Testings?

Hii,

I was so surpirsed to find this blog, so helpful.  Thank you every one!

I live in Florida, I have no insurance and have suffered enough this thing not knowing exactly what was it.  A especialist  said it might be a virus affecting my thyroid and the problem will go away by itself; yeah, it's been around two years now... so, how does the testing of the CPNi is made?

I just had a test another doctor ordered, but it only looked for staphylococcus aureus, so the result was negative.  This Dr. doubted about me having a sinus, but my sputum is green and I'm ok thanks to I wash with hot water and salt... I heard there is a testing for the sputum?

 Yes, I would contact a good Doctor who dare to take me in!

 

Thank you all.

 

Maria P. J. 

 

 

 

Comments

Maria, Tests for Cpni are

Maria, Tests for Cpni are notoriously unreliable, our most reliable information comes from the reactions we get from the various substances we take.

You could start with NACi, if you have read the Getting Started module you will know about it.   It is harmless in itself, you don't need a prescription for it and if you do start to sneeze and your nose runs a little more than usual you will have a pretty good idea that your problem is Cpn. 

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Thanks a lot for your

Thanks a lot for your time.  Yes, I will start the NACi and I want to try if someone else starts it too - like my husband- to see if the reactions are the same or different - funny ah? - like testing the NAC too!

But I have seen that there are patients here who had so many tests and I just copied the codes of many that this one patient had - "Timaka"... incredible; hope they work because if they're unreliable what for you would spend all that money and time? 

I do know now that I have a fungi because using the silver sinus spray has helped me recover my life!!!  incredible!!! even the swelling of the hands and body is gone today!!!!! I want to share this to see if others might get that help like me!!!!

I'm copying here the codes Timaka gave us, in case others might want to have them and didn't read them:

40485 EBNA Antibody; 40445 EBVii Antibody Panel; 24600 CMV IgGii antibody; 41381 Parvovirus B19 IgG; 41025 VZV Total and IgM antibody panel; 40530 HHV-6 Antibody IgG; 43660 HHV-6 Quantitative PCRii; 40525 HSVii 1/2 IgG Elisa; 40524 HSV 1/2 Antibody ACIF; 43220 HSV Quantitative PCR; 4098 Fungal Panel 3; 23000 Chlamydia and Chlamydophila Antibody Panel 3; 40330 Coxsackie A Antibodies; 40335 Coxsackie B Antibodies; 40435 Echovirus Antibodies..

WOWWWWWW!  I'll star the NAC better!

Thanks

Maria 

 

 

God bless you all.

MariaPatri - living in a rollercoaster! (In Orlando, Fl).

Thyroiditis, sinus infection, heart, muscles and joints. 

I found my open minded dr

I found my open minded dr in Omaha, NE for the thyroid-info.com list.  He tested me for Cpni and came out positive.  I am going make an appointment with him for the protocol treatment.

A good doc is essential...I know!!!  I've had docs basically tell me it was in my head.  

I hope this info helps!!!

 

Gisela

CFSi and IBSi/Candidiasis since 2000, 100mg once daily doxyi since 8/21/08, 250mg azithro MWF since 10/3/08, flagyli pulses, vit D3

Do you know a Doctor in

Do you know a Doctor in Orlando or central Florida that might order some testings for me?  I am self paid... and in high need of help!!!!!! This nightmare has lasted almost two years now... comes from a sinus that generates thyroiditis that turns into 200 more symptoms; plus swelling, plus pain...

Thank you!

Mariap. 

God bless you all.

MariaPatri - living in a rollercoaster! (In Orlando, Fl).

Thyroiditis, sinus infection, heart, muscles and joints. 

THANK YOU lOUISE FOR YOUR

THANK YOU lOUISE FOR YOUR TIME AND ATTENTION!

yES, THE WEBSITE IS REALLY INCREDIBLE!

Not only for the help it provides and confort, but knowing there are humans giving to others without expecting anything is the most noble purpose!

I hope I can learn and I can give something in exchange too.  I think I can help by translating some information to Spanish to help others who cannot understand this very valuable information - lets see if it is approved!

I still cannot find a Doctor near by that  might at least order the lab tests and maybe further on some treatment... is someone out there? ... orlando, Central Florida?

 

Thankssss

MariaP. 

 

God bless you all.

MariaPatri - living in a rollercoaster! (In Orlando, Fl).

Thyroiditis, sinus infection, heart, muscles and joints. 

Try the drs list on  

Try the drs list on   http://www.fmsi-help.com/  and also these docs are from thyroid-info.com...they tend to be very open minded otherwise they wouldn't be on the top docs list.

 

Orlando

Dr. William Hall, Endocrinologist, Orlando, 407-894-3241. "He believes that optimum TSH level is between 1-2, which has made all the difference for me."

