What I've been up to

Hi Everybody.

I've had to take a small break from cpnhelp.org to deal with a number of personal issues. Pulses were put on hold as well. I've been looking for a new job, had to file bankruptcy, and this summer my health took a slight turn for the worse because of some abscesses.

I felt it was time I gave you all an update.

This summer deep abscesses began appearing on the back of my neck. I treated them with Castor Oil, which helped them open and drain, but the damned things kept coming back. Eventually, the whole back of my neck became inflamed. I saw a series of doctors, each prescribing a different antibiotic…. but none cleared up the problem. The inflammationi took its toll on me and I became very physically weak. At times I felt like I was going to have a relapse. Finally a doctor diagnosed  me with Hidradenitis suppurativa and I underwent surgery on September 23. The surgeon found a large abscess almost right on top of my spine. He removed the abscess, as well as the inflamed surface tissue and the next day I had a surprise. The strength in my arms and hands had returned.

It was in 2014, when I first lost a significant amount of strength in my arms and hands. At the time, I couldn’t figure out what source of inflammation was triggering it. I went from being able to type two-handed to typing one-handed, I couldn’t cut my food or handle knives safely, picking up heavy objects was difficult, and writing at times was impossible. It was a mystery. I found ways to compensate for the weakness, accepted it, and simply moved on.

After my neck surgery, I found myself typing two-handed, writing strongly and clearly, and cutting my food again. From what I can determine, there was probably a small infection festering in my neck for years. The Hidradenitis suppurativa helped exacerbate it, making it grow bigger and brought it out of hiding. As I continue to recover my abilities are waxing and waning. Alot of this has to do with the fact that my surgical site is still healing and creating inflammation in the process. The other week, I found myself strong enough to do the laundry, load/unload the dishwasher, and do some light food prep all on my own. Unfortunately, the percocet I'm taking for the lingering pain i my neck helped me physically overexert myself without noticed. My arms were really hurting the next day.

So, don’t believe the doctors when they say that M.S. relapses “just happen”. If you look hard enough you may in fact find the cause….and better yet….when you fix it, you may recover far more than you expected.

Comments

Thanks all

Laughing

Hi Jen!I too am over the moon

Hi Jen!

I too am over the moon at the news of your recent changes of fortune (health wise). I have had a run of my own issues - including eyesight - so haven't posted congratulatory comment until now. I am really glad and really happy for you. I raised more than one glass and I made sure that they were full of quality smooth red wine.

This site is devoted to eradication of a particular bacterium - Chlamydia Pneumonia - and not particular illnesses. Both you and I have been afflicted with MSi. We have both been treating more or less exclusively on the basis that the cause is CPni. It is easy to become so focused and forget that there may be additional or even different factors involved. Whatever the factors in your case, I am really really glad to learn that you are heading in the direction of wellness - finally.

When reading of your story, I was reminded of a time a couple of years ago or so when I developed lumps in my armpit. It was treated with flufloxacillin and then within a few weeks, the same developed under the other arm.

http://www.cpnhelp.org/flucloxacillin_500mg

I think that some people are fortunate in that they are only fighting one cause. The most famous example of someone getting well on these pages is that of Sarah Wheldon/Longlands. Although acutely, if not gravely ill when she started the treatment, after six months on the meds, it was blatantly clear that it was working. I know that people cynical of this treatment have dismissed Sarah's recovery as a "She didn't have MS in the first place". Sarah is by no means the only one to get well doing this treatment. One such lady I know personally (I won't mention you by name Moggy). There are lots of examples like here (Lucky Irene could vouch for that). What I seem to notice is that some folk seem to show apparent benefit within the first year. Other folk seem to be up against it, as it were.

Jen, it's a fair bet that those abscesses weren't filled with Chlamydia Pneumonia bacilli.

Anyway, once again, I express my delight at the direction at which you are headed: hooray! I would love to learn of quite a few others following in that same direction; Healthy Girl, Rachel Q, Jam and Froggy to mention but a few.

Keep going Jen and keep giving inspiration and courage to us all!

“Don't believe everything you read on the internet.”

―    Abraham Lincoln<

Wow, that's fantastic for

Wow, that's fantastic for you. Doctors can be too quick to diagnose and rarely admit mistakes as we Brits know when we say can to them. Hopefully pulsing will be more successful now.

Moggie

well done

Fascinating...and well done! I had an abscess on one side of my head (revealed by MRI). After i had angioplasty to treat CCSVI, the abscess vanished.

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Doing Thibault protocol (NACi/minoi/roxi/tinii/nattokinase)...but considering morphing to Stratton protocol

Raising a glass in your

Raising a glass in your direction tonight and wishing you outrageous, excessive recovery!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

We will have to raise a glass

We will have to raise a glass one night later but we will!! Sarah 

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.