Unmitigated Gall

My main die-off symptom is fatigue---I'm a limp, sleepy dishrag while pulsing.  Dr. X recently switched my pulse pattern to 10 days on/10days off.  While riding to work this morning, I mentioned to Steve that I would start another pulse on Monday.  In a very frustrated voice, he asked "When are going to be done with that?"  "When I'm well," I replied.  "When are you going to be well?!" was his very exasperated comeback. 

Can you believe it?!  How would he feel if I asked him that question, especially in that tone of voice?  No, I'm not hurt or angry; it's strangely funny.

Comments

MacK,  In the Dallas area

MacK,  In the Dallas area Ike was rather uneventful.  Some rain, some gusty wind...nothing spectacular.  East Texas was hit pretty hard though when Ike made its way north from the gulf.

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

Egads!  I didn't expect

Egads!  I didn't expect this to turn into gender bashing!  I was just presenting a little slice of life with a co-CAPi-ing couple.  Yes, men and women are different from each other, but any insensitivity on Steve's part in our conversation arose mostly from the fact that he hasn't made a study of the Cpni/CAP world as I have done.  He doesn't know much about it at all except what I tell him at any given moment.  And I don't expect he ever will learn much about it.  He has Dyslexia, so he won't do the reading, and he generally forgets what I tell him due to impaired memory. 

If anyone's imagination has him treating me callously, I assure you that's not the case.  He still manages to treat me like a queen and spoil me rotten.  He makes my breakfast and lunch every morning and sends me off like a school girl with a full lunchbox.  If I'm not faring well, I do sometimes have to hit him between the eyes with a plank to get the situation registered, but once the point is made, he becomes sensitive for that moment...until something else steals his attention.  I love men, but they are not good multi-taskers.  It's not their fault.

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

Joyce, I've been holding

Joyce, I've been holding back on begging you to post. So, you survived the hurricane, did you?

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Joyce, I am so pleased you

Joyce, I am so pleased you are treating.  I am completely familiar with that whole husband attitude as "support" hasn't exactly been my husbands coin word.  It is all right though, for him to come home & tell me every sorted detail of his day & go back to his computer when it is my turn.  So, hard to believe, I just don't say much as he will complain!

 God created women because man needed a beautiful partner.  A woman who resembles his feminine side, an adventurer, scholar & inside beautiful to do the hard stuff like having babies & periods that man couldn't handle.

If both men & women had babies, the man had the first, the woman the second.... there wouldn't be a third child, nope, he would have had his tubes tied! Tongue out

Heal on sister, I have been putting off a pulse, so tomorrow..#14! weeeeeeee

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

Fatigue is sure an unseen

Fatigue is sure an unseen symptom.   And of course you know all about cholestyramine for porphoria and LPSi endotoxini absorption.  Maybe you have even tried it yourself.

I wonder if people ever get tired of my talking about cholestyramine for fatigue and other symptoms on the long list of Reactions and Remedies on the Getting Started blue tab at the top of this page?  I go on and off Cholesty as needed now and keep my levels of porphrins and endotoxinsi down and therefore symptoms down.  Since adding Cholestyramine to my treatment approach and then 9 months later adding the simplified methlyation supplementsi seems to be keeping my head cleared from brain fog and my energy up and available as I go through the aspects of the CAPi Protocol day to day and during the pulsing cycle.

Glad that you can roll with those sorts of comments, I'm practicing tongue bitting these days for such coments! 

Louise

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

Joyce, giving Steve the

Joyce, giving Steve the benefit of the doubt, is it possible that his frustration was with your pulsing schedule and he expressed it poorly. He probably knows that you have to continue the CAPi for years, but, if you are like many of us, the effects of the pulse do not wear off as soon as you stop pulsing. Therefore, he might have just been asking for a little more time to enjoy your company before you entered the dishrag phase again. Notably, his remark was prompted by your saying that you were beginning another pulse on Monday.

