What's a guy got to do to get a date with Dame Endotoxini, mistress of pain, following a pulse? Was it something I said? Was it something I did? Was it all that charcoal?
Still, I'm five days after pulse number eight with no adverse reaction to speak of. This is now two pulses with no post-pulse reaction.
Well, if nothing else, by going "stag" to the flagyl pain party I can serve as proof that flagyl doesn't have to flatten you.
CAPi for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi (3 x week) ceased 3/2008, restarted 5/2008, 150 mg Roxi (2 x day) starting 3/2008, ended 5/2008. Eighth pulse metronidazolei completed 5/10/2008.
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CAPi for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi (3 x week). Fifteenth pulse metronidazolei + INHii completed 11/22/2008.
hd, What's your
hd, What's your temperature? You might have had a "blind date" and didn't know it. If your temperature is lower than normal, that's surely what happened. Dame Endotoxini is a cold bitch.
Joyce~caregiver-advocate in Dallas for Steve J (SPMSi). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
Hmmm - seems she's highly
Hmmm - seems she's highly enticed to show when you add Rifampin to the menu.
Daisy - Husband on CAPi 5/07. Roxyi, Diflucan round three 4-4, Rifampin, Bactrim DS, Mepron 4-6,
Prednisone,Novantrone, Doxyi, Azithromycin, Flagyli, Minoi___________________________________________________________
Daisy - Husband on CAPi 5/07. "When Going Thru Hell, Just Keep Going", Winston Churchill
HD, apart from the blind
HD, apart from the blind date to think about, I feel that going on my experience, flagyli doesn't always equate with pain. With me it only did once, but that was pulse six if I remember rightly.................Sarah
An Itinerary in Light and Shadow...........Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent. Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.
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> What's your temperature?
> What's your temperature?
Ever since I was a child, normal has been 97.8 degrees (F) and that's what I am right now (I just went and took it so I could answer your question and I use the same mercury thermometer each time to ensure consistency).
CAPi for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi (3 x week) ceased 3/2008, restarted 5/2008,
150 mg Roxi (2 x day)starting 3/2008, ended 5/2008. Eighth pulse metronidazolei completed 5/10/2008.___________________________________________________________
CAPi for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi (3 x week). Fifteenth pulse metronidazolei + INHi completed 11/22/2008.
Were you on Roxi for the
Were you on Roxi for the most part of the past two pulses? I have only been on Roxi an as the macrolide so have no comparison however, I have been on full tinii pulses starting with my second pulse and for a person with CFSi that is not so common to get on to full pulses so quickly.
LouiseCFS/ME.CPnPositive.BbPositive.WheldonCAPbegan6/24/07. NowNAC,Doxyi, Roxi, Full TiniPulses. Cholestyramine at BedtimeforPhorphoria&liposacarideEndotoxinDie-OffExperiences.
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Louise CFSi, CPN+/Bb+,Wheldon CAPi 6/07, Cholestyramine 1-2 pks @ HS for Porphyriai & Endotoxinsi PRN, Doxyi 200daily, Roxi 300BID, Tini500BIDx14day pulses,VitD3-10,000IU, Iodoral 25mg, {S.O.D.3/QD[KAL Brand], Pyruvate 3.75G, SAM-e For Energy Support
Well, have you sensed any
Well, have you sensed any nuances of anything?
Joyce~caregiver-advocate in Dallas for Steve J (SPMSi). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
Ditto to that. I've been
Ditto to that. I've been highly "tolerant" of tinidazole, in that it never really made me herx. I'm 5 days into my first post-rifampin tini pulse and its herx central here.
CFSi. Started CAPi 03-07. Currently: Roxi 600mg + Doxyi 200mg + Rifamp 300mg . Tini pulses 1000mg. Sauna QOD. D 8000IU. Niacini 3 x 500mg. Mel 3mg.
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Hunter: Don't think - experiment
quick question to the more
quick question to the more educated. What is a good thing to take for the endotoxini die off and what is cholestyramin?
