Sit down , or hold on to something!!! Ken and I have an appointment at Vanderbilt on Dec 21ST!!!!! We are making our travel plans and rearranging our holiday plans to anything short and sweet. I never thought a "Charlie brown" Christmas tree could look so bright!!!!
Whew! I've gone from down on the kitchen floor, sitting in peed pants and the unknown to complete euphoric promise in 2 weeks time!! Okay guys, Lets get this party started......
By the way, everyones cookies will be late this year 
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RRMSii since 3/84; SPMS since 2/05. Rifampin, Azithromycin, Tindamax Flagylii Copaxone, Avonex, Novantrone, Provigil, 5gm NACi, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5. Can't wa
Kim, Ken, Not to burst your
Kim, Ken, Not to burst your bubble
, but this will not be the best Christmas ever; NEXT one, and the one after that, and the one after that...THOSE, each and every one of them, will be better and better, for both of you! 
But seriously, this is truly a sea-change from a few days ago and I could not be more thrilled at the news!
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
We could have a
Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 48 pulses NC USA
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3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amoxicillini 1000, Doxyi 200, MWF Azith 250, flagyli 1000. Caffeine pills with AM abxi Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1
What great news. And
What great news. And even if Christmas is overshadowed by the antibioticsi, it will be a memorable one. And a good reference date for future comparison.
Michele (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.
Congratulations and let us
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On Wheldon protocol for MSi since April, 2006. doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma
Kim, Joyous news! Good
Kim, Joyous news! Good things come to those who look for them, knock on doors, make phone calls, write letters, and ask for them. You may have better Christmases in the future, but you can't beat this one for HOPE. Bless you both,
Joyce~caregiver-advocate in Dallas for Steve J (SPMSi). CAPi since August 06, antivirals, heavy metals chelation, LDNi, antifungals, Lunesta, GF/CF & alkalizing diet, Lauricidin, oral IgGi/lactoferrin/IGF-1 booster, astaxanthin, gamma oryzanol, TD glutathione gel.
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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
Kim After all the effort
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Hi Kim, Congrats! Those
Hi Kim,
Congrats! Those docs at Vanderbilt are some of Santa's most talented elves. Please let us know how the visit goes. We're all pulling for you...
On Combined Antibiotic Protocol for Cpni in Rosaceai 01/06 - 07/07, On Vit D3 + NACi since 07/07 and daily FIRi Sauna since 08/07
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Treatment for Rosaceai
Kim, that is such wonderful
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Kim, I am soooo happy for
Kim, I am soooo happy for you & Ken.
The beginning, a means to a better ending! You must have caught them with a cancellation, it is a miracle indeed.
I wish you God speed on your trip. Make a list for the doc, check it twice, or 3 or 4 times, lol
I don't want to toss my cookies! I hate that, lol GACK!
Merry Christmas, Peace on Earth & good will to all mankind
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 12-3-07 4th pulse 1 X 375 mg 3day
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CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Sea Kelp,Iodorol, Inositol, Chitosan, L lysine Pulse#25 01-27-10 1gm Flagyli/day-5 days
I agree, Kim, starting CAPi
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--------------- "Chance favors the prepared mind." --Louis Pasteur Husband treating MSi with CAPi
I now find I get more
I now find I get more excited about each new shipment of azithromycin from overseas than I ever did over a flashlight or pair of socks.
CAPi for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zith (3 x week). Second pulse metronidazolei 12/2007.
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CAPi for M.S. 8/2007 - 3/2009. Twentieth pulse metronidazolei + INHi completed 3/12/2009. Intermittent treatment thereafter until 8/7/2009.
Does Kris Kringle deliver
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
lmao HD, ur very
lmao HD,
ur very funny!
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 12-3-07 4th pulse 1 X 375 mg 3day
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CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Sea Kelp,Iodorol, Inositol, Chitosan, L lysine Pulse#25 01-27-10 1gm Flagyli/day-5 days
Lori, I felt so bad that
Lori,
I felt so bad that you waited 2 months for an appointment at Vanderbilt and I flew in and must have taken a cancellation or something.either way we need to get in there NOW!!!! I know this will be our life altering challenge and we are ready! We need to keep track of our triumphs and disapointments so lets do this together!
Best of luck!
16 yrs RRMSi - 2yrs SPMS. Copaxone,
Avonex, Novantrone, Provigil, 5 gm NACi, 5 gm VitC, 5000 IU VitD3, 2295 mg Curcumin, and other supplementsi. EDSS 5.5 good days, 6.5 bad days. Can't wait to lose brain fog and wear girl shoes.___________________________________________________________
RRMSi since 3/84; SPMS since 2/05. Rifampin, Azithromycin, Tindamax
FlagyliCopaxone,Avonex,Novantrone, Provigil, 5gm NACi, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5. Can't waKatman, What kind of
Katman, What kind of cookies are you talking about? You and I seem to be on the same page with our fight hard and remember to be able to laugh at yourself attitude! Ken and I know that this may be only the first step; but its atleast in the right direction this time!!!! Thank you so much for just being you!!!
16 yrs RRMSi - 2yrs SPMS. Copaxone,
Avonex, Novantrone, Provigil, 5 gm NACi, 5 gm VitC, 5000 IU VitD3, 2295 mg Curcumin, and other supplementsi. EDSS 5.5 good days, 6.5 bad days. Can't wait to lose brain fog and wear girl shoes.___________________________________________________________
RRMSi since 3/84; SPMS since 2/05. Rifampin, Azithromycin, Tindamax
FlagyliCopaxone,Avonex,Novantrone, Provigil, 5gm NACi, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5. Can't waMacK You hit the nail on
MacK
You hit the nail on the head when you said this will only be the start of our best christmas ever! Ken always says that if you continue to do what your already doing then you will continue to get what you have already got. This is definatly one of those times. Have a very Merry Christmas as we will be heading to "the appointment"!
16 yrs RRMSi - 2yrs SPMS. Copaxone,
Avonex, Novantrone, Provigil, 5 gm NACi, 5 gm VitC, 5000 IU VitD3, 2295 mg Curcumin, and other supplementsi. EDSS 5.5 good days, 6.5 bad days. Can't wait to lose brain fog and wear girl shoes.___________________________________________________________
RRMSi since 3/84; SPMS since 2/05. Rifampin, Azithromycin, Tindamax
FlagyliCopaxone,Avonex,Novantrone, Provigil, 5gm NACi, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5. Can't waKim Don't feel bad. I'm
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