Hello all,
I had to call a halt to chlorquinaldol due to its obvious harmful effects on my visual acuity.
To finish the experiment I decided to try the last 2 combinations of antibioticsi I can think of for my condition: levofloxacin + azithro & rifampicin + minocyclin
Maybe the second won't be necessary since levaquin made all my symptoms disappear after one dose (1 gram). This dose was followed by a 30 minute mild herx reaction, which makes me question the theory of the long term, repeated and intense herx reactions being signs of recovery. What if they are just side effects of the drug? Or the result of massive killing of friendly bacteria which doesn't happen normally. I don't want to be a killjoy, but the theory you're relying on doesn't sound plausible to me. If it were, the 1 g dose of levaquin I took the day before yesterday should have bedridden me for a long while (levaquin is bactericidal, after all).
When I was having ongoing herx reactions from the CAPi nothing positive happened, while now, a brief one was followed by the best sensations I've had in years.
I've kept to the mustard since discovering its excellent effect on my condition and I will stick to it indefinitely.
The 2 gram mega-dose of azithro I took today had absolutely no perceptible effect, while the first time I tried it a whole batallion of minute things started a frantic dance in my urinary tract.
I will continue with Levaquin (2 x 500 mg per day) + zithromax (250 mg every other day, starting 7 days from today) until I reach 6 weeks of treatment. I'm in the third day now and symptom free. In between I will do 3 to 5 day cycles of Metronidazol (5 days off - 5 on, for example), to avoid opportunistic infectionsi with anaerobic bacteria and maybe kill those in cryptic formi. I will also take NACi (600 mg/day).
Maybe 2 months from today I will be able to write to you about my full and lasting recovery. The point I have already reached is rewarding enough to give me hope.
There's something else I have recently discovered: the potential connection between my chronic ailment and an intolerance to meat/protein. This is still to be proven.
All of you who have been on the CAP for months without experiencing any obvious improvements might have to look elsewhere. Had I not questioned Dr. Stratton's theory I would most likely still be miserable like last year, without any hope of recovery in sight.
One thing that simply didn't make sense to me was why tuberculosis patients see obvious improvements 2 to 3 weeks into the treatment when the bacteria respond to it. This is one of the worst possible infections, isn't it? The question is rhetorical, so please don't answer it.
I am fully aware of the theories presented on this site and know they represent the last hope for many. My comments were made for those who haven't felt any improvements after months of treatment. Based on my experience, antibiotics work fast on sensitive bacteria.
I feel there are some imbalances that make systemic infections possible in the first place. Otherwise mankind would all suffer from debilitating conditions caused by cpni/mycoplasma infections.
Maybe trying to find something common to most of you/us (triggers, vitamin/mineral deficiencies, food intolerances, etc) would be of more help than the CAP.
If we don't address the real imbalances the bacteria won't go away no matter how many tons of antibiotics we drown them in.
Hope and health to everyone on this site!
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Tudor
On CAPi from June 2008 to October 9, 2008
Reactive Arthritis, polyuria, infertility, CFSii, CPNi (uncertain)
Now taking:
- Quercetine + Bromelain (2 x 800/200 mg daily)
- 2 x 3 teaspoonfuls of mustard(a brand that has
Hi Tudor, your signature is
Hi Tudor, your signature is a bit out of date so I thought I would post your blog pages for those who would like to follow your postings and in particular the responses that have been given as replys for any newbies that are reading here. http://www.cpnhelp.org/blog/tudor Best wishes, Louise
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6-07WheldonCAP CPnBb FMSi-CFS20+yr, 11-07Cholestyramine HSPRNx7d-porphyrin+endotoxini
3-08Iodoral, 5-08BHRT, 8-08Same+Bs, 10-08D-10,000IU
2-09Intermit-CAPDoxi
RoxiClari,Tinii, 2-09LDN-CFS1-10-IT+Ursodiol300Bid+Lauricidin
I fully believe this post
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Hmm, ya levaquin full dose
Hmm, ya levaquin full dose takes about 2 weeks before the ER calls my number, and minocin full dose took about 3 weeks before i decided I didnt really want to die of heart failure, sooo... Q -Is a bactericidal strength of the best acting drugs for cpni actually required to kill the bug in some people who have developed some resistance. IMOi ( and its only an opinion )... I think unfortunatly possibly yes. < --- (only my opinion) Q2- is it possible to tolerate the toxins and porpheria from the die off... IMO " unfortunatly nope" .. and in my case, i dont know about yours, it is die off. I may never get better on bacteriostatic doses, but I do know that my body is not capeable of metabolizing such agressive and cruel beatings to it with bactericidal treatments. I honestly wish you the best of luck, but I dont think what your doing is a good idea.
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MSi TMJ trigeminal neuralgia
cfsineutropeniacystitisnephritisoptc-neuritissinusitis. Dox200 zith250 rif 600 daily. Treating cpn and TBI'sClammed, I suggest that you
Clammed, I suggest that you read through all of the blogs located at the link that I posted aboveto get a sense of the conversations and cautions that have been expressed so many times and in great depth with Tudor. He is expressing here in his blog, keeping us up to date with what he precieves as his success and in an open forum such as this certainly his opportunity to share his personal perspective. If you read through you will see why calling him on his agressive and lack of adherence to the CAPi supported here on this website is counterproductive. MacKintosh made her post for a reason and that can be found in the history of this posters blogs.
