Weak legs

Hello!

I got a cpni diagnosis a little over a year ago, it all started 4-5 years ago, my main symptoms have been feeling sick, weak and no energy, symptoms coming and going..When I found out about the cpn it was from a CFSi/ME doctor and he subscribed me a six week course of Clarithromycin..it didn´t make it better and a couple of weeks after I started having problems first with my calves and then it spread to the rest of the legs.

This last year it´s just kept on getting worse..and about six months I got a job and had to walk a lot and had to push myself despite the legweakness..as it turned out I shouldn´t have. Since then it´s just gotten worse, and it won´t go away..(earlier I have been able to rest for a week or so after exhausting myself and then being able to at least walk short distances)

Now I can hardly stand up anymore and stumble around between my bed, toilet and kitchen..get out of home about one or two times a week and get totally fucked up from walking short distances of about 200 meters..

Earlier I could at least do some things on my better days but now I get more isolated all the time..the rest of my symptoms is about the same..most days feeling sick and weak but some better days in between..but because of the weakness of the legs I have to stay in my sofa even when I feel "ok" with the other symptoms..So bored and tired of this..

My guess is that the short antibiotic course made it worse and then the overexhaustion at work drove the cpn to totally take over my legs..or something like that?!

Has anyone else experienced similar symptoms?

(I´m on NACi and will soon start CAPi, but a bit worried that I´ll become totally handicapped by it)

Happened to post twice, anyone  knows how to delete on of the posts?

Healthproblems since 2007, started while working at kindergarten with the flu and endless colds. Feeling sick, muscleweakness and fatigue. Cpni diagnosis sep 2013(IgGi+IgM positive). On Wheldon Protocol since october 2015.

Don't worry, Mack will sort it out for you!

Also don't worry too much about how the treatment will sffect you, just take it slowly and get plenty of rest, if you have ME.  The short course of clarithromycin won't have really helped you but if you are now restarting it might be better to restart the antibioticsi before you worry too much about NACi.  I didn't take it until  had been on everything else for about fourteen months..........................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

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