Hi there again,
I have been so sick that I am getting really down. I am not on the Capi protocol, but did get a massive dose of Vit. D for low levels a couple of weeks back. I have severe Ankylosing Spondylitis and the doc thought it would help to bring my very low levels of Vitamin Di up. Since then, I have been bedridden pretty much and very short of breath. I cannot go into the sun at all without having a massive reaction. I feel like I am burning on every inch of my body, my teeth hurt, I itch and my temp drops down below 97 and my heart (I have heart diseasei) starts to skip beats. I read from your posts to me that this could be die off. I;ve tried Vit. C and charcoal and xanax helps the most, although not enough. Any other suggestions? If this is really a die off, does anyone have an idea of how long these things last and why high Vit. D when you've been low does this? Also, why does the Wheldon protocol use D for MSi. Wouldn't that cause a horrible die off as well?
Any help or comments are appreciated.
Thanks,
Spiralgal
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Spiragal- It sounds like a
Spiragal- It sounds like a porphyric reaction, especially with getting worse in the sun and the xanax helping: porphyrins are photoreactive and tend to build up in skin for some people; xanax, like propanalol, controls the anxiety and tachycardia symptomatically.
The best counter is lot's of H2O and taking the charcoal at least 12 caps two or three times a day to bring the porphyrins down. And you have to do this over a number of days to bring your load down enough because you are continually producing them in a prolonged die-off, and they just get reabsorbed without something to bind them, i.e. continue taking the charcoal.
Temperature drops are more likely due to endotoxini release and seem best countered by EmergenC doses, or other quick acting Vitamin C.
I used to need to do a Vitamin C flush when things got out of hand. See http://www.cpnhelp.org/vitamin_c_flush_for_flagy
All of the CAP's here recommend D because it stimulates powerful natural antibioticsi, most people especially with infectionsi are severely depleted in it, and a lot of diseasesi like MSi are correlated with lack of it. Usually people work up gradually in doses of 1000 units D3. You got a big kick in the butt from that dose, but at least there is not doubt you have an infection!
CAP for Cpn 11/04. Dx: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 300mg Roxithromycin, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3
CAP for Cpn 11/04. Dx: 25yrs CFS & FMS. Protocol: 200mg Doxy, 300mg Roxithromycin, Tini 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
Spiralgal, usually when
Rica PPMS EDSS 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 50 pulses NC USA
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Rica PPMS EDSS 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 51 pulses NC USA
Thank you so much...I am
Thank you so much...I am still wondering about this interaction of Vit. D. I n the past up till now, I have had no problem hanging out in the sun. Is it that I didn't have that much D at once. Also, I have mega-dosed D in the winter with no ill effects. Maybe as my AS has gotten so bad in the last few months that the infection has increased for some reason. Do you have any sources or sites for this Vit. D issue? I feel stupid and can't get my head wrapped around it. Also, do you know if apple pectin works like charcoal? I tried charcoal for 2 days, but not much as I got constipated.
Thank you, thank you!
Spiralgal
Spiralgal, I am curious...
Spiralgal,
I am curious... what dose and how often are you taking this D3? I'm trying to decide whether or not to take more than the amount in my daily multi vite (400 ius) because I'm concerned about getting flattened by it!
PS Are you sure it's D3 and not the rx for D2? My endo sent me an rx this week for 50,000 iu's D2/week. I don't think that's going to happen.
MP for 3 1/2 yrs. NACi 1200 mg/2x day, Iodoral 25 mg, myco+ I (still) want my life back! CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addison's
When I change what I believe I change what I do
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NACi 2400 mg, Zithi 250mg MWF, minoi 100 mg/2x day, Iodoral 25 mg, Recommended Supplementsi, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
When I change what I believe I change what I doHi Reenie, I was given
Hi Reenie,
I was given 50,000 IU D3. Both docs of mine know about the D3 vs. D2 thing. I had no idea to be worried as I have taken this much before over 3 months, once per week with no symptoms. I am sitting here on fire, rash on my face, headache, skipped beats and feel hyper. I am living proof of what it can do under certain circumstances.
Hope this helps. BTW, I was taking 4,000IU D3 per week with no reaction and still my levels were too low. Figure that---
Good night to all,
Spiralgal
OOps, I meant 4,000IU per
I take 4000iu a day. When I
I take 4000iu a day. When I first started I found it increased the NACi Flu symptoms big time. It's eased off a lot now I'm used to it but then I did wade straight in with 4000iu.
Berkshire, UK. Diagnosed RRMS Feb 4th 2008.
NAC 2400mg. All supplementsi. Doxyi 200mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008.
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Berkshire, UK. Diagnosed RRMS Feb 4th 2008.
NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008. First pulse June 2008