Where is the one-page description of the protocols, please?

I'm sorry, but I can no longer find a page that describes the protocol -- did it disappear during the site meltdown a few weeks back? I mean, we all know it, so we never look, but a newbie might find it hard. Can anyone please reply with a link? Ron

Here's my sig block:

Ron

On CAPi for CFSi starting 01/06 (NE Ohio, USA)

Currently: doxyi & zithi -- continous; metronidazolei -- 5 days on, 7 days off.

Ron

On CAPi for CFSi starting 01/06 (NE Ohio, USA)

Began rifampin trial 1/14/09

Currently: on intermittent

 Actually, we have never had a one page description of the protocolsi that I recall (this could be flagyli talking...). We have had two pages describing protocols:

One for Dr. Stratton's: http://www.cpnhelp.org/strattonprotocolupdate<

One for Dr. Wheldon's: http://www.cpnhelp.org/wheldon< 

However, Marie and I have spoken about putting together a chart with the alternative approaches to the CAPi. A bit slow on getting to the doing of it.  

CAP for Chlamydia pneumonia since 11/04. 25yrs CFSi & FMSi- Currently: 150mg INHi, 200 Doxycycline, 500mg MWF Azithromycin, 1000mg Flagyl daily (Continuous protocol)

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

The chart idea is an excellent one and will facilitate a more favorable presentation to a physician .

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi) / Cpni indicated by reactions; Mpn, EBVi, CMV positive; elevated heavy metals; gluten+casein sensitive / Wheldon CAPi since Aug. '06 - doxycycline+azithromycin+flagyl pulses; antivirals; chelation; LDNi.

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

Ron, the ones that Jim sent you are the same as the ones I PM you.   As I am struggling with restructuring the handbook, I would appreciate a new way of making the informatin available to new comers sooner rather than later.   I don't want to have to revise the work too often.   I will hold off for a couple of weeks...  

Anyone else got any new suggestions that might help newcomers access the information.   I have already taken into account suggestions and contributions made in the past few months.  

Michele: Wheldon CAP1st May 2006 IBSi, sinusitis, alopecia">i, asthmai, peripheral neuropathy. 26th March 2007 continuous Flagyli at 400mg with 5 day pulses at 1200mg every three weeks. Spokesperson for Ella, RRMSi Cap Started 16 March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Ron, Jim

This is what I have done in the working document of the handbook. It should be checked by someone more medicaaly trained than I, but basically it is just the information available in the handbook. I have not passed this on to anyone yet, but since the matter has come up maybe now is the time.

 

 

This section outlines the two antibiotic protocolsi:

 

In both of the following protocols, any of the medications are begun or added as gradually as one needs for tolerance. For example, as little as 1 dose once per week, then two doses a week, then evey other day, etc. Those with higher bacterial loadi (based on initial clinical response) will need to go very gradually, to tolerance. Those who tolerate the reactions may ramp up to full dosage more rapidly with proper medical monitoring. The schedule of supplementsi is usually begun prior to initiating the antibioticsi. In cases where functional decline from aggressive disease is more rapid, physicians may ramp up the protocol more quickly with careful monitoring and with measures (such as steroids) to counter ensuing inflammatory increase. 

Dr Stratton

 

 

-Azithromycin 250mg, Mon, Wed, Fri

-Doxycycline 100mg x2 per day

-5 day Metronidazolei (or Tinidazole) pulses every 3-4 weeks, 350-400mg x 3 per day or 500mg 2-3x per day for 1-2 years, eventually working up to continuous dosing. Alternately, building towards continuous from beginning, such as adding one dose per week, then two, then three, then every other day, etc.

-N-acetyl cysteine 600mg - 1,200mg (to 2400mg) per day or Amoxicillan 500mg twice a day, eventually adding Probenicid once per day. 

 Dr. Stratton usually starts with either Azithromycin as it is less stressful on the liver or with Amoxicillan as he finds it well tolerated.

When the first part of the protocol is well tolerated either off the following can be added, possibly adding both eventually. Liver enzyme monitoring is essential when using these agents:

-rifampin, 150 mg BIDi<

-INHi 300 mg QDi pulsed with Metronidazole or taken constantly.

Dr Wheldon

 

 

 

-Azithromycin 250mg, Mon, Wed, Fri or

Roxithromycin 150mg x2 per day

-Doxycycline 200mg x2 per day

-N-acetyl cysteine 600mg - 1,200mg (to 2400mg) per day

-5 day Metronidazole pulses every 3-4 weeks, 400mg (-500mg) x or 500mg 2-3x per day

Or 5 day Tinidazole pulses every 3-4 weeks, 500mg x2 per day


 

 

 

 

 

 

 

 

 

Michele: Wheldon CAP1st May 2006 IBSi, sinusitis, alopecia">i, asthmai, peripheral neuropathy. 26th March 2007 continuous Flagyl at 400mg with 5 day pulses at 1200mg every three weeks. Spokesperson for Ella, RRMSi Cap Started 16 March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Michele- Great start! Thanks for adding this to your list. As you can see from my blog, my organizational skills took a nose dive. Hopefully, I'm ba-ack...

I've taken the liberty of editing in my own changes (based on current discussions with Dr Stratton as well as on dosage differences in the States) in underline. What's missing in the chart is the clinical rationale for choosing one version or the other or, in the case of Stratton's, the alternate drug choices.

Readers: Although the chart above is an accurate reflection of our understanding of the current protocol's, please consider this chart a work in progress until they are vetted by our medical consultation. 

CAPi for Chlamydia pneumonia since 11/04. 25yrs CFSi & FMSi- Currently: 150mg INHi, 200 Doxycycline, 500mg MWF Azithromycin, 1000mg Flagyli daily (Continuous protocol)

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Yes, Jim you are right, and we will surely sort all these things out as time goes by.   The chart I submitted heads the chapter on the CAPi in my working document it does not replace any of the explanations or rationales that the two doctors have put forward.   But as I said earlier this is a working document and will be open to revision for some time.  When taken as a whole some of the information may well be better located in a simple chart, but I am loath to remove anything that has been written, so will leave that up to others... who prabably know the medicine better.

Michele: Wheldon CAP1st May 2006 IBSi, sinusitis, alopecia">i, asthmai, peripheral neuropathy. 26th March 2007 continuous Flagyli at 400mg with 5 day pulses at 1200mg every three weeks. Spokesperson for Ella, RRMSi Cap Started 16 March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

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