Recovered only with supplements and diet

Hello all,

Since I have a full life now my entry will be brief.

This meesage is addressed to those who have seen no real/obvious improvements from taking antibioticsi for a long time. It is not meant to challenge Dr. Stratton's theory, as my case might not be representative for this community.

And now the entry:

Using antibiotics for months despite getting no immediate and clear relief has been my worst mistake.

As I repeatedly stated on cpnhelp, bacteria might not be the real culprit in my case. While I still can't point at the cause of my disease, it's probably fungal.

Taking only what's listed in my Personal Statement I became 99% normal in about 2 weeks. Then, right after Christmas, thinking I might be invaded by cryptic Chlamydia ready to whack me, I took tinii for 3 days. The symptoms returned with a vengeance. It took 10 days to undo the damage. The improvement with curcumin and garlic was so rapid you can hardly imagine.

Of all the things I'm currently taking, curcumin (in pill form and from mustard), garlic and onions are most likely the miracle cure. I couldn't feel any real improvements from the others.

Diet has also played an important role in my recovery (please check my Personal Information to learn more).

My mind is really fast now, depression out of the way, I have 3 girls to choose from and I might end up being offered the general manager chair by my company's owner.

If anyone has questions please make it clear in the first sentence of your reply by using the questions word. I have very little time to spend on cpnhelp now, so helping me filter questions from personal opinions will be greatly appreciated.

This is all for now.

Good luck to all of you.

Comments

Hello BH,How did you get

Hello BH,

How did you get this nick?

It seems that you have no choice but to try all brands that have curcumin (turmeric) among the ingredients. The one that really helped made me expectorate heavily on the first month or so. Less than an hour after eating a hefty amount of mustard I was starting to spit out thick mucus, situation that used to last for up to an hour. Then the reaction moved other parts of the body (the bowels, which have become silent lately, then the urinary tract, which is still a bit upset). My improvement is now so obvious that colleagues from work cannot believe their eyes. I would say I'm doing better than before realizing I was sick.

Please keep me posted on your progress, if you have the time.

Back to life now.

Tudor

On CAPi from June 2008 to October 9, 2008
Reactive Arthritis, polyuria, infertility, CFSi, CPNi (uncertain)
Now taking: Apple Vinegar - 5 spoons morning and evening, 2 spoons2 x 3 apples a day, Omega 3, Myco Plus, sangre de grado,

Tudor,Thanks for the

Tudor,

Thanks for the followup (I love table tennis by the way). It is possible that you have cured yourself (of whatever was yoru ailment) and won't need any supplementsi.

For us Americans mustard is a bit of an ambiguity. The most popular is the "Yellow" mustard for hot dogs. Would be the second and third from the left in the image below:

mustards

This is more of what I expect europeans see as mustard:

eu mustard

BH

Doxyi 100mgx2, Azithromycin 250mg MWF, Probiotics: PB8, JarrowDophilus. CFSi since 2003. Last 5+ years lots of the usual research (Depression, Adrenal Fatigue, HPA, Mercury, Candida, Thyroid, etc.). iherb.com $5 coupon code: HAW103

Hello BH,You're perfectly

Hello BH,

You're perfectly right about supplementsi not being equal. I'm in the midst of trying to do without garlic and onions due to garlic's odor and the stomach irritation caused by the onions.

Believe it or not, I'm still well, which means the mustard and (maybe) the curcumin supplementsi are the only ones that really helped. Except from some minor colon irritations from the mustard I experience no side effects.

I've been taking raw garlic and onions from Romania but I feel even better since discontinuing them, so I'm quite sure they haven't helped. My endocrine functions also seemed to have improved after dropping them.

As for the brand of mustard, it's almost the least expensive and it's made in Romania (called Univer). The ingredients on the label are the same for most brands, so there's no component I can really isolate.

Curcumin is also among the least expensive I have found (AmerMed - 120 caps X 525mg), which I have tested against the Now Foods brand. No real difference except in price.

Most of the other supplements I'm taking are from Now Foods. To be honest, I haven't felt like getting any real improvements from them, except maybe for Maca and Ginseng. 

I completely dropped vitamin C and NACi more than a week ago without any downside and plan to do the same with most of the supplements (except omega 3, maca and ginseng).

Things are still going uphill for me, so there's good reason to believe in a complete and lasting remission of the disease (mostly due to mustard, I would dare saying).

Sorry for the careless wording. My girlfriend is in shopping mood and keeps nagging me to take her to the mall Frown  I'll make up for this by playing some table tennis in the afternoon.

I keep my fingers crossed for all of you and will follow the postings with great interest.

Have a wonderful day.

