Update Aug 2012

Hi All

Here is an update

Been pulsing for 16 months

I am now able to work five days a week with great effort and periodic days off from fatigue

Able to swim once a week fairly intensly and do lighter stuff (light swim)one other day a week

My pulses are 1500 mg six days every month I still get a herx

I have added artesiminin for babesia to my protocol and that gives me a herx too

Craving are about 5% of what they once were

Less crazy appetite so weight loss too

Changed coffee retension enema to raw organic beans I roast myself ...really cleanses

Still have PEM but it does not last as long

Finger Nails grow three times faster than when I was sicker (hair too) and the nails are very hard

I am happy with progress but still not having a "normal" life

If you have questions ask

I will update as I think of more

Thanks to all you guys and the abxi protocol and my Doc for supporting me

 

 

Comments

Hi Homina,My LLMD has me

Hi Homina,

My LLMD has me using Artemisinin, along with my Babesia Meds (and Lyme/Co) meds.  It is suppose to enhance the treatment.

If you have Babesia (there are at least 15 different strains and only tests available for 2 of them and again, these tests are usually inaccurate -- diagnosis is usually a clinical one), Artemisinin can be helpful; but, taken alone usually will not eradicate it.

On the plus side It IS an anti-paresitic so it could be hitting other "stuff" in your blood you don't know you have.  In China and some of the other countries it is used for malaria but at very high doses. 

Taking it alone (without Malarone or Mepron) usually will not eradicate Babesia and is pulsed on a specific schedule such as 4 days on 3 days off. 

Two other herbals for Babesia that are now used/recommended are Sid Acuta and Cryptolepsis.

But, if you find it's helping you, it's not harmful at doses of less than 1gm/day (but you do need to pulse it), and, it can be toxic at high doses.

 

 

 

 

JeanneRoz ~ DXi'd w/ CPNi 4/2007; 6/07 -"officially" dx'd w/CFIDSi/FM; also: HHV6, EBVi, IBSi-C, 100 Doxyi:BIDi<; 500 mg Biaxin BIDi; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni

HominaWonderful news!  You

Homina

Wonderful news!  You certainly have worked for it.  How is your Vit D level and do you take sublingual B-12?  The B-12 (I take 30,000 iu a day) helps.  The same thing happened with my hair and fingernails.

Rica. 

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Hi Rica

My B12 is injectible ..Hydroxocobolamin

My Vit levels are 65 now vit d supps and  sun

 

DAILY:  NACi 2400MG , DHEAi sublingual , vit D3 , multi vits,./ Three times  a week: B12 injections (Hydroxycobalamin). Deer antler./  Once every few months methyl B12 Methyl injections

So good to hear.  Nice to

So good to hear.  Nice to hear your weight gain is being lost now. 

From my perspective it sure sound darn close to normal at least from the activity that you can maintain. 

OK what doess PEM stand for? 

You said, I have added artesiminin for babesia .   What is the form of this is it a tincture?  Where do you get it and how much of it do you take and for how long?

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

Louise

PEM means Post Exertional Malaise

I got Artemisinin from swansons

http://www.swansonvitamins.com/DB076/ItemDetail<

It was just an experiment so not sure it is the best form for me

 

I use 300 mg a day

 

 

 

 

DAILY:  NACi 2400MG , DHEAi sublingual , vit D3 , multi vits,./ Three times  a week: B12 injections (Hydroxycobalamin). Deer antler./  Once every few months methyl B12 Methyl injections

Great News - progress!

Does sound pretty close to normal!

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tinii pulses,100 mg diflucan, 4.5 ldni; Wheldon protocol for MSi April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

Better than most people’s

Better than most people’s ‘normal.’ I would think.  Well done!......................Sarah

A Journey through Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sarah and Wiggy

I still have pretty bad fatigue after five days of work

It takes a couple days to bounce back

Still have no social life because always resting from work

Having night sweats almost every night but sleep is better

I have a way to go but this is a "miracle"

 

 

DAILY:  NACi 2400MG , DHEAi sublingual , vit D3 , multi vits,./ Three times  a week: B12 injections (Hydroxycobalamin). Deer antler./  Once every few months methyl B12 Methyl injections