Testing for CPN

I am looking for a bit of advice. My wife has been diagnosed with reactive arthritis and there has been some recent publications linking this potentially to CPNi.

She is open minded about this and we were wondering if there are any good labs to get some tests done to see her level of infection (if any). or is there other tests she should have. She has been back and forth with the NHS for 5 yeras but don't semm to be getting anywhere.

I am currnetly under Dr AW in the UK being treated for CPN (CFSi) , so there is much potential for the bacteria to be causing her issues.

 

regards

 

Clive

Comments

Clive.. you may find this

Clive.. you may find this< interesting reading.  http://www.cpnhelp.org/chlamydia_pneumoniaea_new<

I am in the US... hopefully, someone in the UK can give you advice on possible testing.  But then, testing can also give you a false negative.  There is quite a bit of information to read here on the site about the pro's and con's of testing for CPN.  Many people treat empirically. 

I developed RAi after starting the protocol... I never had any RA issues before I started treatment.  (The antibioticsi targeting the bacteria triggered it.)  It has gotten better but I still occasionally have issues with one knee, my hips and sacroilliac.  Definitely have your wife take the supplementsi Rica (and the site) recommends. :)

There's a wealth of information and help here on CPN.

 

JeanneRoz

JeanneRoz ~ DXi'd w/ CPNi 4/2007; 6/07 -"officially" dx'd w/CFIDSi/FM; also: HHV6, EBVi, IBSi-C, 100 Doxyi:BIDi<; 500 mg Biaxin BIDi; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni

Clive, My diagnosis was

Clive,

My diagnosis was Primary Progressive Multiple Sclerosisi, and my history in a nutshell is contained in my signature, which is below each of my comments. It is also, along with several - now more as we go through time - in the Patient Stories at the top and, of course, in the blogs of each of those patients. Someday, I hope, it will be realized that most of these diseasesi (if not all) are caused by a bug - and most likely cpni.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Knowing what I do today, if

Knowing what I do today, if I had that diagnosis, I would begin Vit D, all supplementsi, and almost certainly the abxi regimen. All the supplementsi do good for us, and as my husband, a pediatrician, said as soon as my sister found the Stratton protocol and David Wheldoni's writings, that these are NOT dangerous drugs and "it might work". It certainly has for me.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Rica, thanks for replying.

Rica,

 

thanks for replying. What exactly were you diagnosed with?

 

Cheers

 

Clive