PPMSi-misdiagnosed 2001-diagnosed 2006. Probably caught cpni in birth canal but it didn't pass BBBi until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAPi 3/2/07 Stopped 12/12; resumed 12/13

Do you know why God created

Do you know why God created woman?  Because He didn't get it right the first time!!!!!!!!

FMSi/CFS 1995. tinnitus">i, ibsi, sinusitis, EBVi, NACi 2400mg, valtrex, cortef, armour, doxy, biaxin, tinii, vita c 5 - 10,000 daily 

What do you call a man with

What do you call a man with half a brain - gifted. (mean, mean, mean...)

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Okay, I'll bite.  Why was

Okay, I'll bite.  Why was man created before woman? Because every architect creates a rough draft before perfecting the plan.

Smile, Joyce.  He's probably cranky because he's impatient, and he's impatient because he's healing, but not fast enough for his taste.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

You know how it is, you

You know how it is, you always take things out on the ones who mean the most to us!  I guess that's because we know they will still love us!

Lori 

 
Started Vanderbilt protocol 1/9/08  Rifampin once a day, b12 injection monthly , vitamin Di 50,000 IU weekly

MEN!

MEN!

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Joyce, you are right, this

Joyce, you are right, this is rather strangely funny, but also showing that your Steve is well on the mend.   

Why, only two nights ago I had to remind DW that if he hadn't treated me, he would have not done anything for his own cardiovascular problems so we might both be not here now.............Sarah 

An Itinerary in Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Attack! Attack! yes for me

Attack! Attack! yes for me there has been the pulse stuff and the inevitable reactions.  and those peaceable days, if-you-re-lucky- weeks in between where its peaceable and healing.

 for those of us who want to get well - and how, and quickly!  - maybe sometimes its important to remember the times when we just coast without pulses for a while to enjoy 'the moment' as someone would say in some bad, silly, true afternoon TV movie!

M.E./CFSi 20 years, intermittent.  Wheldon Protocol - Started NACi and supplementsi Sept 2007. Doxyi and Roxy full dose by Dec '07.  First Flagyli pulse January 2008.  Changed to Tinii in December 2008.  Stopped CAPi in February 2009 at pulse 16.

Quite right, Joyce.  When

Quite right, Joyce.  When we are sick we are liable to focus on our needs and wants to the exclusion of the plight of others, even others who have the same problem.  I commend you for being able to recognize it for what it was and not something malicious.  If only every man had a wife like you (although mine comes pretty close).

CAPi for M.S. 8/2007 - 3/2009.  Twentieth pulse metronidazolei + INHi completed 3/12/2009.  Intermittent treatment thereafter until 11/20/2009.  

It's forgivable.  It's the

It's forgivable.  It's the memory loss and cognitive dysfunction.  He forgets that I'm infected too; he forgets that most if not all of his Cpni was dispensed by me.

I explained that I needed to do the CAPi not only to ward off further development of arthritis and my Potbelly Syndrome issues, but hopefully to also avoid Alzheimer's.  That got his attention.  He spoke of how awful it would be for me to have Alzheimer's since I'm so "smart."  His cognitive dysfunction must not be all that bad, since he had sense enough to try and save the situation by stroking my ego.

Jim, I guess "mitigated" gall is when you step off-center into the cow pattie.

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

Joyce- the male animal has

Joyce- the male animal has been known for some especially profound moments of great lack in insight and for a lowered capacity for self-reflection! Still, your post leaves me with a question: what is mitigated gall?

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

After everything you have

After everything you have done for him, this should be unbelievable. I am flabbergasted.

minocycline, azithromycine, metronidazolei 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitisi (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

Maybe he thinks that you

Maybe he thinks that you are not ill enough to be on the protocol.   I know that in Hamish's case he does not consider anyone to be as ill as he is...  He is also very conservative in his attitude to doctors and medicine in general.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.