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The disappearing lesion

Submitted by katman on Tue, 2008-10-21 13:29.

Since the early seventies, I have been able to make my body go numb. The first times I fell because I didn't know what was coming. I have been able to do this at will for many years, but took care not to fall down. Fortunately, the feeling always returned.

As stubbornness is the nature of us on this site, I have only listened to Richard in the last six or so months when he admonished me not to do that! I can also dislocate my hip but he says not to do that either! (Takes all the fun out of life - no?) (No)

So - what IS the point - simply put: the ability is gone. I cannot do it anymore AT ALL. Not even a tingle and certainly no numbness. Yes, the quiet improvements continue - and the energy is very, very nearly back to my norm or 55 years. Keep at it - it pays.

Years later, one of my six MRIs picked up a lesion in my neck the only MRI to go down far enough, and caused many pieces of evidence to come together. One of those is, of course, that, at least in my opinion, PPMSi is a flimsy label seized upon by frantic neuros looking for answers to our slippery presentations. I bet that most if not all PPMS patients can find other symptoms of much older disease whan they get their minds back and get tuned in - as this site can do.

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Rica PPMSi EDSSii 6.7 at beginning - now 2. Began CAPii Sept, 2004 with Rifampin 150 mg 2xd, Doxyii 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagylii total 55 pulses LDNii Rifampin 8/08 again NC USA

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Rica, very glad you

Submitted by Maria on Tue, 2008-10-21 14:50.

Rica, very glad you continiue to see improvment!

Glad it pays!

Thanks for posting!

Best Wishes from Maria

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Cpni since sep 2006. Autoimmune thyroid,hypofunction.levaxin,b12+folic acidi.All classic cpn,porphyriai and toxinsymtoms.Not able to work.Selftreating cpninfection with AllicinMax(garlic), NACi, high vitamin D3. Also treating with LIFE system and shaktimat

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Rica           

Submitted by farandwide on Tue, 2008-10-21 16:08.

Rica           

I hesitate to ask, but is this the case of a magic lesion?  I mean, would it be possible that there's more then one of those floating around?  I think I may know of one or two others, at least, I hope they disappear Wink  lol

In all seriousness, I'm glad you've stuck around to demonstrate the efficacy of the CAPi.  Many thanks for everything you've done!

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all my best

John

RRMSi/EDSSi was 4.5, 5, now 6 on Wheldon Protocol (naci, doxycycline, azithromycin, metronidazolei) since 04/12/2006. Added Rifampin 2x150mg/daily 08/19/2007. Added INHi 300mg/daily 03/17/2008 stopped 05/08

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The ones in my head will

Submitted by katman on Tue, 2008-10-21 16:17.
The ones in my head will never be forgotten, though I may not know if they are magic, because I can think pretty clearly, enough to know I will never again volunteer for an MRI. But I can't feel the one in my neck at all. That pleases me greatly - to me it is clear proof that the shrinkage of the lesions in my last MRI was no illusion.

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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 55 pulses LDNi Rifampin 8/08 again NC USA

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I'm so glad to hear about

Submitted by Red on Tue, 2008-10-21 21:53.

I'm so glad to hear about your progress, Rica.   Congratulations!!!  

Seems we've had a rash of good or even great reports lately.   Keep them coming all!

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Treatment for Rosaceai

  • CAPi:  01/06 - 07/07
  • High-Dose Vit D3, NACi & FIRi Sauna Only:  07/07 - 11/08
  • Intermittent CAP, High-Dose Vit D3:  11/08 - Present

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Rica, I am done with MRI's

Submitted by wiggy on Wed, 2008-10-22 07:56.
Rica, I am done with MRI's too unless it comes down to convincing doctors that this protocol works. I recently met a women who roomed with my neuros sister in college. She had 10+ years of sickness, Chrons, surgeries, wheelchair.... She was treated with abxi for 7 years and now she is water skiing. Small world

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On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

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Wiggy, Statements like

Submitted by katman on Wed, 2008-10-22 08:21.
Wiggy, Statements like this only make me more amazed at the courage of those brave doctors who are putting their necks on the block and treating us "against traditional practice". It bothers me to the point of losing sleep. I am (I repeat) like those dolls who are laid back and the eyes fall shut. There is a rottenness at the core of specialists who refuse to believe that MSi and other neurological diseasesi can and be caused and are caused by a bug. It's hard to believe they could make it through med school if they're so dumb.

