Treating ME/CFSi virus with Valganciclovir or Valcyte
Hello there, I think a few people on this site are treating their Epstein Barr/HHV6 virus co-infection with Valganciclovir/Valcyte.
As I suspect I have HHV6/glandular fever virus in the past I was considering this as part of my treatment plan.
I saw my GP here in England last week. She was open to the idea, but didn't know an awful lot on the subject of the link between that and ME/CFS. She asked me to get some research items from the Net - which I have.
I was wondering if any people here had anything to say on this aspect of their treatment eg. did it work for them, how long they had to wait to see any difference etc. I realise this is personal testament and not research findings - it just gives me a feel for the subject!
Many thanks to all in advance.
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M.E./CFSi 20 years, intermittent. Wheldon Protocol - Started NACi and supplementsii Sept 2007. Doxyii and Roxy full dose by Dec '07. First Flagylii pulse January 2008.
Hi Blackfoot~ This is my
Hi Blackfoot~
This is my first post, so let's see if it actually gets posted!
I was diagnosed with chronic viral infectionsi (high HHV-6, EBVi, HSV1 and VZV). I just completed 9 months of valcyte and the titers for HHV-6, EBV and VZV are now normal. I have improved in my health, but am not well.
Recently, I was diagnosed with Cpni (IgGi 1:512, IgA >=1:256). So, perhaps that is the cause of my continued illness.
See www.hhv-6foundation.org There is a wealth of info there. There is also a patient's forum too. I'm Timaca there also!
Best,
Timaca
I was diagnosed with Lyme
I was diagnosed with Lyme and CMV Aug 06 and started treatment for lyme a few weeks laters (IV) after I was finished with the first phase of the lyme treatment Valcyte was added for the CMV.
I was on Valcyte for about 4-5 months. Around week 6 I started to feel better. My energy level began to rise.
I don't know what my blood work would reveal today, but I am glad I took the Valcyte for as long as I did. I had to stop taking it when I hit the capi on my insurane. It is an expensive drug.