Tudor

Tudor

On CAPi from June 2008 to October 9, 2008
Reactive Arthritis, polyuria, infertility, CFSi, CPNi (uncertain)
Now taking: Apple Vinegar - 5 spoons morning and evening, 2 spoons2 x 3 apples a day, Omega 3, Myco Plus, sangre de grado,

Tudor..Questions...,It's

Tudor..Questions...,

It's glad to hear such a story as yours. Congratulations, I hope your recovery is long lasting.

Thanks you for posting such a detailed list in your profile of your regime:

When you get a moment can you add the following for the rest of us:

Can you post the brands of mustard and supplementsi you are taking as I've found (I think you have to) that they all aren't created equal.

I'm assuming the garlic you take is raw. Any particular type of onion?

How much do you think the diet has to do with your recovery?

I wonder if all those supplementsi are needed. Have you tried to go without any to see if it made a difference?

 

Thanks

BH

Doxyi 100mgx2, Azithromycin 250mg MWF, Probiotics: PB8, JarrowDophilus. CFSi since 2003. Last 5+ years lots of the usual research (Depression, Adrenal Fatigue, HPA, Mercury, Candida, Thyroid, etc.). iherb.com $5 coupon code: HAW103

Attribution theory seems to

Attribution theory seems to be working for all of us. Attribution or not, I have a life now and feel reluctant to lose it just to put a theory to the test.

Norman's comments are very logical. All I know for sure is that my cpni load was small enough to dismiss a cpn infection. As for lab tests, forget about them in Romania. They are primitive at most.

Some physicians even suggested an infection by a pathogen unknown to the medical community yet. If they are right, what should I be looking for?

The tests done on my endocrine system were also primitive. You can't even do an ADH test here to rule out diabetes insipidus. I remember that my testosterone level was terribly low (below the low normal for women), while cortisol, the blood sugar level and the results for the pituitary gland came normal. This is all they did to me at the clinic of endocrinology.

The most intriguing part of all my "experiments" was that 2 months into a mynocyclin treatment I started to gain weight rapidly (almost 2 pounds a day, for a week). To me this looked like an excellent sign. Unfortunately, many of my symptoms had not disappeared, so I discontinued the treatment.

Something else that struck me recently was the difference in effect betweeb 2 different brands of mustard. Maybe it is not the turmeric after all, but some chemical added to the cheaper brand. Knorr didn't seem to help at all.

Since I continue feeling good I will go on with my experiment for a few months and if I won't achieve lasting remission I will consider getting back on myno.

Thanks for your support.

I keep thinking of those of you who can hardly walk due to MS. If there is a God, he clearly acts in the most weird and unfair way. But who am I to judge God?

Cheers.

Tudor

On CAPi from June 2008 to October 9, 2008
Reactive Arthritis, polyuria, infertility, CFSi, CPNi (uncertain)
Now taking: Apple Vinegar - 5 spoons morning and evening, 2 spoons2 x 3 apples a day, Omega 3, Myco Plus, sangre de grado,

Glad to hear you found

Glad to hear you found something that is working for you tudor.

 There was another person in here recently that had a natural diet/supplement protocall that he/she claims has healed him. Anybody have that bookmarked and can post a link to it? Figured out how to use bookmarks now. very nice.

 Thanks

Mark

CPNi off the charts, EBVi, Chronic fatigue 20+ yrs, , tinittus, Orthostatic intolerance, adrenal fatigue, excitotoxicty, porphyriai, anxiety, depression, doxyi, AMOX, and FLAGYLi since JAN 2009,  

Turning yellow was not a

Turning yellow was not a short term result it took many, many, many months.  Norman thanks for your clear post.   An Atribution, once it is made in one's mind is very hard to change, a wise man on this website shared that perspective with me, has its own theory base  Atribution Theory I believe it is called.  Knowing that once a person has estabished an atributution for some event even rational sense and logical presentations are simply not able to be heard.  Best of luck Tudor in whatever treatments you choose. 
  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

Thanks for your messages.

Thanks for your messages.

I'm in a big rush so I will only reply to the comment made by most of you (and which made me laugh).

I haven't turned yellow yet and there are no signs this would happen soon. Maybe the mustard I'm eating doesn't really have curcuma among the ingredients, after all.

Porphiria gets worsened by mustard, but I only felt it in the urine color, which turned dark yellow (sometimes close to red).

I am eating up to 6 teaspoons of mustard at one meal and having it mixed with chopped vegetables (carrots & cauliflower, for example) and tomato paste.

The evolution continues to be positive. Since I have only recently started this regime I hope I will achieve full remission in a few weeks (I still feel discreet tinges in my legs once in a while, but this is the only reminder of the disease).

My plan is to get off the garlic-onions-curcumin treatment in a few months (maybe 6, cause I want to make sure all the bugs are gone)

I will keep you informed.

