharon, Are you on Medicare
Sharon,
Are you on Medicare and did they pay for the tests?
And I take it we are talking about blood tests, right?
Been on the MPi for 3 1/2 yrs. I'm just looking for now ;)
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NACi 2400 mg, Zithi 250mg/MWF, minoi 100mg/BID, Tinii 500mg/BID pulses, Iodoral 37.5mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!Though I am in Canada, I had
Though I am in Canada, I had alot of my tests done by Quest Labs. The Western Blot for Lymes was done by Igenix.
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 8th Pulse 2 X 375 mg 3day,375 2 d
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CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08I went to my GP today and he
I went to my GP today and he drew blood for me for the CPni and Mycoplasma tests for IgGi and IgM. I was just noticing some folks were told to also include the IgA. It's been awhile since discussing these antibody tests and I can't recall which one the IgA is for. What does IgA measure? Did I miss something by not testing that as well? TIA
Was on the MPi for 3 1/2 yrs. Taking NACi, getting CPn tested, looking for answers, I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi
The more I learn, the less I know!
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NACi 2400 mg, Zithi 250mg/MWF, minoi 100mg/BID, Tinii 500mg/BID pulses, Iodoral 37.5mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!Would someone please help me
Would someone please help me interpret my lab tests? I'm not sure if these are negative because they match the reference ranges or are they positive because something is detected in the Cpni tests?
Result Ref Range
C Pneumoniae IgM <1:20 <1:20
C Trachomatis IgM <1.20 <1:20
C Psittaci IgM <1:20 <1:20
C Pneumoniae IgGi <1:64 <1:64
C Trachomatis IgG <1:64 <1:64
C Psittaci IgM <1:64 <1:64
Mycoplasma Pneumoniae IgG 247 U/mL H 0-99 U/mL
Mycoplasma Pneumoniae IgM <770 U/mL 0-769 U/mL
Tests done by LabCorp. Thanks
Was on the MPi for 3 1/2 yrs. Taking NACi, getting CPn tested, looking for answers...I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's
When I change what I believe I change what I do
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NACi 2400 mg, Zithi 250mg/MWF, minoi 100mg/BID, Tinii 500mg/BID pulses, Iodoral 37.5mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!Reenie- The Cpni tests are
Reenie- The Cpni tests are negative in this rendering. Your antibodies for Mycoplasma, if I'm reading this correctly, seem very high in the IgGi, which shows past infection. There are a lot of folks who would say if you had past exposure and continued symptoms, then mycoplasma may be the chronic infection you are dealing with. Still, if you are getting reaction to NACi then defacto you (also?) have Cpn. Both infectionsi are treated by the CAPi, although I don't think you'd need the NAC or Flagyli with the Myco alone.
CAP for Cpn 11/04. Dx: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 250mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
Jim, That's what I thought
Jim,
That's what I thought I was reading but was confused by the < sign. When I talked with Dr S before I had these results back, he said a 1:64 on the CPn titers would mean a chronic infection so... ? It looks like it's still negative, right?
Is there a place that there is a CAPi explanation and life cycle for mycoplasma? I've been looking online for one and haven't found anything as concrete as the info here.
Was on the MPi for 3 1/2 yrs. Taking NACi, getting CPn tested, looking for answers...I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's
When I change what I believe I change what I do
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NACi 2400 mg, Zithi 250mg/MWF, minoi 100mg/BID, Tinii 500mg/BID pulses, Iodoral 37.5mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!Most of what I know is
Most of what I know is from people here who have co-infectionsi. Check out Garth Nicholson for info, I don't have his website on tap but it's easy to find. How is the NACi going?
CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 250mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
I think I'm getting some
I think I'm getting some reaction as of yesterday ie: dry cough about an hr after dosing for a very short time then it's gone and a sneeze or two with a sniffle tonight. Today was the first day of 1200mg 2/day.
I've been to Garth's site. I'm sure I have it bookmarked. Thanks!
Was on the MPi for 3 1/2 yrs. Taking NACi, getting CPni tested, looking for answers...I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's
When I change what I believe I change what I do
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NACi 2400 mg, Zithi 250mg/MWF, minoi 100mg/BID, Tinii 500mg/BID pulses, Iodoral 37.5mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!With the NACi reaction I'd
With the NACi reaction I'd say the antibody tests are moot. You could have them redone by a different lab, but you are proving Cpni is in there dispite lack of antibodies (immuno-incompetence, intracellulari predominance, etc).
CAPi for Cpn 11/04. Dx: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 250mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
Reenie, I thought for sure
Reenie, I thought for sure you would test positive for CPNi.. I'm with Jim. I think you might still have it...my sister has mycoplasma only...she tested negative for CPN. she did not have reaction to NACi..
