Cpnhelp.org - Chlamydia Pneumoniae Treatment

Hi Corinna,

Thanks so much for the well wishes. My brother was a great guy, a far better person than I, and I know you would have liked him. The good news, if there is any really good news in this, is that his suffering is over.

The sad part of this is that his brain tumor was back in remission. It was an overwhelming infection, likely brought on by the immunei compromising treatment for his cancer, that like for so many other cancer patients, brought an end to his life. Even though I appreciate all they did for my brother, I will never understand his doctors' reluctance to add even prophylactic antibioticsi to his treatment. Even with the UTIi raging, they continued pounding him with chemo and decadron. Medicine has a long way to go...

I'm afraid the prognosis for my mother is not so good either as Pancreatic Cancer is very aggressive as well. I'm trying to keep her on 10,000iu of Vit D3 as studies suggest it can double your (admittedly small) chances of surviving Pancreatic Cancer, but it may be too late. Vit D3 appears to work much better as a preventative for this form of cancer, like with so many others...

Speaking of, I know I'm kind of a nut about this, but tell your friends about Vit D3 and it's anti-cancer effects. The Creighton study suggests that taking only 1,100 IU may lead to 60-77% fewer forms of all cancers. It's sad that studies since the early 70's have suggested this was the case, but have been largely ignored. Luckily more and more in the medical community seem to be taking note of the current research. Let's hope they get the message out...

Thanks again for the well wishes. I surely hope you feel better soon too!

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Treatment for Rosaceai

• CAPi:  01/06 - 07/07
• High-Dose Vit D3, NACi & FIRi Sauna Only:  07/07 - 11/08
• Intermittent CAP, High-Dose Vit D3:  11/08 - Present

Dan, I am thinking of the fellow in the media right now, an actor named Patrick Swayze, who is apparently recovering from Pancreatic Cancer. I marvelled at the article I read because I understand that this is one of the worst cancer diagnosis one can receive.  It would be wonderful if your mother was one of the very few that come through this!

I am shocked that the doctors caring for your brother gave him no antibioticsi!!  How can there be a rationale to this? I would be at a loss to accept it, but that would be my ignorance overriding any thought, I suppose.

One of my tenants right now is undergoing cancer treatment (I didn't ask for what because they were so hesitant to tell me in fear I would be concerned about their ability to pay rent! I hope I have calmed their fears now.) He was an eastern fisherman for 15 years and they are the most decent couple.  I have moved their family to a better unit on a ravine backing a deep and peaceful forest area. All the appliances are new and I am getting the furnace ducts cleaned and the furnace replaced because I am so worried about mice droppings or other bacteria that could be lingering about!  I am concerned about his diminished immunei system. His wife is an absolute master at house cleaning and I know she will get every nook and cranny she can see but it's what they don't see that worries me. I feel a huge responsibility and would be devasted if something in the unit made him ill.  He is luckily able to stop his treatment post radiation, no chemo required. I hope the peaceful setting makes a positive difference for him too.

I am very glad that you are passionate about taking the Vitamin Di. I really hope it will help your mom. Today was my first day at 10,000 IU and I will take your advice and lower it when my company is here in hopes for a better physical state. I will resume once they leave though.  Tim is on 5000 IU now and seems to have no ill effect from it as far as I can tell.

Best wishes and warm hugs!
Corinna

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Corinna | GFAi. Wheldon Protocol: 4–8/08. Can't kill the yeast.

Red, My sincere sympathy. We lost my aunt to an aneurysm on Wednesday and I am once again amazed at the devastation one loss can wreak on a family.

Reflecting on your comment about how you just can't understand the rationale of not giving him abxi, on the apparently useless loss of his life...  it occurs to me how many people you and he came into contact with during his battle to recover.  While I firmly believe you leave this life exactly when you are supposed to, and a brick will fall from the sky if that's what it takes, I also believe we don't leave until we accomplish what it is we were put here to do.  Perhaps part of what he was put here to do is educate, and stretch the minds of those who need to think and rethink what they believe about autoimmune disease, brain tumors and infectionsi, vitamin requirements, etc.   You will never know the effect you both had on SO many people you encountered during this battle.

It is not only the Srirams and the Wheldons who are teaching and spreading the information; it is the Reds and the Ricas, the Ellas and the Ravens, and all the rest of us, telling friends, being patients of reluctant doctors, printing copies of information that sometimes sits on tables and sometimes finds the 'hopeless' case and brings them back from the brink.  Any one of us can be the glimmer of light that sparks the thought process in a medical professional or a news outlet or the friend of a friend of a researcher who will impact tens of thousands of lives in the future.

