The bugs' long-overdue deaths

The title was suggested by a conversation between two of our most battle-hardened warriors, and I couldn't resist it. This has been one of the most eventful years of my life - busy, too. Beginning in January with surgery and moving through kidding season, then a very, very good show season, this last taking a temporary break after the best Nationals in years, then linear classification of our goats, now a break for the really bad August heat (this is AFTER the really bad July heat), then a resumption of show season next month, which wil begin my fifth year of MSi treatment.

The fact that I am "doing flagyli" and writing a blog says volumes, because usually I am too blurred to do any logical thinking. This is my 52nd pulse and has been mostly physical, in that it has impeded my gait and my speed, though not to the degree of the past; in other words, not the standard two years set-back I have claimed of late. Ergo - I am still getting better. The first couple of days "knocked my socks off", for two reasons, I think. First, I took a loading dose the first day of 1500 mg, which I have done the last three times; second, it has been at least two months since my last pulse. There has been hardly a minute - my time keeping up with the site has been limited to pil-taking time am and pm.

I am so sorry for the grief of Red and Mack, and yet I am cheering for those of us who are grimly staying up to the demands of this protocol. And I welcome the new members who are beginning an adventure that will very likely change their lives for the better, when nothing else could, or even save it.

So....things have settled a little here for a while and I hope to be back encouraging, chiding, and even flagylating long term.

<>A very interesting thing occurred at my latest refraction (eye-test). My ophthalmologist, who has watched over my iritis for eighteen years, done two lens replacements for steroid-induced cataracts, and repeatedly said I would probably need to stay on the pressure reducer Timoptic for the rest of my life said: stop using it. My pressure has stayed in the low normal for a couple of years - normal is in the teens and mine was once forty-seven in that eye - and now, after two months without glaucoma prevention, is still normal. Another small triumph for our scorekeepers. I still have fifteen prisms in my glasses but I can live with that. There are at least two of us whose double-vision has gone away - maybe I will be lucky that way some day. Meanwhile, I won't be sitting around waiting.

<>By the way, Michele, I have seen for months in my mind two things I want to thank you for: a long time ago, I saw but have never found again, a question about ice cream. The answer being that yes, goat milk ice cream is wonderful. We don't add cream and we eat it almost every day. Second, thank you for rescuing my blog from the "new site" and putting it in Jim's Temporary Site Changes, which I found yesterday. I appreciate it and all the wonderful work you have and everyone else has done to improve our unique site.

<>

Comments

Rica, Sorry to hear that

Rica, Sorry to hear that your cast iron stomach lining is going soft like mine.  I "tossed my cookies" this past week.  I absent mindedly swallowed my full days worth of Doxi and Roxi very shortly before eating supper.  Not a good move very suddenly I was dashing from the kitchen table. Sometimes I forget my own good instructions about always take it in the middle of a meal...... 

Congradulations on such a successful show season.  Louise

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

Yahoo 52!!!!!!!!!!!!!!!

Yahoo 52!!!!!!!!!!!!!!! Way to go. I hope I am in your shape at 68.

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tinii pulses,100 mg diflucan, 4.5 ldni; Wheldon protocol for MSi April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

Rica, 52 takes me breathe

Rica, 52 takes me breathe away! I'm only on 7 but want you to know how much YOU INSPIRE SO MANY! I hope to grow up and be just like you!  I never told you this before, but when I was losing hope along with my leg strength, Ken brought me print outs of all your blogs to inspire me.  Well, the rest isn't quite history YET but we are getting better! Keep the torch burning for us all!  Kim    

RRMSi since 3/84; SPMS since 2/05. Rifampin, Azithromycin, Tindamax Flagyli< Copaxone, Avonex, Novantrone, Provigil, 5gm NACi, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5.  Can't wa

Kim, those are nice things

Kim, those are nice things you say, and I appreciate them, but it is too much credit! We all have our separate roads out of hell, don't get to predict them, but can make the choice to start the walk or not. We are pulling for you! 

And don't even THINK about growing up! You might regret it!

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

dearest Rica, the Goat

dearest Rica, the Goat Lady...

I love your moxy woman!  I am reading a good book Captivating by John & Stasi Eldredge & I think of what a wonderful role model you are for woman here.

CPni, MSi, Iritis..Cancer..."you're simply the best, better than all the rest" so goes the song sang by Tina Turner.

As I restart pulse 13 today after a BUSY family weekend of visiting; I revisit the same gut nauseating symptoms as the last kick at this cat.  I am going to trooop out a few days, but have to give myself enough rest as a friend is getting married on Sunday & my daughter & I are shooting the wedding.

