I am scheduled for a pulse this Friday. No way can I do it along with cooking Thanksgiving dinner. I have decided to postpone it until the Sunday after. What I am noticing is the pulses are hitting faster and deeper. It hit my upper back this last time causing muscle spasms that made it difficult to breath for 11 days. Muscle weakness and fastulations which are new hit too. I also had some fibro trigger points ache soooo I quess I have a touch of fibro. I don't seem to have the 3 day grace period as before. It flattens me on the second. I have had more good days this month even some downright I feel normal hours. It gives me the courage to slam myself again.
Happy Thanksgiving to all who celebrate.
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zero negative sjogren's diagnosed 2/03, 200mg minocin daily, biaxin,plaquinel mwf, flagylii every 3 weeks.
 Lee, there is no reason
Lee, there is no reason at all that you shouldn't postpone your pulse. When I began to emerge from the fog, I realized it was my legs who were running the show. As I learned to listen, the pattern stabilized and developed a rhythm of its own: 5 days of flagyli, at least 5 days of mirror image recovery and just before my legs began their deafening clamor, a few hours at first and then a few incredible days of indescribable painfree near normalcy. But, like you, I was flattened earlier and more severely each time. Enjoy your postponement - you have earned it! Have a great thanksgiving!
Rica EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyl total 34 pulses MSi
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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 55 pulses LDNi Rifampin 8/08 again NC USA
In the same way as Katman
In the same way as Katman describes, 5 days of flagyli and now nearly a week of pretty pain free days before the gut pain (in my case) returns, but a more 'robust' reaction as David likes to say, to the flagyl. I have found also that if the tummy pain returns too strongly, too soon, that a low dose of flagyl helps until I am able to start the next pulse.
Michele: on Wheldon protocol since 1st May 2006 for a variety of long standing ailments, also spokesperson for Ella started Wheldon protocol 17th March 2006 for RRMSi
Sussex, UK
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006