My doc referred to positive IgGi as a chronic infection, not a past infection..
Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80,. right arm neuropathy. + cpn, myco, EBVi, CMV. NAC 4000mg, doxyi 100-2xday, azith 250 m/w/f/sun, progesterone,
estriol, synthroid, pulseflagyli,tinii<___________________________________________________________
Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80,. right arm neuropathy. + cpni, myco, EBVi, CMV. NACi 4000mg, doxyi 100-2xday, azith 250 m/w/f/sun, progesterone,
estriol, synthroid, pulseflagyli,tinii<Reenie - Don't know if this
Reenie -
Don't know if this helps but my husband has been tested twice (Quest labs) for all three strains of chlamydia - IGGi and IGM. Both times he was negative. He did test off the chart high for mycoplasma both times.
All that being said. He had a reaction to NACi and most recently developed porphyriai from treatment. NAC and secondary porphyria are both believed to be unique to CPNi.
Daisy - Husband on CAPi 5/07. Minoi, Roxyi, Diflucan round two 1-31, Rifampin, Bactrim DS, Prednisone,
Novantrone, Doxyi, Azithromycin, Flagyli___________________________________________________________
Daisy - Husband on CAPi 5/07. "When Going Thru Hell, Just Keep Going", Winston Churchill
Jim, you would call that
Jim, you would call that little reaction a "reaction" to NACi? Does it go away? increase over time? It's not that I need any convincing that I have a chronic infection but a Dr might need some evidence and I want to be able to explain it well.
IMOi, with my extremely low Ds, my immunei system is prob quite comprimised.
Was on the MP for 3 1/2 yrs. Taking NAC, getting CPni tested, looking for answers...I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's
When I change what I believe I change what I do
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NACi 2400 mg, Zithi 250mg/MWF, minoi 100mg/BID, Tinii 500mg/BID pulses, Iodoral 37.5mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!Thanks Daisy and Sharon,
Thanks Daisy and Sharon, every little comment helps!
Was on the MPi for 3 1/2 yrs. Taking NACi, getting CPn tested, looking for answers...I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's
When I change what I believe I change what I do
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NACi 2400 mg, Zithi 250mg/MWF, minoi 100mg/BID, Tinii 500mg/BID pulses, Iodoral 37.5mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!Yay, you are having a NACi
Yay, you are having a NACi reaction, good news!
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8
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CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08I've also been getting itchy
I've also been getting itchy but at first I thought it was psoriasis; I don't think so. Can this be reaction too?
Was on the MPi for 3 1/2 yrs. Taking NACi, getting CPni tested, looking for answers...I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's
When I change what I believe I change what I do
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NACi 2400 mg, Zithi 250mg/MWF, minoi 100mg/BID, Tinii 500mg/BID pulses, Iodoral 37.5mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!Reenie - Yes it's
Reenie - Yes it's possible.
Just curious - on MP antibiotics- and since you have PS, PA - did you get any itching while on the antibiotics?
Daisy - Husband on CAPi 5/07. Minoi, Roxyi, Diflucan round two 1-31, Rifampin, Bactrim DS, Prednisone,
Novantrone, Doxyi, Azithromycin, Flagyli___________________________________________________________
Daisy - Husband on CAPi 5/07. "When Going Thru Hell, Just Keep Going", Winston Churchill
Actually, I got extremely
Actually, I got extremely itchy all over my body prior to starting the abxi when I was reducing light and D. Others had the same thing if I recall. We were told it was hormonal rebalancing. Looking back it may have been the lowering of D doing it just like I read folks have more reactions here when taking more (or less) D.
Was on the MPi for 3 1/2 yrs. Taking NACi, getting CPni tested, looking for answers...I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's
When I change what I believe I change what I do
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NACi 2400 mg, Zithi 250mg/MWF, minoi 100mg/BID, Tinii 500mg/BID pulses, Iodoral 37.5mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!Reenie the antibody tests
Reenie the antibody tests have a notoriously high rate of false negatives - meaning many/most of us who have Cpni seem to test negative on them. I tested negative too. My advice is to put a good few weeks of NACi behind you then test again. You'll have a much better chance next time around after your body has had a chance to make antibodies to the EBi's you are bursting with NAC.
CFSi. Started CAPi 03-07.
Currently: Roxi 600mg + Doxyi 200mg . 10 Pulses done. Sauna every other day. D 7200IU
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Hunter: Don't think - experiment
EB's concentrate in some
EB's concentrate in some places: sinuses and ear canals certainly, skin where they get deposited in the small capillary beds-- Dr. Stratton once referred to Cpni as a "small vessel disease," and in the hips, knees, ankles, feet, wrists. The latter, as Dr. Stratton says, because "EB's obey the law of gravity like everything else!"
