Well that was daft, and amazing. I worked out how many pills I'd taken since starting CAPi. 903! Then I worked out how many more I'll take if I'm on the same stuff for two more years. Over 30k! Seems impossible but given I've already taken 903 without too much hassle then I suspect the rest will go down just as easily.

I figured I could start a countdown calendar or do one of those songs......

31,390 pills on the wall

31,390 pills

chuck 43 down, swill them around

31,347 pills on the wall

Anyway, after 903 pills, and first full week of Zithi, results?

Eighth pulse (250 mg, 6 per day, 5 days) completed today - and the best part is that I didn't have to go to the Emergency Room at Shands Hospital (Jacksonville, Florida). 

CAPi for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi (3 x week) ceased 3/2008, restarted 5/2008, 150 mg Roxi (2 x day) starting 3/2008, ended 5/2008. Eighth pulse metronidazolei completed 5/10/2008.

Well that's week 2 done. 200mg of Doxyi and all the expected horrors really haven't happened. YAY ME!

I've had no gastric problems at all since I developed the morning biscuit and oils routine I mentioned in my last post but I have noticed I was putting on a bit of weight. This is a me thing. I've always avoided breakfast as I found it piled the pounds on so the biscuits had to go. I'm now having a fruit feast. Somebody recommended a goat but I couldn't possibly eat a whole one.

I don't seem to be going one way or another. Started Rifamapin February 22, 2008 to see if it would jump start things and it hasn't done anything. Except I did notice more weakness when I did my pulses.

Any suggestions-should I change to different antibioticsi then what I am on now???

Or just assume this is as good as it gets-no progression but no improvement???

Also how do I get my signature line to show on my blogs???

Linda

I got very excited when I read David's notation in Farandwide's thread on Porphyria: http://www.cpnhelp.org/porphyria

Kim's been having die-off reactions and I came here first. She's been taking about 2500mg of charcoal at night, I haven't figured out how to decipher Oregano Oil, and then I came across David's post - Thank you David.

I added a link to the paper David referenced and info on the dosage for Tagamet. I'm still not sure of the dosage and timing for cimetidine and I found some more info here that I thought ought to be in a single post to make it easier to find.

OK, day 4 of 200mg Doxyi and it's going great but today I've had the sinus headache all day and I'm sweating buckets and peeing for England. I also seem to be a bit bloated. I know the weather has warmed up but by heck, if it's like this now what happens when summer finally gets here?

I'm taking all the supps and chlorella, probiotics etc. am I missing anything?

Question 2.

Has anyone ever checked out the calorific value of all these supplementsii? I seem to be putting on weight and as I spent some considerable time losing 21lbs I'd rather not get it back again. 

I have had a 2nd MRI scan. The first was in Aug 06, a couple of weeks after having my first obvious MSi problem. Prior to that I had experienced right arm weakness, that I had thought was due to RSI, but was probably MS related.

My scan results second time round are basically the same (no significant alterations and no significant new lesions). This would suggest that the lesions on my scan are fairly old (as they are unchanged), but it provokes questions in me.

Surely my attack in Aug 06 (after a severe summer flu, the primary symptom was exhaustion), would have been the result of new lesions?

If I didn't develop any new lesions in summer 06, what caused my MS symptoms?

I'm needing some help with dealing with Ella's fatigue. It seems that in the past three months she has been suffering from increased fatigue. I think it is probably down to porphyria and I should start the Charcoal once again, although that makes her constipated so not the best choice. But it would be great to hear what other people have to say about the fatigue. The anti histamine seems like it might be a good idea but what about the Chlorella - Daisy? I'll be looking at the Reactions and Remedies in a moment maybe I should take notice of my own medicine...

Hello, and thank you for taking the time to read this post.

I was not able to locate information referencing contraindications to my Rx topicals.

Please pardon me if this is covered elsewhere.

I'll start with a bit about where I'm at and have been.

Mental

I'm a graphic designer who works from home. I have a happy homelife and a positive worklife. I believe that i am a healthy person, I just do not physically feel like one. I have long suspected that everything I experience is tied together, so am really happy to see this Web site. I want to live my life again: I want to go outside into the sunshine; ride a bike; shop in a store!

Physical

I have been reading on the site about the skin poo - sweating and this is of great interest to me as for the about last 2 months i have started sweating terribly, feeling very sticky and my skin as someone else put it very nicely, feels waxy. i have never sweated so much in all my 57 years of life. I am on the full Monty ie abxs dox, az and flagyli pulses ever 3 weeks and supps. I finished pulse 14 2 weeks ago i should start my next pulse today but i am going to delay it for a week due to the sweat which i am think could be a die of reaction - help is this correct.

Well I thought I'd update this at the end of one week of Doxyi at 100mg. There's really not an awful lot to write home about so far but I figured it was worth posting so that there is a balance to all those who get completely clobbered and people who also get little reaction don't think they're a hopeless case.

I've had no problems. No nausea, nothing. I have noticed a couple of changes though.

I found this article fyi...I dont have MSi but might be interesting to others... 

http://news.bbc.co.uk/2/hi/health/7136088.stm

Here is a copy of a note that I sent to my HMO doctors. Don't be put off by my differentiating PPMS from other kinds -- it is an arguing point:

Today is day 5 of the Wheldon Protocol. I saw David last week, got all the info and the prescription and trotted off to the Pharmacy to get it filled.

I picked a particularly busy time and therefore had a somewhat harrassed Pharmacist who was presented with something well out of the norm. First off, I completely wiped out all their supplies of Doxyi and Azith so half had to go on back order. Then I caused no end of confusion with the pack labelling.

They just didn't have enough room to fit the 100mg per day for 1 week then, if well tolerated increase to 200mg per day then........ so eventually I just told them to put "as directed" on there.

A friend passed this on to me, and I see it as another opportunity to spread the word about MSi treatments, so if you feel moved to make a comment please read this article in the The Herald, a leading Scottish Newspaper. Scotland has the highest incidence of MS in the world, so often their reporting is more realistic and serious than Daily Mail offerings....

If you are going to make a comment about Cpnhelp.org don't use the entire URL as it is likely to be ignored, just leave out the www and it should be ok. My comment using just that seems to have stuck. You will have to register to make a comment but not difficult to do.

Michele

Mother of Ella an MSer