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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 55 pulses LDNi Rifampin 8/08 again NC USA

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We know the truth behind

Submitted by michael30 on Wed, 2008-12-31 10:50.

We know the truth behind it. The real problem is the fact we are dealing with "political disease". It is very clearly explained in "Under our skin" movie.  There is a great pharmaceutical lobby, and this what we are confronting them with is the potential  bancrupcy of many subsidiaries manufacturing medications designed to treat symptoms, not the cause!. I would not expect any serious attitude based on the understanding and support from any administration on this planet. There might be a one exception: Maybe CUBA could support us in this fight. 

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CFSi, Severe Peripheral neuropathy, Insomnia, Azitromycine/Clarithromycine, Doxycycline 2x100mg, Calcium Pyruvate 6000mg 5 days before pulse, Metronidazol 3x250mg, ACC 2 x 600 mg -  treatment duration: 7 months, Charcoal 1000 mg/day, Chlorella, Cholestyram

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Rica, this is great news...

Submitted by Michèle on Wed, 2008-12-31 11:12.
Rica, this is great news... I'm going to copy and paste it to Ella, she is really in a very down place at the moment and talking like she was when she was in hospital.   I know it is all drama and that in a couple of days she will see that things are not as bad as they seemed today.   But a message of hope and achievement like yours will give her a bit of perspective again.
Thanks you for sharing this and giving me some amunition.

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006

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I am very happy for you

Submitted by ruthless1 on Thu, 2009-01-01 04:45.

I am very happy for you Rica & so glad you aren't dislocating & numbing anymore!

Keep up the good work.  In a few days I will be 52 & really would just like to have the energy of a 52 yr old- whatever that is.  All things in good time though.  I plod along & am counting the sleeps to AZ.

weeeeeeeeeeeeee

Happy New Year

 

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli/day-3 days

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It is quite interesting

Submitted by Louise on Thu, 2009-01-01 11:07.
It is quite interesting when "old posts" get commented on and bring just the needed help to someone's situation.  I always check the date on posts, guess I need to keep myself oriented..... to time, date, place and the name of the current president, otherwise some provider some time will find me to be disoriented. So is disoriented just advanced brainfog I muse.   So much to muse.   Happy New Year, Thursday, January, 1, 2009, 11:07 AM Eastern Standard Time.    Louise

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Louise  CFSi,CPNi+/Bb+(Lyme) Cholestyramine 1-2 pks @ HS for Porphyriai +fattyEndotoxins HS PRN, Wheldon CAPi 6/07,all supps, Doxyi 200QD, Roxi 300BID, Tinidazole 500 BIDx20day Pulses, VitD3-10,000IU,Iodoral25mg,SAM-e100mgQD+B-vits, Pyruvate3.75Gm at 1PM

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Cuba, you are kidding

Submitted by ruthless1 on Fri, 2009-01-02 02:25.

Cuba, you are kidding right.

The only person there who has money is Fidel himself.  When the revolution began he told the people everyone would be equal, one class.....he just forgot to mention everyone would be dirt poor!

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli/day-3 days

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Of course I am kidding..

Submitted by michael30 on Fri, 2009-01-02 05:23.
Of course I am kidding..

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CFSi, Severe Peripheral neuropathy, Insomnia, Azitromycine/Clarithromycine, Doxycycline 2x100mg, Calcium Pyruvate 6000mg 5 days before pulse, Metronidazol 3x250mg, ACC 2 x 600 mg -  treatment duration: 7 months, Charcoal 1000 mg/day, Chlorella, Cholestyram

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