Orlando

Dr. Rita Rahbany Endocrinology & Diabetes 1200 Hillcrest St. Suite 200 Orlando, FL 32803 407 896 9863 / Phone: 407-894-3241, . A reader writes: "This doctor listens to you. When I asked her to put my on Armour she had no hesitations. She was very interested in why I wanted off Synthroid. She is very caring and seems to understand the conditions associated with hypothyroid. I highly recommend Dr. Rahbany." (Added 2/03)

A reader writes:
"I have been treated for hypothyroidism for over 10 years and Dr. Rahbany has been the most concerned and most thorough of the many doctors I've seen. Although other doctors said I was on the right doses, I felt horrible. Dr. Rahbany has been working with me for the last 7 months to get my thyroid regulated. She believes in the 1-2 range and I'm feeling better now than have in years. It's still not regulated completely, but she is staying on top of it and is doing her best to make sure I'm feeling the best I can." (Added: Dec. 04)

Orlando

Dr. Julie Bauer, Endocrinologist, 1603 S. Hiawassee Rd. Suite 105, FL 32835, 407.293.2150, orlandoendo.com. A reader writes: "Dr. Julie Bauer diagnosed me with Graves disease while I was breastfeeding my 8-month-old son. She was so considerate of my choice to continue breast-feeding. My son has food allergies and continued breast-feeding was a high priority for our family. Dr. Bauer respected our choice and worked with me as long as it was medically safe for me to breast-feed. She returns phone calls herself with her consistent caring manner. Dr. Bauer is as concerned with my symptoms and my levels." (Added 6/05)

Another fan:
"I am hypo thyroid and I have PCOSi. She is so wonderful and never cuts me off when i am talking. I don't know what I would do without her. My husband and I found out recently that we are expecting our first baby. All it took was getting the PCOS under control according to Dr Bauer. Those male endo's really don't get it."(August 2007)

Orlando

Thomas Shellenberger, Surgeon, MD Anderson Cancer Center-Orlando, Orlando, FL. A reader writes: "Dr. Shellenberger came to MD Anderson-Orlando from MD Anderson-Houston in the summer of 2006. He is highly knowledgeable in thyroid cancer and recurrent thyroid cancer. Top notch surgeon, absolutely the best thing to happen for thyroid cancer patients in the central Florida area. He reviewed my case and planned for a total thyroidectomy and bilateral lymph node-ectomy to remove my unusually quickly spreading Papillary thyroid cancer. My surgery was expected to take 6 hours but due to the fast spread, Dr. Shellenberger ended up spending 15 hours in surgery removing almost 50 lymphnodes bilaterally in my neck as well as my entire thyroid while keeping in tact my vocal chords and all shoulder and neck muscles. Within 2 hours of waking I was talking and within a few days my voice was back to normal. He continues to closely monitor my treatment and progress along side my endocrinologist. I cannot say enough about Dr. Shellenberger. Even after my surgery ended at 1:00 a.m. he was in to see me in recovery at 8:00 a.m. He is very dedicated to his patients and genuinely cares about his patients." (Added Dec. 2006)

Orlando

Andrew Martin, Endocrinologist, Florida Hospital Diabetes Center, 2520 N. Orange Ave. Ste. 102, Orlando, FL 32804, 407-303-2801, www.floridahospital.org

"I have been going to Dr. Martin for about 8 years. He has worked with me to find the best treatment for me as an individual. He has been willing to try Cytomel, and I am now on Armor thyroid. He is very humble, and listens to me and treats me with respect. I recommend him highly." (May 2008)

 

CFSi and IBSi/Candidiasis since 2000, 100mg once daily doxyi since 8/21/08, 250mg azithro MWF since 10/3/08, flagyli pulses, vit D3

God bless your generous

God bless your generous heart getting that awesome list for me!!

Thank you for your time and attention!!

NOT ALONE!

 

MariaPatri 

God bless you all.

MariaPatri - living in a rollercoaster! (In Orlando, Fl).

Thyroiditis, sinus infection, heart, muscles and joints. 

Your response brought tears

Your response brought tears to my eyes.  I know how important getting a dr to listen to you is.  That seems to be the most difficult part!!  There are good ones out there.  We just have to find them!  I hope that one of those drs will be helpful to you.  I like that site because of the comments from patients.

 

You are difinitely not alone!!  It is easy to form a bond with people who understand your suffering and frustrations.

 

May God Bless you!!

 

Gisela

CFSi and IBSi/Candidiasis since 2000, 100mg once daily doxyi since 8/21/08, 250mg azithro MWF since 10/3/08, flagyli pulses, vit D3

Wecome Maria P.J. there is

Wecome Maria P.J. there is a lot to learn about CPni and you can begin that process by clicking on the tab at the top of this page called Getting Started.  Hope you find what you need from our website.  It has a wealth of knowledge available and extremely helpful.

Louise

  • CAPi(TiniOnly): 06/07-02/09 for CFSi
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support