Well, that was anticlimactic

Well, my former neurologist retired.  My primarcy care doctor referred me to another neurologist.  The relationship didn't start well.  On my first visit, the office staff, who I can only compare to a cabal of drunken lemurs on crack lost my appointment, couldn't figure out how to process my insurance (I have Blue Cross, so its not like its a provider nobody has ever heard of before - well at least nobody other than the lenur cabal) so that I ended up in the waiting room for four hours!

The neurologist herself seemed okay. 

Earlier this year she ordered a follow-up MRI.  As usual, the MRI facility gave me a copy of the CD, but not a copy of the report, citing (erroneously) HIPPA.  I couldn't get a copy of it from the doctor until my follow-up visit in September because the neurologist is afraid of liability should the report say something that causes me to go harm myself. 

So, after having my MRI and waiting six months to get the results, I had my appointment with my new neurologist.  I was releived to see that the lemur cabal had been replaced by an office staff that seemed much more competent and capable.

After the field sobriety test that the doctor calls an "evoked potentials test" (and which is a lot more expensive than a field sobriety test which the police will administer for free under the right circumstances), she said that my MRI showed no progression and that I didn't need to come back for a year. 

Gee, it looks like there may be something to the CAP after all.

 

Comments

hdwhit, Your humor has been

hdwhit, Your humor has been sorely missed around here.  Thanks for the update! 

(I've met your cabal in two different offices; they must have taken their show on the road.)

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

As others have noted...

...when the CAPi gives people their life back, they go out and start living it, instead of lurking around this site contemplating their own disability and demise.

I do appreciate those who faithfully remain here to guide people who are new to the antibiotic protcol. 

 

CAPi for M.S. 8/2007 - 3/2009.  Twentieth pulse metronidazolei + INHi completed 3/12/2009.  Intermittent treatment thereafter until 11/20/2009.  

Not only have the lemurs

Not only have the lemurs taken their show on the road, but they also have up to date passports.

I'm glad you do come back from time to time because if people read your signature they will notice that one doesn't fall apart when stopping CAPi................................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Lemur Free Zone

On a serious note I think I have to remind readers that when I decided to do the CAPi, it was without medical supervision using antibioticsi that were purchased either from places where people still worship cargo containers leftover from World War II (no joke, Google the "John Frum Movement" if you don't believe me) or veterinary supply houses.  

When I departed from the CAP (including the supplementsi specified in the CPNi Handbook), I ended up - as I out it - "touring the nations emergency rooms" because I was at the time frequently traveling for business.

Anybody now doing the CAP needs to not only follow their doctor's advice, but also the advice in the CPN Handbook. 

And when they finally stop reacting to the flagyl (metronidazolei) pulses, they need to switch to intermitteent pulsing and keep it up until they stop reacting to those pulses.  At that point, my experience suggests the CAP can be discontinued without relapse.

And then, like me, you'll have your life back and you'll start living it again and that means you'll only find time to visit this site a few times a year.

Here's to everyone getting so much better that they, too, can disappear.

 

 

CAPi for M.S. 8/2007 - 3/2009.  Twentieth pulse metronidazolei + INHi completed 3/12/2009.  Intermittent treatment thereafter until 11/20/2009.  

Falling Apart - Heaven Forbid!

"I'm glad you do come back from time to time because if people read your signature they will notice that one doesn't fall apart when stopping CAPi<i<................................Sarah"

I can't speak to the experience of other people who have completed the Combined Antibiotic Protocol (CAP), but in my case it has had the effect of putting my M.S. into remission. 

I started the CAP in August 2007.  My last M.S. exacerbation was in November 2007.  I have not had any new M.S. symptoms since.  In fact, the symtoms that I had before starting the CAP have largely resolved themselves over the last several years. 

Some things, however, remain.  The M.S. left me unable to control my left eye with the precision it once had so that my close-up vision is terrible.  I can correct with reading glasses and bifocals, but for someone whose close-up vision was key to his earlier career, this has been annoying.

And the CAP was not without its own costs.  If you read my blog, you will note that at one point I hit a "plateau" where the flagyl (metronidazolei) pulses stoped producing any results even though I was well short of the duration Dr. Stratton is quoted in the CPN Handbook as suggesting may be necessary.  To "re-start" the protocol, I added penicillin to the CAP (on my own) which did seem to do the trick.  It was also quite effective in clearing out much of the friendly bacteria from my intestinal tract; something I continue to work to restore. 

Still. given the choice between a wheelchair and stinky flatulence, I'll take the flatulence every day. 

But don't ask the people I live around whether they would make the same choice.

 

 

CAPi for M.S. 8/2007 - 3/2009.  Twentieth pulse metronidazolei + INHi completed 3/12/2009.  Intermittent treatment thereafter until 11/20/2009.  

That was a hilarious

That was a hilarious description. I can almost visualize your whole experience, thanks to Madagascar. Hey, you got the last laugh though. Great News. Keep on Capping.

MSi: First sxi '93 dxi '09 no obvious relapses just steady decline since '07. Crippling fatigue, too weak to sit up for extended periods of time. Cane/walkers/electric chair inside, helicopter outside. 

Started protocol 11/16/13.  1200mg N

Cabal of Drunken Lemurs!!

Cabal of Drunken Lemurs!! LOL!! Laughing

That is my new favorite name/descriptor for incompetent office staff. 

Good for you Hdwhit.

Glad that I could contribute

I have to confess that I was inspired by Scott Adams (writer of Dilbert) who talks about having encountered office staff that were weasels, but the switch to lemurs is original.  Still, if a "cabal or drunken lemurs on crack" works for you, please feel free to use it.

CAPi for M.S. 8/2007 - 3/2009.  Twentieth pulse metronidazolei + INHi completed 3/12/2009.  Intermittent treatment thereafter until 11/20/2009.