Cheers.

PS I got the flu on Friday and yesterday I was completely healed. This hadn't happened to me in ages.

Tudor

On CAPi from June 2008 to October 9, 2008
Reactive Arthritis, polyuria, infertility, CFSi, CPNi (uncertain)
Now taking: Apple Vinegar - 5 spoons morning and evening, 2 spoons2 x 3 apples a day, Omega 3, Myco Plus, sangre de grado,

Tudor, I am also interested

Tudor, I am also interested in how you take the 3 tablespoons of mustard. Melanie

Mel W.  asthmai for 20 years, PCOSi, insulin resistant, hypothyroid, high cortisol9normal 2/09), low ferritin, low D3--34(2/09).  Recent PCRi-PCN not detected.  Dr. treating empirically.  Doxyi 200mg.  Azith 250mg MWF 11/10.  Flagyli pulse #3

I think I read somewhere

I think I read somewhere that mustard can cause/make porphyriai worse.

Tudor,hope you will continiue to feel good!

Best Wishes,Maria

Cpni since sep 2006. Autoimmune thyroid,hypofunction.levaxin,b12+folic acid">i.All classic cpn,porphyriai and toxinsymtoms.Not able to work.Selftreating cpninfection with AllicinMax(garlic), NACi, high vitamin D3. CAPi for over 3 years. Back to work and life

Best wishes Tudor,as others

Best wishes Tudor,

as others before have mentioned, I am a sceptic as well.  The CPni can be hiding anywhere in our bodies from any number of infectious journeys it has been on.  To have cleared it all is such a short time would not be in keeping with the science support here.

I do believe in miracles & you may just be the recipient of one very big one.  Praise God & keep him close.

peace

r

 

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

Tudor, Western Herbology,

Tudor, Western Herbology, Chinese Herbology and Ayervetic Herbology, Tibetian Herbology, Japanese Herbology, etc. (should I have left any off it is my error).  Are powerful fsystems of treatment and many choose them.  Herbs were the percursers to drugs.  Just look at digitalis for example and how that evolved.  Or ephedra so from my point of view and from some other practitioners who prescribe only herbal treatments for Lyme Disease and seem to be having some success, your claim that you have response to herbs is not remarkable.

To say that you are cured may be another thing in my humble opinion.

That you are having a respite in symptoms is wonderful and I also adhere to a mercola.com type foodplan (although I found it long before I found his internet information.)  I even have done a weekend long workshop in which he was co-presenter and have a signed copy of one of his books that was current at that time about 4 years ago.  Infact that form of insulin lowering blood sugar stablizing effect food treatment was one of my respites in my long journey over the past 35 years to feel whole and strong. 

One thing that I wonder about is what level of yellowing of your skin you might experience with mustard treatment?   I do really like mustard, have since childhood, and these herbs, well, have been used for past centuries, many centuries, as food preservatives so it is no doubt that they can effect bacteria. 

How are you managing to eat that much mustard is one question of just a practicle nature?

And I might share that my daughter, when eating a lot of rice and cooking for self took took adding too much by sprinkling curry powder (curcumin is an ingredient)  on top of her rice instead of putting in the water.  Low and behold after a time she began to turn a lovely shade of yellow!   A bit like the carrot juicers who go orange but another shade I have seen a few of those uniquely hued folks.  Thank goodness she/we  figured it out before she began to glow in the dark (joke) and by abstaining from it completely, eventually returned to normal skin tone.

She eats curry now again yes, but on occassion and not the spices in concentration. 

So do let us know how you are from time to time.   I will certainly watch for your blog updates if only to see if you turn yellow!

Best wishes in your search for health.  

For me CAPi has turned my tide of disablity but then I am at the 18 month mark in treatment.     Louise  

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

Tudor, I'm with Norman on

Tudor,

I'm with Norman on this one.  If you continue to improve, that's great but I'm a skeptic.  These illnesses are notorious for waxing and waning; one can confuse remission or immunei suppression for wellness and recovery and die off for worsening of illness.  

I still wish you the best but I've so often been misled by my own symptoms and what I thought was happening only to be surprised, both pleasantly and unpleasantly by what was lurking just around the corner.  Undecided

Too bad this has to be so complicated, you know?   Please keep us informed.  It will be interesting to see how you fare over say, the next year or so. 

NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 5day/1g/5 pulses, Valcyte
Supplementsi, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Sec Addisons

Don't believe everything you think!  

Reenie, just a brief

Reenie, just a brief comment before I go to work.

The improvements from garlic and/or curcumin/mustard have been preceeded by severs chills, short term pain and flu like symptoms. This might validate the die-off theory. No more chills now, my cold intolerance is gone and my hands and feet are starting to feel warm.

