Vanderbilt Referral Required

Diagnosed with MS in July after 3 years of symptoms.  Not taking DMDs, just LDNi, NACi, NAGi and Vit D and fish oil.  Progression has increased in last 6 months and I'm interested in ABXi.  Contacted Vanderbilt about 3 weeks ago and was told I neeed to get a referral from my treating Neuroi before they will see me.  My insurance doesn't require referrals so I'm at a loss to understand why they're asking for one. Can anyone who has beeen seen at Vanderbilt explain? nfslg
I did not need a referral when I went to Vanderbilt over 3 years ago.  Perhaps this is a new policy for them.  Can you get your GP to make a referral for you?
Started Vanderbilt protocol 1/9/08  Rifampin once a day, b12 injection monthly , vitamin Di 50,000 IU weekly
nfslg, What is DMDs and NAGi??

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hi Mac,

DMDs is disease modifying drugs

NAGi is N-acetyl Glucosamine- are derivative of the stuff used for knee arthritis.


Have you been dxi'd with MSi, and if so are doing ABXi?  If so, how is it working?

Since I am here and Mack is not, I will answer those questions in the affirmative.   She will be along sometime.

If you read the Getting Started or the Handbook, many questions will be answered.   If you click on anyone's name, their profile will come up.   Have you begun on the supplementsi, especially Vit D3 and NACi?  This is a huge adventure.  Welcome.


3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am



I have been on 10,000 IU of D3 since July, and worked up to 1200 mg NACi b.i.d, for about month and a half. Also taking Fish oil, LDNi (3.) mg nightly) plus my regular prescriptions which include Prevacid, Lisinopril and Flomax daily.  I did read some of getting started and I got the fact that it can take  3 or more years to get back to a good point which is fine if you at least see stabilization and then improvement over that time.

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