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6-07WheldonCAP CPnBb FMSi-CFS20+yr, 11-07Cholestyramine HSPRNx7d-porphyrin+endotoxini
3-08Iodoral, 5-08BHRT, 8-08Same+Bs, 10-08D-10,000IU
2-09Intermit-CAPDoxi
RoxiClari,Tinii, 2-09LDN-CFS1-10-IT+Ursodiol300Bid+Lauricidin
I agree... with MacK and
I agree... with MacK and Louise. I like a response previously posted by Norman Yarvin (and I hope he doesn't mind that I cut and paste it below) with regard to Tudor's previous posts :
"Tudor, in case you haven't
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JeanneRoz ~ DXi'd w/ CPNi 4/2007; 6/07 -"officially" dx'd w/CFIDSi/FM; also: HHV6, EBVi, IBSi-C, 100 Doxyi:BIDi;250 AzithM/W/F; Tindamax Pulses, B12 shots,
Armour ThyroidERFA Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 units, Suppl<Tudor, I think it is quite
Tudor, I think it is quite possible that you and others of us may have infectionsi that do not respond to the particular antibioticsi used in the Stratton-Wheldon protocol. Having said that I would strongly caution you re quinolones. They have a black box warning and are especially risky if you have low glutathione levels. The risk you hear about is tendon damage, but a more serious longterm risk is nerve and CNSi damage. My personal conclusion would be that I would use any other antibiotic there is, or natural treatment before taking any quinolone. You can google this issue and find a lot of info. I won't bother to post further here.
Paula Carnes
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Paula Carnes
Louise, If tudor is going
Louise,
If tudor is going to do something which may harm his body, ( agressive treatment of c pneumoniae ). If i didnt say something, I would feel really bad for not speaking up if he ended up with liver, kidney or heart issues. However, I do see tudor that you've expressed confusion about what kind of infection you actually have and if agressive treatment works for you then maybe as you mentioned, it may not be primarily CPNi that you have. However,I do think that cpn is relevant when anyone has symptoms of illness and evidence of infection with a positive antibody be it IgGi or IgA so there isnt any more advice that I could offer.
As far as my opinion whether or not this protocol is strong enough to create a cure in all people, Im sorry but i cant be that niave to assume so. I choose to be realistic in accepting that yes an infection is the cause of my MS, and yes capi antibiotics are the antibiotics that kill it, and yes straton is the leader in research of the germ which i believe to be infecting my CNS, vascular and immunei system. For these reasons I do believe the best advice on treatment can only come from his protocol...however, realistically, we do develop biofilms that are difficult to penetrate, some of us have chronic scar tissue, structural abnormalities, damaged nerves etc etc etc, and eventually, a reality...all germs develop resistance at some point.
I do hope that many us here can beat the germ before it beats us, and I know that the best option for treatment is to do the protocol just as it is, as its been researched, and clearly illustrated to be the best possible hope for total cure. Copaxone, rebif and tykillme wont do it... but with cap... atleast there is a fighting chance.
Totally clearning cpn from the body, is totally subject to the degree of damage done vs how well the body can repair that damage, vs how quickly the germ develops resistance. Cap takes into consideration all of these things by taking the protocol in steps when it comes to abxi changes, it uses supportive supplementsi, abxi combos that prevent resistance and it uses a dose of medication that will not harm the body over long term use.
If a cure is possible, I do believe Cap is the best chance to get it, since we do have a few sucess stories already and that cant be said of other treatments, but whether or not everyone can get better, I can only say.. I myself am sure going to try
Tudor, i hope you get some answers for whatever is ailing you. If you do eventually come to find that it is cpn which is causing your symptoms, hopefully you will make good decisions for your treatment and if it is something else, then hopefully you will find it and get on a proper protocol for whatever germ it is.
All the best
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MSi TMJ trigeminal neuralgia
cfsineutropeniacystitisnephritisoptc-neuritissinusitis. Dox200 zith250 rif 600 daily. Treating cpn and TBI'sBy the way... your originjal
By the way... your originjal blog says that you were tested for brucella and babesia. Have you not been tested for bartonella?
You may want to check out this link
http://www.publichealthalert.org/Articles/jamesschaller/18_reasons_lyme_treatments_fail.htm
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MSi TMJ trigeminal neuralgia
cfsineutropeniacystitisnephritisoptc-neuritissinusitis. Dox200 zith250 rif 600 daily. Treating cpn and TBI'sThanks Jeanneroz for
Thanks Jeanneroz for bringing Norman's post from January 09 to the surface again. Louise
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6-07WheldonCAP CPnBb FMSi-CFS20+yr, 11-07Cholestyramine HSPRNx7d-porphyrin+endotoxini
3-08Iodoral, 5-08BHRT, 8-08Same+Bs, 10-08D-10,000IU
2-09Intermit-CAPDoxi
RoxiClari,Tinii, 2-09LDN-CFS1-10-IT+Ursodiol300Bid+Lauricidin