Today I was at the doctor and she told me results of tests- my cpni IgAi titers and KFR are high, almost on the same level as in the beggining. So it seems to her my treatment is not very effective. When I took ofloxin my titers rapidly decreased after one moth.
I was better after first two months into the treatment but then I again got worse and last few weeks I am not really well. (I am finishing fourth month)
I know nothing about testing, but it seems to me strange, does anyone have any idea, why it is? I would be grateful for any reasonable answer.
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Prague, The Czech Republic, On Wheldon protocol since 02/18/2006, CFSii and many problems 30 years (cpni and mycoplasma), 3rd year on protocol- doxyii, azi, tiniii pulses
Titers often go up when on
Titers often go up when on the protocol. In fact, some people who are seronegative before antibiotics become seropositive (seroconversion it's called) when start abxi. This is because killing Cpni discloses more of it's proteins to the immunei system which then makes more antigens to stimulate immune cells to clean up Cpn. So this is not a good way to measure treatment, except to show that you are still reacting in a significant way to Cpn. Most of the antigen tests are measuring antigens to EB'si since the RB's and cryptic Cpn is not exposed to the immune system since it is intracellulari. But when you take Flagyli and host cells are killed, the Cpn fragments are loosed into the blood stream where they cause antigen reactions.
Combined Antibiotic Protocol for Chlamydia pneumonia in Chronic Fatigue Syndromei & Fibromyalgiai- Currently: 150mg INHi, Doxycycline/Zithromycin, Tinidazole pulses. Northern Ohio, USA
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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
Wow, Jim, Pretty succinct
Wow, Jim, Pretty succinct response! You actually make me want to go out and get tested all over again, just to see what the results are now! I swear, I learn something new every single time I come to the site. (This is a very good thing, as Martha Stewart would say.)
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
This is very true, Jim.Â
Started the Wheldon regime in August 2003, due to very aggressive SPMSi. Moved to intermittent therapy after one year. In May 2006 still take this, two weeks every two months. EDSSi was about 7, now less than 2.
An Itinerary in Light and Shadow Berger.
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This is very interesting,
This is very interesting, Jim and it is also way, how I personally thought about testing. I was sick from metro pulse when I went to the tests, so I asked my doctor if there could be some influence from metronidazolei killing cpni. She refused this idea. I really do not understand why after some abxi, eg. ofloxacin (which also kills cpn) titres can decrease so quickly. However my treatment is very dependant on positive blood tests, so good news is my doctor will continue to support me and I also have a proof for insurance company due to positive tests. Sounds very stupid, but it is reality.
Prague, The Czech Republic, On Wheldon protocol for Cpn and Mycoplasma since 02/18/2006.
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Prague, The Czech Republic, On Wheldon protocol since 02/18/2006, CFSi and many problems 30 years (cpni and mycoplasma), 3rd year on protocol- doxyi, azi, tinii pulses
 Those are values of my
Those are values of my ELISA tests after 4 month on CAPi and before the treatment.
anti cHSP 60
IgA
IgGi
27.3.2006
0,17
0,88
0,51
17.3.2005
0,4
0,7
Those are my daughter's values before and after nearly 5 month on the CAP:
anti cHSP60
IgA
IgG
5.12.2005
4,8+
0,18
0,7
3.5.2006
0,14
0,13
0,16
Jan, Prague, The Czech Republic
Date Started CAP's:
12/01/2005
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Jan CR /Prague; On CAPs:12/01/2005; 20 years CFSi,IBSi, fibromyalgiai; about 10 years chronic sinusitis, laryngotracheitis, from 2002 hoarseness; from 2003 - v.s. lumbosacral meningoradiculitis, hypertensioni. August 08 - still improving