The positive evolution went exactly the same way (same symptom regression) twice in a row (before and after the tinii pulse), so I have good reasons to be optimistic.

Never before had my polyuria completely disappeared, which tells enough...

Another interesting thing is that my symptoms had not markedly waxed and waned. My good days had only been slightly better than the bad ones. 

I will definitely keep you informed, since it might be of great help to some site members to learn about potential alternatives cures.

Cheers.

Tudor

On CAPi from June 2008 to October 9, 2008
Reactive Arthritis, polyuria, infertility, CFSi, CPNi (uncertain)
Now taking: Apple Vinegar - 5 spoons morning and evening, 2 spoons2 x 3 apples a day, Omega 3, Myco Plus, sangre de grado,

Tutor, I am the antibiotic

Tutor, I am the antibiotic queen, but I have decided that antibioticsi are not the miracle cure either. Not that they aren't needed, but we just can't rest our whole case on them.

I was severely harmed by quinolones for Lyme and now cannot tell if my symptoms are from infection or nerve and tendon damage from toxic quinolones. Also, I think the fluoride in the quinolones may have further damaged my already autoimmune thyroid.

 My son has Lyme, took 2 months of Cefidinir, and now take 6 Garlicells every night. He is fine. He works in China and his business partners say they have never known anyone who rarely gets sick. When he gets a cold it lasts a couple of days, and goes away.

I hope you continue to do well.

Paula Carnes

 

Paula Carnes

Paula, you are not alone re

Paula, you are not alone re tendon damage from the drug.  That is a serious side effect & very real.  I think Jeanneroz had the same problem!

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

Tudor, in case you haven't

Tudor, in case you haven't noticed, almost all of us who have benefited from antibioticsi report a downturn after starting to take them: things always get worse before getting better. Your case is no different in that regard. The same is true of pulses (of metronidazolei or tinidazole): they hurt before they help. You may choose to attribute your improvements to whatever you're taking at the moment, but really, sorting out cause and effect is a much longer-term and more complicated problem. If you don't care to play, that's fine; enjoy your health while it lasts.

Norman,I have been on and

Norman,

I have been on and off abxi for a long time. 4 months on CAPi haven't brought me any significant relief. Polyuria and the irritations worsened and so did my mental status during the abxi treatment. My endocrine system was also profoundly affected by the treatment, shutting down almost completely.

To put it simply, I became more ill.

All symptoms are disappearing rapidly on the current regime. It's logical to assume that abx were creating a perfect environment for the pathogen that's been crippling me.

It's either a bacteria resistant to all I was taking or a fungus. Of this I no longer have any doubts. My IgGi test for Chlamydia came only slightly positive, so the chronic CpNi infection is kind of ruled out.

I've been putting the getting worse before improving theory to the test for a long enough time and it simply didn't work for me.

While on the new regime I got high fever (around 40 degrees centigrade) for the first time in years, which means my immunei system is also recovering. Polyuria went down to the point of not bothering me at all (in about a week), the pain is gone, etc.

Nothing will convince me to try antibiotics again and hopefully there will be no need for them.

Cheers.

Tudor

Tudor

On CAPi from June 2008 to October 9, 2008
Reactive Arthritis, polyuria, infertility, CFSi, CPNi (uncertain)
Now taking: Apple Vinegar - 5 spoons morning and evening, 2 spoons2 x 3 apples a day, Omega 3, Myco Plus, sangre de grado,

Four months actually isn't

Four months actually isn't that much: plenty of people here saw mainly worsening within that time. And turmeric has anti-inflammatory properties, so it might be helping to hide what is left of your infection. But I'm not going to try to persuade you to take anything, just to stop making wild claims: how on earth, for instance, would you know that your "endocrine system" was "shutting down almost completely"? Did you have lots and lots of lab tests, for thyroid hormones, adrenal hormones, and all the rest<? Or was that just your pseudoscientific way of saying that you felt drained and had no sex drive?

Your set of symptoms is different enough from most people's here that it's reasonable to suspect a different pathogen than Cpni, or at least a different co-infection; but you certainly haven't proven it.

Tudor- Glad to hear this is

Tudor- Glad to hear this is working for you. It's good to be focused on life rather than illness. May it continue.

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Thank you Jim for your nice

Thank you Jim for your nice words and for maintaining this site, which has been of great help to me. Without trying the CAPi I wouldn't have gotten closer to an answer to my dillema.

Thank you all and best of luck.

Tudor

On CAPi from June 2008 to October 9, 2008
Reactive Arthritis, polyuria, infertility, CFSi, CPNi (uncertain)
Now taking: Apple Vinegar - 5 spoons morning and evening, 2 spoons2 x 3 apples a day, Omega 3, Myco Plus, sangre de grado,