Multiple Sclerosis

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Multiple Sclerosis

Looking for Doctor for my very ill dtr/Wheldon protocol, Washington, DC but will go anywhere USA

Hi, I am trying to find a doctor who understands the Wheldon protocol for my dtr who has Multiple Sclerosis. She is very ill right now and I am very frightened. She has had chronic infectionsi that seem to run in a two month cycle. This last week and up until today she has been so debilitated she can not function,walk, care for herself. She is 27 years old. I am looking for hope and an answer. She is on chemo once a month to keep the progression at bay but, it is no longer holding., Anyone out there who know of physicians who are treating the chlamydia pneumoniae and using the protocol on the east coast or midwest we would be willing to go. Thank you all in advance for your help. Leah Butterfield

A very interesting study of the physics of signal conduction in ms

While we aim for a curative treatment, these physicists are working with the signal problems of demyelinating diseasesi. No palliative drugs yet, but very interesting.

Seasonal affects on ms via a research article from National MS Society

 I would like to hear comments on how or if this pertains to our theories about ms.

 

http://nationalmssociety.org/news/news-detail/index.aspx?nid=3943<

 

Doctor in Maryland?

I am still searching for a doctor to help my friend in Maryland. She receives public assistance and can therefore only go in-state.

Thanks,

Nancy 

Out of the fog - again

In my seventh year of CAPi, I am once again emerging from the fog.  It is seventeen months since I began, for the second time, to attempt to climb out of the hideous hell-hole of M.S.

Cesare's struggle with his aching back made me realize that my neck does not have paralysing pain any more.   After months and months of not being able to move my head, then graduating to most-time, then part-time, pain, my neck is very close to normal.   That was my final area of great pain from the abxi going after the involved areas of my body's infection.

What kind of walker should I get?

Since I sometimes fall and I have to walk a distance from the handicapped space to the building where I work, I thought perhaps there was a walker that I could use instead of a cane. I have a 2-wheeled walker but find it hard to maneuver over cracked walkways et al. I inherited a 3-wheel walker with hand-brakes  and no seat seat but: my right hand is not strong enough to work the handbrake so it careens all over the place when I try to slow it down; it rolls faster than I can walk, especially on down-ramps; it's not sufficiently stable with 3 wheels; it's too heavy to lift into my car when I am weak and tired enough to need a walker. Would a 4-wheel ultra-light (10 lbs.) walker perhaps enable me to safely get to and from my car -- especially in wet weather?

Any suggestions?

Dilemma

I don't expect any help here but I'm taking this opportunity to whine and bemoan the devil's bargain I'm faced with. As I've said several times before, I take Prozac not as an antidepressant but as a neural stimulant which ameliorates the effects of ms. This year a scientific study documented this effect. Unfortunately, other studies showed that ssri's affect the entire body, not just the brain. They lead to osteoporosis and, if taken long enough, to adrenal fatigue.

Well, after taking Prozax for 8 years, I have osteoporosis and have had 2 major bone breaks in the last 4 years; I may also have adrenal fatigue. 

Short film about NIH stem cell research for ms

A friend on Facebook sent me this film. Its premise is counter to our understanding of ms, but nevertheless very worth watching.

http://www.youtube.com/watch?v=6VTu--htcMI 

I have M.S. but its in remission?

Got the results of my latest MRI today.  The radiologist report said that in comparing with the previous MRI (January 2009) there was no change in the number or size of the lesions and as in 2009, none of them were enhancing.  

Every other person I know with M.S. is deteriorating but I'm getting slightly better and the doctors won't believe me that the antibioticsi had anything to do with it (even - as with my neurologist - they ask me specifically whether I have been taking them).  

If there is any downside to the CAPi, it is that without it I would probably be retired on disability by now (and due to a quirk in the way they changed our retirement plan at work, the disability annuity is slightly more generous than regular retirement).   

Been away, had lots of problems

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About a 2 month update. No Pulsing yet

Well the last couple of days here have been nice. Mother Nature is showing her passionate side for us humans. We finally broke the 100* mark and are riding in the high 80’s to low 90’s. What a break.

 

You know I wake up every morning allowing myself to focus on a few clues of how my day is going to be even before I leave the bed. Almost like a checklist a pilot goes through before take off.

Almost Caught

Almost Caught
Not much art done lately, but I did manage this little ditty. Pastel. I think about 16" x 22".

Crisis of Confidence

Started the Wheldon CAPi in Jan. '09. A cautious doctor worked me slowly up to a full pulse in Aug. '09. After a year of pulsing, I'm only just starting to feel some reactions to the ABXi.

 My last honest-to-god relapse was in April '09 when I lost a lot of strength in my dominant hand (couldn't use chopsticks - tough if you live in Japan). This seemed to agree with the idea that a relapse could conceivably happen in the first few months. Prior to the CAP, I've been through double vision, foot drop, difficulty walking, numb tongue, general malaise, memory loss, balance difficulty, etc.

 Since starting the CAP, I've never really had anything that fell into line with the experiences of others - herxing, NACi Flu, etc.

Taste buds

Just curious...has anyone else had their taste buds change during CAPi?

I have M.S. and have experienced issues with my taste buds for years. I'd have months where everything would taste dull and could only enjoy hot or spicy foods. 

Before I started CAP, my taste buds were "normal".  It's been almost a month since I started and I can no longer stand the taste of coffee or artificial sweetner .  Giving up coffee is not a horrible thing and I was getting off the diet soda anyway.  Another odd thing is that that carbonation from soda or seltzer feels like its scouring my mouth.  Very Odd.   

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