24/7 party: BYO Meyelin

24/7 party: BYO Meyelin

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'Bring your own' or 'brew your own'?   I didn't see this yesterday Nancy: I don't know what to think yet!

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I hate it, right now.

 

PPMSi-misdiagnosed 2001-diagnosed 2006. Probably caught cpni in birth canal but it didn't pass BBBi until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAPi 3/2/07 Stopped 12/12; resumed 12/13

Nancy, are those Lyme spirochetes? Nasty buggers be gone. I wish I could nuke them from the planet!

Julie

MSi: First sxi '93 dxi '09 no obvious relapses just steady decline since '07. Crippling fatigue, too weak to sit up for extended periods of time. Cane/walkers/electric chair inside, helicopter outside. 

Started protocol 11/16/13.  1200mg N

Yup, they are, superimposed on a cpni biofilm. Ugly, ain't it. i'm feeling pretty hopeless. Everything, the simplest movements, is so difficult. And the state of Md. is determned to never let me drive again.

 

PPMSi-misdiagnosed 2001-diagnosed 2006. Probably caught cpni in birth canal but it didn't pass BBBi until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAPi 3/2/07 Stopped 12/12; resumed 12/13

But Nancy, C pn doesn't have anything to do with biofilms, being intracellulari.

Incidentally, if Maryland doesn't want to let you driv again: be thankful because you will have to have someone else do the driving so you are left free to watch all that is going on around you...........................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

OK, my mistake. But the image is taken from our site.

And who, pray tell, will do the driving? My chauffeur?

PPMSi-misdiagnosed 2001-diagnosed 2006. Probably caught cpni in birth canal but it didn't pass BBBi until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAPi 3/2/07 Stopped 12/12; resumed 12/13

Does Lyme involve biofilms?  Nancy had a Lyme exposure back in the day...

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

That I don't know but if it does, she could always change the title! No, the title doesn't say anything about biofilms, so no need.................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

What, of cpni biofilms?  No, it must be an error because there is no such thing.

As for drivng, I won't drive because some of my relapses involved blacking out: if I blacked out again whilst driving I might kill someone.

If your every move is difficult you shouldn't be driving either: an encouragement for you to get better.  Try going by taxi.........................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Sarah, I cannot walk but my driving is terrific. At this point there is no reason I should not drive.

 

PPMSi-misdiagnosed 2001-diagnosed 2006. Probably caught cpni in birth canal but it didn't pass BBBi until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAPi 3/2/07 Stopped 12/12; resumed 12/13

Oh, right, so you obviously are not like the man down the road, who everytime he drove out of his driveway, banged into the house opposite: well it was a narrow lane.........................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

If I had the money: http://www.youtube.com/watch?v=3NUjnIeAlJg

Or this one: http://www.youtube.com/watch?v=8UHs4kv2ONI

But somebody needs to make a solar-powered, wheelchair version of this: http://www.youtube.com/watch?v=FIzOcJwQ7WA, before the zombie apocalypse. Just saying...

 

 

 

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