Supplements

B12 Methylcobalamin Dosage And CPn Antibody Attachment?

Saying as CPni continually creates antibodies that attach to B12 meaning your body can't utilise all the B12 that is stored, why after 3 months should the 4000mcg dosage of B12 be reduced to taking once per day?  Will it harm continuing to take 3 times daily, even though it seems to have made no difference to Paula's fatigue?

Thanks,

Mark

Health Freedom Warning: Drug Company Seeks to Outlaw Vitamin B6 to Protect Pharma Profits

I subscibe to this newsletter, as I believe a few others do here.  Sometimes the author may seem "a bit over the top"; BUT, his information is usually spot on and helpful.  We as citizens of the great US of A.... are quietly being hoodwinked by going's on such as this article; i.e., drug companies/Big Pharma are committing  widespread biopiracy, stealing all the good medicine from nature, claiming patent protection on the useful molecules, and getting the FDA to outlaw virtually all the natural substances from which those medicines were first derived!

ARTICLE

Update added FIR sauna & moving along slowly.

We got our FIR sauna set up last weekend and I have been eagerly but cautiously using it for 10 min. at the start of my day after drinking water to hydrate first thing. Probably the most interesting result thus far is it restarted the eye burning, sneezing, bronchial irritation with resulting cough. These are all at minor degrees but nevertheless it is a direct response to using the sauna I believe as nothing else has changed in  my environment. The heat from the sauna feels soothing on my sore back and shoulders but causes some itching and then later in the day they ache again especially at night. But less so than on the MP and prior to starting the NACi, supplementsi, etc.

another supplement

I've read about a supplement that others here have taken in the past.  I decided to give it a try, thinking that if nothing else, it will help clean up endotoxini in my system.

The supplement is GliSODin.  From what I've read, it seams to be an antioxidanti enhancer, possibly in the way Alpha Lipoic Acid seems to be.  I'm unsure about how beneficial it will be but I decided it's worth trying.

I'm interested in any experience you may have with it, thanks.you may have with it, thanks.

Pyruvate source

Not sure where to put this, but since I have improved so much on the clarithromycin/pyruvate/prilosec protocol, I have had trouble finding a good economical source of non-chinese pyruvate. My latest source is City Pharmacy, Springdale, AR. They have pure calcium pyrivate powder (I mix mine in applesauce) from Germany--154 grams per jar for about $30.00 plus shipping. Really nice to deal with and they take credit cards. Much easier for me than the horse pills from most companies. Has anyone else got a better source for pyruvate--especially the powder?

Echinacea (Very good information)

The constituents of echinacea include essential oil, polysaccharides, polyacetylenes, betain, glycoside, sesquiterpenes and caryophylene. It also contains copper, iron, tannins, protein, fatty acids and vitaminsi A, C, and E. The most important immunei-stimulating components are the large polysaccharides, such as inulin, that increase the production of T-cells and increase other natural killer cell activity. Fat-soluble alkylamides and a caffeic acid glycoside called echinacoside also contribute to the herb's immune empowering effects.

Overseas pharmacy info needed

I have been ordering from edrugnet and now they have changed their method of payment. Suspicious to me. Can anyone contact me about this and other potential sellers?

I don't know if this is supposed to be displayed on the site or not.

Gratefully,

MalorySurprised

Miying's 3rd + week on NAC

Third + week on NACi

5/04/08 - Sun. (600 mg. NAC x1)

Quercetin & Fluoroquinolones, Cipro, Samento - Interactions?

As Samento which Paula is taking is a natural antibiotic that quinolones like Cipro is based on, I thought I would paste from Wikipedia what the interactions are for Cipro:-

UK Members - supplements

Just thought I'd let you know Holland & Barrett currently have a 75% off sale going on and there are some very good prices.

Evening Primrose Oil 1000mg - 500 capsules £11.99 

EPA Fish Oils 1000mg - 250 capsules £4.74

Activated Charcoal 260mg - 200 capsules £3.68

Conversion Charts?

Does anyone have a link to a reliable conversion chart for supplementsi?

Given the high doses of some of these we need to take I'm trying to make absolutely sure I get it right but depending on where I buy them they have confusing amounts and I have failed to find anything reliable for working out what is what.

For example, my current batch are labelled with mg, mcg, iu and µg

 

Glucose/D-Ribose/Calcium Pyruvate????????

I hope John (farandwide) doesn't mind, but I thought I would bring up a question he asked a week ago in someone's blog.

I quote -

You touch on something that had crossed my mind to bring up, so I'll use this opportunity to do so.  My understanding is D-Ribose/Ribose is for energy production; however, the lingering question is whether it might provide some assistance with porphyria as glucose does.  For that matter, whether Pyruvate might also help.  Both are involved in supplementing the process leading to ATP, so I wonder if they might be alternative therapies to deal with Porphyrins.

End of quote.

My question is very similar:-

Caregivers And Family Of CAP'ers

As mentioned in this blog http://www.cpnhelp.org/question_can_my_cpn_be_da

I thought I would start a new topic.

Paula is bedridden with CFSi as you all know.  She has also had sinus issues for many years.

I have had sinus issues for most of my life.  I can't remember when I last went without carrying a handkerchief in my pocket.  I used to take anti-histamine for it as it was mostly bad summers only so I put it down to hayfever.  For the last 10 years, I have had sinus issues all year round.  I now carry vicks vapourub with me everywhere, and dab it on the bridge of my nose every now and again.

Azithromycin Dosage

i'm curious.  the consensous here for zithro dosage seems to be 500mg.  well, when my old physician initially treated my infectious cause she prescribed zithro 500mg qd (daily) along with doxyi 200mg qd for 3 months.  well, after about 3 weeks on this dosage my stomach pain were inbearable!  i now realize it was the DAILY 500mg of zithro that did the damage.  needless to say,  i stopped and it wasnt until i found this site that i decided to start treatment again (about 6 months later).  i started back up with 500mg zithro MWF along with the doxy.  well, after seeing Dr.

Calcium Phosphate, Di-Calcium Phosphate, Magnesium Stearate - all in the supplements - ok with abx?

Paula pointed out to me today, that many of the supplementsi she is taking including, Vit C, NACi, Folic Acidi, etc contain the above.

I know that you shouldn't take any minerals near to the Antibioticsi, is it ok to have supplementsi with the above in????????

Cheers,

Mark