It sounds as if your family has become a benchmark of grace under pressure, of stoicism in the light of huge odds and of a quiet determination in continuing to educate others while being tested yourselves.  We may none of us understand why or what, but be assured there is some reason we are all going through what we are going through.  I wish you some peace for yourself in these difficult days.  Our hearts are with you and your mom.

 

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Red and Mac my thought are with you and your families.   Bereavement is always traumatic however distant the relative or friend is.  I wish peace upon you in this traumatic time and hope that Red's mother get a fighting chance at beating this cancer.

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Dan- I've been following your journey with your brother's treatment and I'm so sad for you and your family. So frustrating that they couldn't open just a little and perhaps have eased his suffering from infection.

Please look for my PM, as I have some info on pancreatic cancer for you.

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

Dan~  I'm sorry to hear of the loss of your brother and of your mother's diagnosis.  I recently lost my father.  Death is never easy. 

I hope you will be encouraged in some way by God.  For me, I have been sent "Pennies From Heaven."  

I had not found pennies for many months prior to my dad's death.  The day he died, there was a penny next to my truck in the hospital parking lot.  The next day there was a penny where I parked next to his home.  I found a penny in the first place that I started to clean as I emptied his home (on a shelf in a back closet).  The next penny was after I visited the attorney concerning his estate.  And the last penny was at the charity where I dropped off donated goods.  

All these pennies felt like messages to me from my father.... I have never found so many pennies....

I hope you too, get many pennies from heaven from your brother, and can give much love to your mother while she is still alive.

Blessings,   Timaca 

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Diagnosed with lyme disease 3/05. Diagnosed with chronic HHV-6, EBVi, VZV, and HSV1 6/07. Diagnosed with CPni 5/08. On antibioticsi for 2+ years, Valcyte (antiviral drug) for 9 months. Currently on 100 mg doxyi bid for Cpn and acyclovir for viruses.

Red & MacK

I am very sorry to hear about your losses.  Though the reason may not be apparent at this time, there is good reason for the suffering.  You may well see your family members again on the other side when your work is done here.

blessings

r

 

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#15 750 mg X 5 days 11-1-08

Dear MacKintosh,

My sincere condolences on the loss of your Aunt. It is always hard to lose a loved one and an aneurysm must have been a sudden event. I hope you are okay.  

Warmest regards,
Corinna

 

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Corinna | GFAi. Wheldon Protocol: 4–8/08. Can't kill the yeast.

Red & Mac my deepest sympathies for your losses too. You've both been Stalwarts of support on this forum. Here is hoping that your experiences will help us to prevent this happening to others.

garcia. 

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Hunter: Don't think - experiment

Thank you all for your well wishes.   I really appreciate all the kind words on this blog and in private messages.   Thanks again so much.

Mac, my sincerest sympathies for the loss of your aunt.   I hope you also find peace in these difficult times.   My thoughts are with you too...

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Treatment for Rosaceai

• CAPi:  01/06 - 07/07
• High-Dose Vit D3, NACi & FIRi Sauna Only:  07/07 - 11/08
• Intermittent CAP, High-Dose Vit D3:  11/08 - Present

Red and Mack,

I echo garcia's sentiments.  You both are key cogs on this site.  So sorry to hear of your personal losses.  Makes things all the more challenging.  Hope you're both faring well.  You are in my thoughts and prayers.

Peace.

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Wheldon Protocol for rrmsi since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGGi's for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qd for Babesia.

Red and Mack, your efforts to reach other people and the info you post on the forum have probably reached someones, and spared them and their families what you are going through. Thank you.

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Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

Dan, I am so sorry to hear of the passing of your dear brother. I do tell everyone I know about vitamin Di. I am sort of a pest about it. My own mother is always fighting illness (she needs the CAPi but won't do it) but at least I have her taking D, iodine and the other supplementsi like NACi. It's tough when you know some things can help but sometimes the family member isn't receptive. Bless you for all the encouraging words you have given to all of us. Raven CAP since 8-05 for Cpni and Mycoplasma P. for MSi and/or CFSi

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Feeling 98% well and going for 100! Still testing + for Cpni since June '08.CAPi since 8-05 for Cpn and Mycoplasma P. for MSi and/or CFSi. Also EBVi and HHV6 NACi, Iodoral, T3, BHRT, Methylcobalamin injections, Nitro patch, LDNi and Methylation supplementsi

Red and Mack, So sorry to hear of news of brother and Aunt. I hope you are both doing ok. Take Care

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On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

Thanks, everyone.  You're all such kind people.

 

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

MacK and Red,

My condolences to both of you.  Please take care of yourselves.  Sending my best.

Lori 

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