___________________________________________________________
On Wheldon protocol for MSi since April, 2006. doxyii 200 mgs daily, zithromax 250 mgs 3x/ week , Flagylii Pulses start end Sept., LDNii 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma
The Good, The Bad and The UGLY
Submitted by wiggy on Tue, 2008-03-11 10:32. I have not posted in a while but need to before I forget as things change. The good news is I am feeling good enough to have 2 parties here Sat. and Sun as my daughter turned 8. We had her friends party on Sat. and a family party on Sun. and I did well and went to PT the following Monday. So energy is great. PT going well, stronger, trunk better, back better, able to stand up straighter and balance much better.
The bad news is I have had a hard month after last pulse - legs hurt, feet still swollen and so stiff my husband has had to help me get out of bed every morning. Walking not good and I have an appointment with neuroi next week :(. I know this too will pass but I will now delay my next pulse until after Spring Break. My PT suggested uping baclofen to help my walking and so I will try this with neuros ok. My brace does help left foot is no longer flipping but still have problems clearing - and this foot is holding me up. My hip are stronger but still need some work.
The ugly is my PT is leaving the company and I can't follow her as she is now working with people "home bound" - stuck in home.
The place she works is very demanding so I understand she has to go. I will work with her until the 17th. She has left the company but now comes in to work with a few people. The climate has changed. I will discuss continuing with my neuro - I would like to stay in if I can until school is out just to continue to work on gait. Do I stay with this place or move on is what I do not know. I will wait to talk to my Dr.
I talked to my MD about referring patients to her and she isn't interested as she is not comfortable enough with protocol.
All for now.
»
- wiggy's blog
- Login or register to post comments
- Email this page
- Printer-friendly version
Wiggy, Sounds about
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
___________________________________________________________
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Hang in there Wiggy. I
Hang in there Wiggy. I like hearing the sound of more energy even with the leg reactions. You are clearly on the right track. Be well.
CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 500mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, INHi 150mg, Magnascent Iodine 20 drps/day, T4 & T3
___________________________________________________________
CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
Its a little like a
Its a little like a bereavement when a trusted health care professional moves out of ones circle. We know how long it took for you to find this person. I hope that you find another soon. Ella has always said that of all the professionals she has come across during her illness the PTs are the best, they seem to understand their patients much better than others.
The rest seems encouraging. The swollen feet are a bind, and it does seem to go on and on. I still have issues with swelling in the feet, but not as bad as it was before. The telling time will be in the summer for me. Its always worse then.
Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
___________________________________________________________
Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
Mack, Just yesterday, my PT
___________________________________________________________
On Wheldon protocol for MSi since April, 2006. doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma
Wiggy, I hope you get the
Wiggy, I hope you get the new PT you want. Don't sweat the visit with the doctor---things will go your way as they have done before now. I'm really happy for you that you have such improved energy these days. And Wiggy, to have a daughter like that is the best reflection of a loving mother. I wish I had one. Peace be with you.
Joyce~caregiver-advocate in Dallas for Steve J (SPMSi). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
___________________________________________________________
Joyce~caregiver-advocate in Dallas for Steve J (SPMSi). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
Joyce, Your reply makes me
___________________________________________________________
On Wheldon protocol for MSi since April, 2006. doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma
You are blessed to have
You are blessed to have great kid. I have two and they are fabulous healthy helpful and when i need it they help me to wak too. I am very lucky in that way. But I like you still want to walk! barbaraNAC and glutathione push for years all supplementsi in protocol)IV vitaminsi b1-12,C50gm,magDoxy200 10-/14/07, NAC 2400Doxy200mgAzithMWF10/29/07 roxy300,doxy200,rifampin300aziyh mwfMS flagyli 1day 500x2 11/23/20074th pulse 2.8.081500mg 8days
___________________________________________________________
NACi and glutathione push for years all supplementsi in protocol)IV vitaminsi b1-12,F10/29/07 roxy300,doxy200,rifampin300aziyh mwfMS flagyli 1day 500x2 11/23/20074th pulse 2.8.081500mg 8days 7/08 finished 10th pulse on 300 rifamp bid, doxybid 7/2008