Yes, the "F" word as in Finished my First week of Flagyli! (first pulse)I kinda went through the dos and donts of abxi. Like don't be too far from the bathroom when the rumbles in your tummy can signal the poopers and to DRINK,DRINK,DRINK alot of H20. I think I felt most thirsty in the beginning of the week but atleast my belly burning was tolerable. The taste of the flagyl is nasty but I figured that out quickly by eating a few bites of food and cutting a pill in 1/2 to take only 2 doses a day it worked.
I have learned to not count my chickens too early cause the new found legs can change in an instant! I figure it didn't take my body only a month to become disabled so it can't be all fixed in a month either. It's hard to believe that a disease that can put us in a wheelchair is so abundant in graces. I am now learning the grace of patience. until next pulse...
16yrs RRMSi-2yrs SPMS. Rifampin, Azithromycin, Copaxone, Avonex, Novantrone, Provigil, 5gm NAC, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5. Can't wait to lose brain fog & wear real girl shoes.
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RRMSi since 3/84; SPMS since 2/05. Rifampin, Azithromycin, Tindamax Flagyli Copaxone, Avonex, Novantrone, Provigil, 5gm NACi, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5. Can't wa
Fantastic! Come on,
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Kim- your title really
Kim- your title really gets attention! Good job! Can't top that. And fingers crossed on no post-pulse reactions!
CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 500mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Cytotec 100mg, Plaquenil 100mg, Magnascent Iodine 12 drps/day, T4 & T3
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CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3, 12mg Iodoral
As a watcher of people, I'm
As a watcher of people, I'm always fascinated by the different ways in which people deal with basically the same event. I think you come close to the top of the list of people with the right kind of attitude to doing this sometimes unpleasant CAPi. Good on you.... You will do well.
Michèle (UK) GFAi: Wheldon CAP 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.
Kim was anticipating that
Kim was anticipating that she was going to have a lot of energy today, Friday the first post-pulse day. Contrarily, Kim is having a harder morning that is reminisent of her first few days on Azithromycin.
We did ultimately settle her stomach with nori to get rid of the buring acid feeling, one sheet did the trick. Nevertheless, I can tel she is happy to have completed her first pulse. Ken
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In pursuit of ABX
Don't Allow What You Know To Get In The Way Of What Might Be
Yes,Ken I feel like crap
Yes,Ken I feel like crap today. My left leg and hand seem to be along for the ride today. I managed to get a fire going in the fire place although the logs were helped in by angels-you know who?! Better the fire place than my tummy. Thanks y'all.
16yrs RRMSi-2yrs SPMS. Rifampin, Azithromycin, Copaxone,
Avonex,Novantrone, Provigil, 5gm NACi, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5. Can't wait to lose brain fog & wear real girl shoes.___________________________________________________________
RRMSi since 3/84; SPMS since 2/05. Rifampin, Azithromycin, Tindamax
FlagyliCopaxone,Avonex,Novantrone, Provigil, 5gm NACi, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5. Can't waHey Kim & Ken, I love the
Hey Kim & Ken,
I love the catch line! I was thinking gas, lol
glad you got the first pulse out of the way, I just finished up my 6th. I feel like such a wimp my doses are so low!
Pulses are just plain wierd!!! They can slap you the head with headaches & sinus & TMJ issues, kick you in the ash & anywhere you may have had a boo boo in the past & drop you to your knees in a heap of sappy emotions as quick as you can say flagyli curse.
Then it can give you energy & just smarten things right up for a time which serves to show how well we can actually be; & tempt us into doing pulses for longer durations!
Good job on the lessons learned. Now if I could just practice patience on all aspects of my life, I would be doing some serious growing! Well, I keep trying.
Keep at it, there is no turning back now!!! Expect the unexpected, I can tell you have the heart for this.
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocyclopine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 1-3-08 5th pulse 1 X 375 mg 4day
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CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Sea Kelp,Iodorol, Inositol, Chitosan, L lysine Pulse#25 01-27-10 1gm Flagyli/day-5 days
Jim, What was Mack talking
Jim, What was Mack talking about? Hope I didn't I offend you. I will always be honest speaking and that can be hard for some. Still feeling icky but tomorrow is another chance to feel better.
16yrs RRMSi-2yrs SPMS. Rifampin, Azithromycin, Copaxone,
Avonex,Novantrone, Provigil, 5gm NACi, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5. Can't wait to lose brain fog & wear real girl shoes.___________________________________________________________
RRMSi since 3/84; SPMS since 2/05. Rifampin, Azithromycin, Tindamax
FlagyliCopaxone,Avonex,Novantrone, Provigil, 5gm NACi, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5. Can't wanot to worry Kim, I think
not to worry Kim, I think that was an inside joke MacK was referring to about taking your witty headline & running with it, lol
Word games have been known to happen here!
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 2-6-08 6th pulse 1 X 375 mg 5day
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CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Sea Kelp,Iodorol, Inositol, Chitosan, L lysine Pulse#25 01-27-10 1gm Flagyli/day-5 days
Hi Kim and
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On Wheldon protocol for MSi since April, 2006. doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma
Kim, You'll soon realize
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Egads, Mac! I was so tired
Egads, Mac! I was so tired at the time I didn't even realize you were prompting me to go with the "F" thing. Oh well. No worries Kim!
CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 500mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Cytotec 100mg, Plaquenil 100mg, Magnascent Iodine 12 drps/day, T4 & T3
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CAPi for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3, 12mg Iodoral
Hi Kim, welcome to the
Hi Kim, welcome to the world of self-flagylation, it's a strange world, where we seem to be trying to make ourselves better by making ourselves feel worse. I've just completed my third pulse and the effects are a bit different to those of the last two. It feels like some kind of perverse lucky dip - what effects this time?
Congratulations on joining our band of voyagers through this "F" experience. You do need patience as the unexpected seems inevitable. I wish you all the best.
Onward and upward
Robert - MS for 16yrs. CAPi since Jul 07, NACi 2400mg, Doxyi 200mg daily, Azith 250 mg MWF, Flagyl 3rd pulse.
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Robert - MSi for 16yrs. CAPi since Jul 07, NACi 2400mg, Doxyi 200mg daily, Azith 250 mg MWF, Flagyli 25th pulse.