I've made most of the sidebar blocks like the poll, new comments, etc. hidden unless you select them yourself to show them. Trying to help clean up the confusng page elements for new folks to the site.

If you want them back, just go to 'my account/edit' and check which ones you want to show up. No worries! 

New folks here to Cpnhelp, we need your help.

This site is full of wonderful, generous folks, who are sick too, who spend a lot of time seeing to questions and making sure people get the help they need. We will do our best to help you through the confusion. I've seen few community websites like it.

But for some miraculous reason we have had a huge influx of new people lately, and we are getting swamped, especially with having to answer the same questions over and over again with each new person posting. We are glad you've found us. We are a bit overwhelmed with the bounty.

With any luck, we will be getting a site upgrade sometime in the next couple days. So there may be a time when you can't log in or find the site for a couple hours. Don't panic, we'll be back.

We are badly in need of updating to the current Drupal system, enhancing security, getting functions to work as they should, and even adding a few extras (I'm hopeful we'll get a chat system going again). Those of you who have donated $, this is where a chunk is going! Thanks! 

Trying to sort out what reactions might be due to for Daisy's husband in a recent thread made me think: "We've never gathered any data for reactions from time of dosing."

So I threw together a quick survey to see if we get any patterns.

Click on the Reactions By Hour survey.

It asks that you have observed for two days, so take a look at what's being asked but don't fill out the survey until you have your 2 days of observations!

Yes, yes, I know that there will be things wrong with it, and some questions missing, etc., etc.. Just do it to the best of your ability.

I've had a few questions and concerns raised lately about some of the recommendations made to people asking for help with protocolsi, treatment reactions, and other questions. This suggests it is time to restate some of the "rules of the road" here. Old-timers may drift in recalling the need for more cautious or measured tone, and newer members may not be familiar with the care we need in responding with our own impressions.

We have a lot of new members here. This is great, as it means we are reaching more people. We also have a wider variety of illnesses and co-conditions being represented here than ever before. Some people may be using protocols which are different than typical CAPi treatments, and there may be important reasons for those differences.

2 years 17 weeks

The title of this editorial is how long www.cpnhelp.org has been in existence. I had planned on writing something intelligent and reflective, summing up what we’ve learned in this time, and offering an over-achiever’s commentary for the holiday. Blah, blah, blah.

Thanks to Red (Dan) we have a PDF file of the TWAR slide show by Dr. Stratton. Good intro to Cpni. You'll find the link at: http://www.cpnhelp.org/slides

Although this news item is not specifically about Cpni, it certainly is in the ball park. Most of us are focused on getting help via the antibiotic protocol for one disease or another, but it may turn out that we are nipping some other problems in the bud...

This may have been noted before, but a nice summary of Balin's work on Chlamydia pneumoniae and Alzheimer's. Note his discussion of the need for using multple measures (up to 15) and different methodologies in trying to detect a very difficult to detect organism:

http://www.tangledneuron.info/the_tangled_neuron/2007/06/chlamydia-pneum.html

The same thing for MSi CAPi users. Please don't take the survey if you have not been diagnosed with MS, and only take once!

http://www.cpnhelp.org/UCCASSv1.8.1/index.php

It's #7 on the list.

Results are public, and can be filtered to see responses of subsets of users. No personal identifying info is taken or required.

Direct link to current results.

For those currently on or completed a CAPi who have been diagnosed with Chronic Fatigue Disorder or Myalgic Encephalitisi:

Take the survey #6 on this page: http://www.cpnhelp.org/UCCASSv1.8.1/index.php

It's open, and shouldn't require a password. This will only be around for a week, so get to it you tired and slow friends!

Once we accumulate the results, you can use the filtering system on the results page to look at subsets of the data, eg filter for only those on CAP for 1 year or more, etc.

Current results link 

Seems one of our members is keeping their letters to the editor up to date. Thanks for the mention:

http://www.immunesupport.com/library/showarticle.cfm?id=8524&T=CFIDS_FM&...

In response to a request for a private place to store notes and such, or drafts of posts prior to posting them, I've initiated a new link called "my private space" under the "create content" menu. Your private space page has two text boxes you can use up to their assigned limit (to minimize load on the site).

Thanks to Daisy's urging I finally got the Image Assist module working, which will make it easy to upload and add images to a post as well as utilize existing images in the Image Gallery.

In the Tinymce editor (Rich Text setting) you will see a little camera icon. Click it and a popup window gives you the choice to see your image library (one's you've already uploaded), the general gallery or upload a new image.

Multiple images are possible, but watch your sizing. These are thumbnails. Elvis: ElvisThe Cave: The Cave by Sarah Longlands