Cpnhelp.org

Hi Russ,

I love your book, The Potbelly Syndrome and refer many people to read it!  

I do believe it might have been Jim K that coined that phrase.  Maybe someone else might know, but it so totally fits, doesn't it?  I believe it's actually the "generally falling apartⁱ" or GFA Syndrome.  I saw that acronym somewhere and that's how I recall seeing it.  

I "generally fell apart" Christmas Day and have been spending much of my time back bedhugging.

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NACⁱ 2.4g, Zithⁱ 250mg/MWF, minoⁱ 200mg, Tiniⁱ 5day/1g/5 pulses, Valcyte
Supplementsⁱ, CFIDSⁱ/FMSⁱ, Hashimoto's, Psoriasis, PA, IBSⁱ, Sec Addisons

Don't believe everything you think!  

GFA or Generally Falling Apartⁱ was first used I think by Cypriane, (this is Joyce's user name) and if you write a private message to her I am sure she will be able to confirm that and gladly assent to your request.   I think it first was used in May 2007 (here).

It is a term I use myself in my signature as it perfectly describes what happens to one when getting old and infected with Cpnⁱ.

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Michèle (UK) GFAⁱ: Wheldon CAPⁱ 1st May 2006. Daily Doxyⁱ, Azi MWF, metroⁱ pulse.

I think it was Joyce aka Cypriane that came up with Generally Falling Apartⁱ Syndrome to come up with a category for people that felt like they were falling apart but did not have a specific diagnosis. I am going to read Potbelly Syndrome as I hear it is great!

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On Wheldon protocol for MSⁱ since April, 2006.  doxyⁱ 200 mgs daily, zithromax 250 mgs 3x/ week , Flagylⁱ Pulses start end Sept., LDNⁱ 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

Russ- I think it was Joyce who used it first. The only credit I take is for, perhaps, calling it a "syndrome," since I'm generally entertained by inventing specious medical syndromes, and inventing the full faux-medicalese "GFAⁱ Syndrome."

Glad to hear you are working on another book. I'll look forward to seeing it.

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CAPⁱ for Cpnⁱ 11/04. Dxⁱ: 25yrs CFSⁱ & FMSⁱ. Currently: 250 aithromycin mwf, doxycycline 100mg BIDⁱ, Tiniⁱ 1000mg/day pulses; Vit D2000 units, T4 & T3, 12mg Iodoral

Russ, I read some of your prior posts and wondered is your new book related to your attempts at persuading  the NBGH, insurance companies, etc that "CPNⁱii is the scourge of the Century?"  If so how has that been going?  I've often wondered what would insurance companies think if they knew that the antibiotic treatments they've been such a big part of fighting against is the one thing that would probably have saved them millions, if not billions of dollars over the past many years.

Kelly

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Diagnosed FMSⁱ Feb '07.  2x/day: 600 mg NACⁱ, 100 mg Doxyⁱ, 500 mg Amoxicillinⁱ, 2000 iu Vit. D.  450 mg Valcyte.  250 mg Azi M/W/F.  500 mg 375 mg Flagylⁱ pulses every 3-4 weeks.  Started CAPⁱ June '07. 

Hi Russ,

I bought & read your book.  Good Info

Happy New Year!

r

 

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CFIDSⁱ/ME, FMSⁱ, MCS, IBSⁱ, EBVⁱ, CMV, Cpnⁱ, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsⁱ+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagylⁱ/day-5 days<

Russ,  I don't remember, but if it was me who first used the term "Falling Apart Syndrome," please feel free to use it for your book or any other publication.  Best of success to you and have a happy new year!

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSⁱ).  CAPⁱ since August 06, Cpnⁱ, Mpn, B. burgdorferi, systemic candidiasis, EBVⁱ, CMV & other herpes family viral infectionsⁱ, elevated heavy metals, gluten+casein sensitivity. 

Russ, I found your book while researching hypercortisolism and it led me to this website and CAPⁱ. I really appreciated your writing style and information. I took it with me to my first doctor's appointment to ask about CPNⁱ and CAP. I left the book with him to read. He did give the book back, but wrote down the title-who knows if he ordered it. I was just wondering if you could give us a teaser for what the new book is about. Just curious:)

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Mel W.  asthmaⁱ for 20 years, PCOSⁱ, insulin resistant, hypothyroid, high cortisol9normal 2/09), low ferritin, low D3--34(2/09).  Recent PCRⁱ-PCN not detected.  Dr. treating empirically.  Doxyⁱ 200mg.  Azith 250mg MWF 11/10.  Flagylⁱ pulse #3

Hi Kelly Anna, I'm replying from my neighbor's computer to see if my posting problem is really on my comuter. In the sring of '08 iwas going to contact NBGH and simiar organizations, but I decided that my website and my handout materials were so amateurish that they would hurt my cause. I've redone my website a couple of time and made my handouts slicker, 'though I'm not entirely happy with them. I still plan to contact NBGH and the big health insurance companies. My own insurer, Kaiser, wastes billions without batting an eye. Russ

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Russ Farris: russ@PotbellySyndrome.com http://www.PotbellySyndrome.com

Russ, Shockingly, my insurer had no compunction about the fifteen hundred a month for Copaxone. It seems so bizarre that many question three generic antibioticsⁱ, at roughly three percent of that price.

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Russ, good luck with this.  It can be so exhausting and frustrating trying to find ways of convincing people to stop following the path that they're on and that they've become accustomed to, even if it means saving themselves money, or even their lives, apparently.  (A friend just lost her sister due to leukemia caused by M.S. medications, as well as other complications caused by pain meds prescribed over many years.. There was and is no convincing her that bacteria was causing her sister's M.S.)

For your book on cognitive problems - from DW's coined term, what do you think of "The Forgettory Syndrome" (sp..) as a title?    Maybe I just like it because it applies so well to me.

Kelly

 

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Diagnosed FMSⁱ Feb '07.  2x/day: 600 mg NACⁱ, 100 mg Doxyⁱ, 500 mg Amoxicillinⁱ, 2000 iu Vit. D.  450 mg Valcyte.  250 mg Azi M/W/F.  500 mg 375 mg Flagylⁱ pulses every 3-4 weeks.  Started CAPⁱ June '07. 

Russ,

Were you able to post alright?  I'm dying to know.  The suspense is killing me. 

Actually, I tried to reproduce your problem on my pc using IE7, trying to change some settings and I simply couldn't so I'm hoping you have the issue solved.  

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NACⁱ 2.4g, Zithⁱ 250mg/MWF, minoⁱ 200mg, Tiniⁱ 5day/1g/5 pulses, Valcyte
Supplementsⁱ, CFIDSⁱ/FMSⁱ, Hashimoto's, Psoriasis, PA, IBSⁱ, Sec Addisons

Don't believe everything you think!  

Hi Memel33, thanks for the kind words about The Potbelly Syndrome. On my website, www.potbellysyndrome.com, I added a four-page summary of the book that you can give to interested doctors. The new book will show how infectionsⁱ cause most of the diseasesⁱ that are blamed on old age.

      I created a new login name and password this evening and I'm trying to see if I can communicate smoothly with people on this group again.

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COPD, CHF, atrial fibrillations. Diagnosed with CPNⁱ in 1999, but can't get HMO to take it seriously. Website is www.potbellysyndrome.com

Hi Reenie,

I set up a new account, and it's been working fine for a half an hour now. I couldn't get the old account to work right for five minutes, even from another computer. Thanks for trying to help. Russ

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COPD, CHF, atrial fibrillations. Diagnosed with CPNⁱ in 1999, but can't get HMO to take it seriously. Website is www.potbellysyndrome.com