Walkaide Test Results

Well it looks like good news. I had my appointment yesterday for the Walkaide device. It works but would work better if I didn't have so much stiffness in my foot. They like the setting of the device to be between 5 and 5.5 and mine was 9, which is quite a jolt though I barely felt it. So there is obvious nerve damage too. We'll know better after I do a few months of physical therapy. I'm guardedly optimstic. I'll keep everyone posted. Linda

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If there is no wind..............row New Hampshire USA on CAPii since 2-4-2006 for MSi Currently on rifamapin 150 mg 2x day, azithromicin 500mg, m,w,f and 100mg tinidazole 3x a day for seven days one week a month, work up to 3 grams calcium pyruvate 5 days

Linda, This is great news!

Linda, This is great news! I am so excited for you. I think you will feel better after a few months of PT. I was pretty demanding as far as PT person. I had a good one and than I was sent to the new person as she needed clients. (I was on flagyli) I told the owner, I want this therapist or else I will find another location. I am not in a hurry so call me when she is available. All the sudden she was available the next day at any time I could make it :). It has paid off and I tell you this story as if you get somone that does not seem good - find someone else. Good Luck and keep us posted on this. On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyl Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

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On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

Linda, if you showed dogs,

Linda, if you showed dogs, you can do this! Yes, it's hard - but so is keeping up with the pack! My right side from mid ribcage to my toes was so numb when I began this that for years before I said I could skin myself and I wouldn't feel it. I now have at least 95% of the feeling back on that side - we here are doing things every day that "they" said: couldn't happen, nothing can be done, no cure, impossible, etc., etc. To which we answer: WATCH!

 

Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 49 pulses NC USA

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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 53 pulses LDNi Rifampin 8/08 again NC USA

  Excellent news, Linda! 

 

Excellent news, Linda!  Hopefully the PT will help with the stiffness in the foot and then you will be well away........Sarah

An Itinerary in Light and Shadow...........Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.

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Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.

Doglover, Great news! I

Doglover, Great news! I had to cancel my appt at Hanger for tomorrow as my Dad will be jetted back home here to convalesce after his stroke. I am excited for you and I hope your time in PT is quick and painless--lol! :) Do keep us posted. -kk2 :)

 

On Wheldon regime [Doxyi, Azith, and Flagyli]  for rrmsi since October '05.  Added Amoxicillini 1gm twice daily and LDNi 4.5mg qhs October '07; EDSSi was 6.5, now 5.5.  United States.

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Began Wheldon Protocol for rrmsi October '05.  Currently OFF all abxi since June 26, '08 due to severe porphyriai. Added LDN 4.5mg qhs October '07.  All supplementsi.

Linda,  This is a wonderful

Linda,  This is a wonderful thing.  We want to see video of you walking with your new device.  Perhaps you can post it on U-tube and give us the link.

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

Cypriane, video huh, won't

Cypriane, video huh, won't that be great. I will definetly do that-maybe walking one of my dogs!! If there is no wind..............row New Hampshire USA on CAPi since 2-4-2006 for MSi Currently on doxyi 100mg, 2x day, azithromicin 250mg, m,w,f and 500mg flagyli 3x a day for five days every three weeks.

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If there is no wind..............row New Hampshire USA on CAPi since 2-4-2006 for MSi Currently on rifamapin 150 mg 2x day, azithromicin 500mg, m,w,f and 100mg tinidazole 3x a day for seven days one week a month, work up to 3 grams calcium pyruvate 5 days

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