So skin itching is a common die-off on NACi as well as ABXi. While you may be D depleted, you are still producing cytokinesi and histamines and the like. If you are at all in doubt, up your dose to 2400 a day! It will convince you, given you are already having reactions, if you need convincing!
As Garcia noted, the tests are notoriously unreliable. My experience is Labcorp is less so, Quest is better, and evidently Mayo Clinic is among the most accurate. But... note that if your antibody system is suppressd by low D, you might have less response to Cpn. If you do only have Myco, great. Well, you know what I mean. Not great but then you won't have the porphyriai and multiphase to deal with, although it's hard enough.
CAP for Cpn 11/04. Dx: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 250mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
Dr. Stratton says, because
Dr. Stratton says, because "EBii's obey the law of gravity like everything else!"
Just wanted to comment on this before I forget. Since before I caught Cpn I used to sleep predominantly on my left side due to pre-existing gut issues (my gut would hurt on the left and it felt better to sleep on it). As a result my infection is very much left-sided. Left eye dominates. As does left side of head. Left ear only involved. Throat - mostly left. Dr S is very much spot on that EB's obey the law of gravity.
Be interested whether others favour one side or other for sleeping, whether their infection dominates on one side and/or most importantly whether the 2 things correlate.
CFSi. Started CAPi 03-07.
Currently: Roxi 600mg + Doxyi 200mg . 10 Pulses done. Sauna every other day. D 7200IU
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Hunter: Don't think - experiment
I had thought the samething,
I had thought the samething, but felt silly mentioning it...i slept on my right side. i have right arm neuropathy. when I get restless leg at night, 98% of the time it is my right leg, and intensifies on the outside of my right leg..
Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80,. right arm neuropathy. + cpni, myco, EBVi, CMV. NACi 4000mg, doxyi 100-2xday, azith 250 m/w/f/sun, progesterone,
estriol, synthroid, pulseflagyli,tinii<___________________________________________________________
Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80,. right arm neuropathy. + cpni, myco, EBVi, CMV. NACi 4000mg, doxyi 100-2xday, azith 250 m/w/f/sun, progesterone,
estriol, synthroid, pulseflagyli,tinii<Reenie - What Garcia
Reenie - What Garcia suggests is a good idea and may happen.
When I tried this with my husband (NACi plus two of the antibioticsi for a few weeks) and then re-tested all three chlamydia strains, I thought for sure he would be positive. He wasn't.
So - he had NAC reaction. He had whopper health issues. We treated empirically. At 9 months he just had an intense round of secondary porphyriai. He has also been experiencing amazing improvements - including those clinically documented via MRI.
Also - along the way - husband had borrelia testing which showed positive for certain key lyme bands but not positive overall.
Someday I hope a scientific paper will be published on my husband, titled "Empiric anti-infective treatment of Balo's Concentric Sclerosis"
I am coming to believe that if you have a so called "autoimmune disease" you might well benefit from empiric anti-infective treatment.
It would be ideal to know for sure what pathogen you are treating, I sure did waste a lot of time and money trying to figure that out for my husband, but in the end- he was treated empirically for suspected infection and is improving.
Daisy - Husband on CAPi 5/07. Minoi, Roxyi, Diflucan round two 1-31, Rifampin, Bactrim DS, Prednisone,
Novantrone, Doxyi, Azithromycin, Flagyli___________________________________________________________
Daisy - Husband on CAPi 5/07. "When Going Thru Hell, Just Keep Going", Winston Churchill
Well, I'm evidence of lots
Well, I'm evidence of lots of skin involvement via psoriasis.
As for disease dominance side, mine is my left, pretty much from head to toe but because of more pain and issues on my left side I sleep mainly on my right side.
OTOH, what if the symptoms that I feel are mainly due to pathogenisis in the RIGHT side of my brain? Doesn't the right brain control more on the left side, vise versa? Some of the symptoms are neuroi so maybe it stems from the brain actually. Hmmm.... so maybe it IS because of the right side sleeping.
BTW, my RIGHT eye is more symptomatic than left everything else. It is more inflamed usually and I have a foggy spot in my field of vision, but the left eye is more blurry.
Was on the MP for 3 1/2 yrs. Taking NACi, getting CPn tested, looking for answers...I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's
When I change what I believe I change what I do
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NACi 2400 mg, Zithi 250mg/MWF, minoi 100mg/BID, Tinii 500mg/BID pulses, Iodoral 37.5mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!