Learning from all your advice....thanks
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started Wheldon capi 4/21/08 for Cpni, CMV, EBVi, CFSi. Currently on: all supplementsi,Doxy200, added Azith.250mgs M/W/F on 6/30/08. Naci up to 1200mgs.as tol.
Horse, cholestyramine is a
Horse, cholestyramine is a resin that selectively binds to fat-soluble substances in your digestive tract. It was originally created to remove cholesteroli, but has come into off-label use as a way to remove fat-soluble toxins before they can be re-absorbed and re-cycled. Not sure who was originally credited with its use for that purpose, but Dr. Ritchie Shoemaker has been one of its more vocal proponents...primarily for the removal of mycotoxins in mold-related illness. Turns out to be pretty handy in other chronic diseasesi for the same purpose.
Tennessee, USA - Bb positive w/neuroi involvement, suspected CPni
Doxyi/Samento for Bb 2005-2007
Started CAPi 4/19/08 - NACi 2400mg, Pyruvate 6g, Doxy 200mg, Zithro 250mg M/W/F
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Tennessee, USA - Bb positive w/neuroi involvement, suspected CPni
Doxyi/Samento for Bb 2005-2007
Started CAPi 4/19/08 - NACi 2400mg, Pyruvate 6g, Doxy 200mg, Zithro 250mg M/W/F, Metroi pulses @ 3x500mg
HD- Oh you and your
HD- Oh you and your endotoxini-love life. Can't love 'em, can't leave 'em alone. Hate the pain when it's here, miss the pain when it's gone. Can't get no satisfaction...
CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 300mg Roxithromycin, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
I still haven't had a bad
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Jim K....Oh boy, I am
Jim K....Oh boy, I am thinking a country & western song is in this somewhere, just add the dog & it would almost be complete!
HD, pulse #10 here 1000 mg day 3 & I am hanging on the edge of the Troll Queen's kiss! Cranky today & sinuses & pain, abdominal & stomach upset, taste the metal. I better go get some glucose!
CFIDSi/ME 26yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#9 750mg 5.5 day, 4-25-8___________________________________________________________
CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#15 750 mg X 5 days 11-1-08MacK, have you always been
MacK, have you always been on ALL the supplementsi and taking the porphyriai stuff as a preventative? I ask because I am and so far I've had little problem. Admittedly I'm not taking Flagyli yet but the other abxi have only resulted in minimal reactions.
Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.
NACi 2400mg. All supplementsi. Doxyi 200mg. Zithi 250mg M/W/F.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008.
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Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.
NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008. First pulse June 2008
There's a whole section on
There's a whole section on this in the CPni Handbook and I can't summarize it and do it justice in a blog posting, so I'll just point you to it.
In addition to charcoal for removing fat-soluble toxins, I also use WelChol. It is a bile acid sequestrant like Questran, but it comes in pill form rather than as a powder and that can make it more convenient to take.
CAPi for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi (3 x week) ceased 3/2008, restarted 5/2008,
150 mg Roxi (2 x day)starting 3/2008, ended 5/2008. Eighth pulse metronidazolei completed 5/10/2008.___________________________________________________________
CAPi for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi (3 x week). Fifteenth pulse metronidazolei + INHi completed 11/22/2008.
Andesine, I started the
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Msi. endtoxin doesnt bother
Msi. endtoxin doesnt bother you anymore because shes over here buzy trying to kill me. I invited her over this week for flagly cookies and before i knew it I founmd myself in the hospital toxic and, vomiting my cookies. Somehow she also managed to taint my armoury- My doxyi is now being used against me via allergy. How did you manage to get rid of her? She was spassiming my body like the exercist when i tried to get her to leave. I was doing full body jerking! Shes still resting passivly in my vegas nerve and post nasal area I can sense her- yeah she is a " b". Shes getting a big suprized next time though! "Come on over for flagly cookies but do try some of my charcol baked chlorestramine when you arrive". That woman is going to get it from me next time believe me.
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CPNi pcri and antibody positive , treating MSi,
CFSi, TMJ, trigeminal neuralgia,IBSineutropenia, pus found in facial bone,Doxyi 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi pulses each month.