Quick background. ReA 98-99-2000, cured 2001 ish with Cipro high doses. (I could not handle Flaygl, always server reactions.) Aftermath has continued to this day. Mostly colon. Constipation, spastic colon. Did benicar about a year and a half ago, (then nearly died). Serious odd reaction after 3 months. Resulting in adrenal crisis (7) / panic attacks. Stopped everything. 4 months ago started Lamisil, Fungilin, both anti fungals. Very serious improvement, all round. Still suffering with panic and colon better but still not perfect. (Symptoms of panic very intense after going for a poo.) OK, the reason I stopped abxi is because colon / constipation worsened by abxi. I am sure colon is fungi problem too.) Now couple of days ago, had some Oysters. (my favorite super food). Both me and GF ate them and both got ill, she let loose all over, (i spare the details). I went straight for the abx. Zitro. Very iffy last few days. Oysters seemed good (and Im familiar with them) - strange feeling much more viral than bacterial. (Bones etc.)
OK felt crap all day, had 2 poos, and VERY interestingly no panic (normal). For once. Im wondering if the panic was helped by the abx (Zitro)?
My pattern is, I do abx, feel better, stop, get ill. Too much abx - get ill (colon). The recurring nature of my colon problems suggest (to me) that there is some sort of Cyst nature. Abx kill off the onslaught but a month later the buggers are back. Im wondering if I should reconsider Flaygl or Tinii. A penny for your thoughts...
Bleu
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Diagnoised 98 with ReA (reactive arthritis), Cpnii found in eyes! after2 years of study and some trials with Cipro and Biaxin ReA passed. since then colon complications. Did lamisil and fungizone for one year recently, big improvement. Yet still colon probl
Bleu- I think you have all
Bleu- I think you have all the elements, just not using them together yet. Clearly the missing element from straight abxi was the antifungals. Now it does look to me that the missing element is Flagyli/Tinii pulses as you aren't getting rid of the whole thing. Stratton Rule Number One is that the best effect is going to be when all the antibioticsi are present. It doesn’t mean that you have no effect if all are not present, just that the best effect is when all are present.
This means dual abxi (or an alternative I'll mention), NACi, both continuous, Flagyl/Tini pulses, and your own personal program of antifungals and probiotics which you have found essential.
Dr. Stratton has mentioned an alternative program, not one he has tried but which theoretically would do the trick, for those who are especially sensitive to abx. He speaks of it here http://www.cpnhelp.org/?q=flagylpulsing and here http://www.cpnhelp.org/?q=dr_stratton_answers_some_
It is pulses of INHi and Flagyl/Tini, and NAC continuously. The NAC kills the EB'si over time, and the INH kills the replicative phase, the Flagyl/Tini kills the cryptic. Pulsing the INH avoids it's liver toxic potential so you don't need as much medical monitoring. Pulsing both together means an intense but short (five day) period of die-off and recovery in between. And INH doesn't effect bowel flora, like zithro and doxyi, so your fungal problems are not made worse.
He explicitly described this as a slow pulse, ie lower dose of each. The more intensely anti-chlamydial the meds, the more big die-off can effect infected organs, like livers and kidney. So trying to be gung-ho about meds can risk organ damage, as when you kill Cpn you often kill the host cells they reside in.
This would be an experimental protocol, so if you go in that direction please report in!
On Wheldon/Stratton protocol for Cpn in CFSi/FMSi since December 2004.
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
Bleu, I am curious as to
Bleu,
I am curious as to how you knew or suspected a fungal problem and started the antifungal meds?