It has been a tough grind for me these last months since arriving back from AZ, so many crashes, fitness declining rapidly, so little energy.  Now I take my cane with me - my little Komperdell; in case I fall & can't get up.  The other day I fell off my desk Embarassed, don't ask...my leg gave out, thanks to the door...it broke my fall, but I got some nasty bruises.  I am just not as smart or as fit as I have been in the past..Tongue out.

Anyway, I have had a small reprieve from the nausea & I want to wish you MANY more years of kickin it up!

Blessings

r

 

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

Rica, how encouraging that

Rica, how encouraging that even areas in the eye are improving! Wow! Did you use antibiotic eye drops?

minocycline, azithromycine, metronidazolei 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitisi (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

Never abxi drops, but

Never abxi drops, but several times a day NSAIDSi, and steroids for all those years. Now I only occasionally use NSAID or just water. My iritis first presented around 1985.

But there is a new and VERY strange development that you of all of us must hear of: As of the last few weeks, I have become nauseated to the point of "sicking up my abxi" - twice! Why this should be after four years of taking them on an empty stomach, I don't know, but it os very real. Maybe all the more pressing areas have been addressed and the war is moving elsewhere. Now, thanks to you, I know how to get around this and do. It works.

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

No one celebrates high

No one celebrates high numbers like "52" as we do here for pulses! Yay! What makes your report so interesting to me, besides my pleasure in your strength and health, is that you can still feel impact on physical symptoms while you so clearly are not bothered much by cognitive ones. Says to me that it's those local nervous system sites of infection you are still going after, and getting them but good.

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Rica,It's always great to

Rica,

It's always great to hear your upbeat news.  Nice to know that you continue to cross paths with improvements even so many years down the pike.  I am inspired and I am filled with renewed conviction for this battle.

 

Sounds like another successful goating season so far.  Now it is time to pick up one of your exciting novels and kick back a bit before you wind up the season.  Wish I could be there.

 

52 pulses....wow!  :)

Wheldon Protocol for rrmsi since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGGi's for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qdi for Babesia.

Hello Rica, long time no

Hello Rica, long time no hear.  You have told me something very interesting that I can impart to someone over here ton do with ophthalmologists, so encouraging already you see!

By the way, it was last week that it was five years since FatFace wrote me off, so sometime next week it will be five years since I started CAPi.  Time flies while you are enjoying yourself but I reckon that in a couple of years we will be winging our way to see your goats...........Sarah

An Itinerary in Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

New format - double post!

New format - double post!

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Sarah, please keep us

Sarah, please keep us informed about the goings-on with this event. It was a thrill after almost 25 years of dealing with this that it got better - and stayed!

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Rica you are the trail

Rica you are the trail blazer for us that follow in your footsteps.  Whenever Ella has to cope with more debilitating symptoms I think of you and how long it has taken you to get to the point when you could take up your life again and all the further hurdles you have had to cope with even when the Cpni was on the run.   It's great to hear that your eyes are making progress after so many years, it makes me feel that maybe my blood pressure might improve if I give it long enough.

Its great to hear that you have recovered well from the surgery and that you have had such success with your lovely goaty girls and boys. 

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

MacKintosh, We missed you

MacKintosh,

We missed you so much at the Nationals! When you are 68, have MSi and cancer, it would be kinda silly to sit and wait for anything, but I appreciate your taking notice.

One who did come was a very old family friend, nearly 80, whose most vivid memory of me is when I was 2 1/2, hanging on to the stair bannister, screaming "I WON'T GO TO BED!" I guess it started early.

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Rica, You'll see me before

Rica, You'll see me before year's end. The car is STILL not fully repaired, but I learned a rental can be had for as little as $15/day, so I'll get there, by land or maybe air.

Your friend has you pegged, to a 't'. But I'm sure Richard is used to it by now! Wink

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Rica, I was wondering about

Rica, I was wondering about you this morning---thanks for checking in with us.  It doesn't sound like you will have a very long break, but that probably won't make a dent in your style.

Steve and I pass two herds of goats on the way to and from work.  One herd is mixed with a few longhorns.  Every time I see them together, I think "only in Texas," and I know I should send you a photo sometime (in case you ever get homesick).

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

Rica, Anyone who knows

Rica, Anyone who knows ANYthing about you knows for sure that you'll not be sitting around waiting for something to happen. Your activity level would exhaust most normal human beings and even a couple of superhero types.

 

It's good to know you're still making improvements, years into treatment.  You singlehandedly give hope to SO many people here!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi