Cpnhelp.org - Chlamydia Pneumoniae Treatment

Don't bother, if you go by m y experience.  I've had them about every five or six years since I was a teenager, just because I'm a klutz.  (Okay, not really, but I've had reason to have shots when bitten by a horse, when I stepped on rusty nails, when I chopped off part of my finger, etc.)  It sure didn't stave off MSi in MY case!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I was also vaccinated regularly and it did not help me with cpni..

Prague, The Czech Republic, On Wheldon protocol for Cpn and Mycoplasma since 02/18/2006.

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Prague, The Czech Republic, On Wheldon protocol since 02/18/2006, CFSi and many problems 30 years (cpni and mycoplasma), 3rd year on protocol- doxyi, azi, tinii pulses

I haven´t been vaccinated for 17 years probably! Usual period between 2 revaccination is 10 years in the Czech republic. I have lyme desease and Cpni.

I suspect that the research is faulty since they could not explain the causation.  This is like the research recently published that fathers are more likely to pass MSi to their children.  There is no explanation for this either.  And tonight, I watched parts of a popular U.S. tv show where they characterized MS as a terminal disease.  Ha.

Steve - Which tv show?

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

MacK,  It's possible it was a re-run of an episode of "Cold Case Files" or "Without a Trace" that I saw a few months ago.  The culprit of the episode was characterized as being not far from death from MSi as he had begun to have tremors.  They actually made out like tremors were a death nell where MS was concerned.  I remembered how much it had angered me when I watched it.  The irresponsibility of these mis-portrayals in the media is appalling.  They must not care that MSers or their loved ones might be watching.  The sad thing is that the less informed on the disease might believe they are about to "shuffle off this mortal coil"  and react suicidally or otherwise radically. I also remember a made-for-TV movie from several years back with Lindsay Wagner that was equally ignorant. 

About the tetanus shots...Spotty has had his share of them too.

Cypriane~~~MS caregiver and care advocate - Dallas

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

I also have had regular tetanus shots. Most nurses do keep up as we are on the front lines of medicine and nurses have the same rate of MSi diagnosis as others, though nurse anesthetists have a much higher incident. I think the research is flawed. It is like a lot of epidemiological stuff-pretty meaningless really . Such statistics are useful in supporting a theory but not at all good at finding one. ie Faroe islanders did not get MS before invasion then after did get it readily. THis sugest soemthing was brought to the island with the invaders. The embry crowd says it was diet trying to support their pet theory with the data. An equally or possibly even better fit is that it was an infectious agent-viral or bacterial. But no matter what it does not tell anyone anything about what causes MS it merely provides a strating point for looking
marie
On CAPi since Sept '05 for MS, RAi, Asthmai, sciatica. EDSSi at start 5.5.
"Color out side the lines!"

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On CAPi since Sept '05 for MSi, RAi, Asthmai, sciatica. EDSSi at start 5.5.(early cane) Now 6 (cane full time) Currently on: Doxyi 200, Azith 3x week, Tinii cont. over summer '07, back to pulses of flagyli winter '08 all supplementsi. "Color out side the lines

Probably coincidentally, but maybe not, I had my big crash into chronic disease a month after a tetanus booster. I wouldn't be surprised if there are mycoplasma and things that they can't filter out in those injections. Or maybe they send the immunei system over the edge if it's already stressed. So although I had my children vaccinated and all, I'm really not too crazy about immunizations these days.

- Kate 

Yes, I do not know about tetanus injection contamination, I think nobody will have info. But I am certainly not going any longer to accept injections from my immunology, that are leococytes from donnors due to my own low level. They test donnors for syphylis, hepatis..but they do not test them for any intracellulari organism, which is quite alarming for me.

Prague, The Czech Republic, On Wheldon protocol for Cpni and Mycoplasma since 02/18/2006.

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Prague, The Czech Republic, On Wheldon protocol since 02/18/2006, CFSi and many problems 30 years (cpni and mycoplasma), 3rd year on protocol- doxyi, azi, tinii pulses

I do not have MSi, but the tetanus part of the post title caught my eye! When I was a little girl, I had a run-in with a sheep pitchfork. (Literally, I ran into the pitchfork that was on a barn floor!) Off I went to our Pediatrician, who gave me a Tetanus shot...Later that day, I became very ill. My family never made the association between the Tetanus shot & my feeling ill. (It was Easter & there was a large family dinner/ get-together at my Grandmother's house. I remember feeling very sick.)

Years later, when it was time to go off to college, I received a Tetanus booster. Ugh! This time, I became extrememly ill...Fever, swelling/pain at injection site, etc. We finally made the connection between the Tetanus shot & me reacting weirdly to it! I haven't had a booster since, nor will I unless it's absolutely needed!

Has anyone else ever heard of having such a sensitivity to a Tetanus vaccination? I wonder what that's all about...

Hugs,

Annie

Primary Dx:FM, On CAPi since1/06, On Dr.Powell's protocol, Currently taking: NACi/Azithromycin/Tinii/Oodles of Supps, Northern CA.

Don't overlook the possibility of problems caused by thimerosal, a mercury-based preservative that has been used in immunizations for a long time.  Fortunately, this is no longer used in immunizations for infants.  Unfortunately, the rest of us are still getting it.  Cypriane

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

it was Cold Case/

Annie, I dont know alot about this - or anything about the tetanus jab in particular - but there is a certain rate of adverse reactions with many vaccinations. I dont know if your particular symptoms such as fever are commonly part of that syndrome.

Since most vaccinations stimulate the immunei system to produce antibodies, this also stimulates a cytokinei reaction- ie flu-like symptoms. They used to call this a "mild case" of the thing which you are being vaccinated for, but for some of us it was not mild, probably because of already stimulated immune systems by Cpni or genetic causes. I remember getting quite sick after the traditional flu shots and also from tetanus boosters.

Combined Antibiotic Protocol for Chlamydia pneumonia in Chronic Fatigue Syndromei & Fibromyalgiai- Currently: 150mg INHi, Doxycycline/Zithromycin, Tinidazole pulses. Northern Ohio, USA

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

That makes sense, Jim...Except now I'm wondering about if I had already begun my battle with Cpni way back in my childhood or if I'm simply genetically prediposed to have the cytokinei reaction? It might explain why I react so strongly to treatment.

Interestingly, I do not recall having ANY reactions to flu shots or the HepB series of immunizations as an adult! Although...I did not begin exhibiting major Fibro symptoms until shortly after the HepB series. At the time, I was working in Labor & Delivery at a hospital & my exposure to blood was HUGE, so that's why we who worked there received the HepB shots. I've read on another message board that some believe there is a connection between the HepB shots & the onset of FM/ CFSi.

Of course, the Thimerosal is a big controversy. Lots of theories out there re: kids developing Autism after receiving their childhood vaccinations containing this preservative. My eldest son has Asperger's...a neurodevelopmental disorder on the Autistic Spectrum. Maybe he & I both have a genetic makeup that has predisposed us to these conditions & the vaccinations were a contributing factor? Add Cpn to the picture & it might explain why I'm so symptomatic!

SO MUCH to think about! Gosh, I hope "they" figure out all these mysteries some day!

Hugs,

Annie 

Primary Dx:FM, On CAPi since1/06, On Dr.Powell's protocol, Currently taking: NACi/Azithromycin/Tinii/Oodles of Supps, Northern CA.

I didnt realise that this there was already a thread on this topic. So im going to propose in clear english what is actually on my mind. I dont want to stir up paranoia but I need some place to discus this because although i know i have cpni ofcourse,  Im a little horrified by the way the metroi is localising the inflamation to one paticular area in my face.

What if cpn infection requires immunei suppression and that immune supression is actually caused by low grade localized  or relaspsing hidden tetanus infectionsi?

My issue is this... what happens to people who get exposed to tetanus with only partial immunity.... wouldnt they then develop a chronic course of tetanus ?

Also, just wanted to mention that people have still gotten tetanus even after having full a full and up to date vaccination series, so immunity status seems that its not guaranteed.

Also doesnt tetanus complications include pneumoniae?

 

 

 

 

 

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CPNi pcri and antibody positive , treating MSi, CFSi, TMJ, trigeminal neuralgia, IBS neutropenia, pus found in facial bone, Doxy 100x2, zithro 250x1 alternate days. Metroi pulses each month.

Clammed, Maybe you could review your post and edit it where you mean tetanus and where you mean tetanus vaccine? One is not the other and it's hard to follow your questions. My MSi neuroi (the excellent 'big-name' guy, not the young arrogant twit) advised against tetanus shots. He said, of course if you step on a rusty nail, then better to do the shot than not, but not to just go have a tetanus booster because it was on somebody's schedule to do so. He felt it could just aggravate the MS. Until I was diagnosed, I'd had regular tetanus shots about every five years, due to injuries at work, and I still got MS. I don't know if tetanus has anything to do with your localized inflammationi due to a flagyli pulse, but if it doesn't, I'm not clear on why you're horrified. When flagyl goes in for the kill, it does seem to hit one spot or another (I think Rica had very specific body locations from one pulse to another?) more directly. Maybe there's a heavier concentration of cpni in one spot, maybe the flagyl just penetrated better in that one spot this time around, or maybe flagyl concentration just hit the tipping point of effectiveness in that spot. Rather than being horrified, I'd be gratified to know for sure that flagyl is doing its job in that location and that you can look forward to improvement there.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Clammed, In my experience metroi will go first to the most accessible most intense site of infection, I don't think tetanus comes into it at all.   As Cpni is initially a respiratory diseasei it makes sense that your face is one of the most likely places for you to have a dense Cpn population.   Certainly the case for me.   If the site is too painful its a cue to back off on the treatment.   Take a smaller dose, space you pulses out.

Mac is right the second part of your post is difficult to follow and I'm not quite sure what you are asking.   Also can you add a signature line so we know what you are taking.   To do that you go to your profile by clicking on your user name anywhere you can see it and click on the edit tab, at the bottom of the page you will see a window in which you can write you signature.   You may find that there is a limit to how many words you can write, some people seem to.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metro pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

I was wondering why i have such localized but actute infection, when im on abxi. It makes no sense, everything goes away except one localised spot?

 I guess i was wondering if such acute localised infection could be tetanus and then questioning if tetanus could be implicated in msi. But I dont know or care anymore, because I cant stand suffering like this. I posted in my blog on my new findings on the localisation aspect anyway. May be interesting to those with facial pain. Unfortunatly if this is the case, Im up the creek because I dont have enough dental coverage and canadian ENT drs are all cowards so ya enough is enough.

 

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CPNi pcri and antibody positive , treating MSi, CFSi, TMJ, trigeminal neuralgia, IBS neutropenia, pus found in facial bone, Doxy 100x2, zithro 250x1 alternate days. Metroi pulses each month.

It's got nothing to do with dental coverage and everything to do with realizing the treatment will, of course, address the infection where the infection IS. If it's in your jaw, you'll feel activity there as the abxi does its job and kills the cpni infection. If it's in your joints, you'll feel it there. I know you're feeling miserable, so no amount of logic is going to bring you out of it. First, deal with the die-off and take loads of antioxidantsi, water, charcoal, whatever will help you sop up the toxins you're living with. Then we'll revisit the rationale for what you're going through. Feeling scared and miserable is not the time to do anything but take care of yourself. The rest can wait til you're over this bump in the road.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi