Infections

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Infections

ruthless1, Canada

Multiple Symptoms, here is my diatribe!!  I was new to the site April 06 & I have Fibromyalgia-FMSi, Chronic Fatigue Immunei Deficiency-CFIDSi/Myalgic Encephalomyelitis">i- ME, Chronic Lyme Diseasewith the usual cornucopia of underlying symptoms, crashes, flu like symptoms, migraines including CPNi, Babesia & recently hereditary genetic Hemochromatosis. 

Help I am so confused

I am still trying to get a grasp on Chlamydia Pneumoniae, I just found out on 4-11-07.  But I have been sick for awhile  Cry.  I am just starting Antibioticsi again......eeeeek Foot in mouth.  My symptoms have been sinus infectionsi and uppper respitory infections , Phlaringitis, Broncotitis, Asthmai.  In and out of the Dr. office the month of April, and my throat swelled shut I could go on and on.  I ended up at an Infetious disease Dr.

adipose tissue's role?

I was at the gym last night and reflecting on the events prior to my diagnosis with MSi and leading up to it. One of the things that stands out in my mind is that my condition worsened greatly over the course of a year just prior to the diagnosis which was happening at the very same time I was losing large amounts of weight. In fact, the onset of the active form of my condition was 2 - 3 months after I set off into attempting weight loss.

News About Mycoplasma Pneumoniae

Here's some interesting news about Mycoplasma P. and research being done. Note that the researchers link it to asthmai, arthritis and cardio vascular diseasei.

http://wfrv.com/seenon/local_story_004081258.html<

Raven

CAPi since 8-05 for Cpni and Mycoplasma P. for MSi and/or CFSi.

Pulse #4 - I made it!

Hi Everyone!

I've made it past 3 days on pulse #4!  It's all very exciting!  I haven't gone crazy nor have I freaked out.  I am going to go for day 4 and day 5.

I am however only taking about 300mg. of Flagyli per day.  A little over half of a 500 mg. tablet.

Last night, my neck, throat, ear and groin throbbed.  All of the areas where I have enlarged lymph nodes. I am a teeny bit twitchy but I'm working through it.  I also had some aches again in my right lung and ribcage.  I'm having a little bit of a hard time falling asleep, and I sleep a little crazy (move a lot).  I still have a ton of mucus coming from my lungs, sinuses and even my eustachian tubes.

This morning I awoke at 7 a.m. (after going to bed at about midnight), I had enough energy to clean the kitchen (my own kitchen test - haha), wake my children up and make chocolate chip pancakes for them before we started our schoolwork.  My husband didn't wake up until about 10 a.m. and he was just thrilled to see that I'd been up and happy. (he hasn't started his pulses yet, he's still dealing with the Zithi and T3 and he works the late shift because he can't get up in the a.m.).

Antibodies Finally

Well today was my doctor's appointment.  I saw Michael at Dr. Powell's office.

Now, apparently, I have thyroid antibodies all over the place.  Michael is pretty sure I have Hashimotos with an elevated TPO at 412 (normal is <30).  However, I also had very slightly elevated Graves antibodies.  I have a thyroid ultrasound tomorrow (because it is still quite large and painful) and I have a referral to see an endocrinologist.  While I thought I had the perfect dose of propranolol, Michael wrote me a new prescription nearly doubling my dosage.  He said he wants my heartrate under 100 at all times and preferably around 80 bpm.

Because I'm having quite a bit of endotoxic reactions (I shivered and fevered all week), we lowered my daily Valtrex to 500mg instead of 1000 mg.  I'm to keep up everything else and apparently I've been managing my pulses quite well.  I'm just about ready to start another one.  I'm also going to begin taking Ursodial for my liver.

Doctor's Appt. Anxiety

I have a doctor's appointment tomorrow morning and I am scared to go.  I am posting this because I am trying to deal with my pre-doc appt. anxiety.  Maybe in a year I won't feel this way.  It's awful and it makes me procrastinate.

So why exactly am I afraid?  Well, my thyroid is still swollen, it hurts and itches, I'm still on the propranolol and have a high heartrate.  Maybe they'll want to take my thyroid out?  Maybe my latest antibody tests came back positive for something like Graves disease and they'll want to radiate my thyroid.

I always have this fear of doc's not listening to me too because of all the terrible experiences I've had of being in so much pain and referred to a psychiatrist for it.  That was probably the lowest point in my life. I know Dr. Powell's office is different, but all those feelings and experiences still hang around.

Only 2 days!

So I only made it two days on my pulse.  I reached yesterday evening and for the life of me - I could not take another pill.

The right side of my face around my ear hurts and burns badly, as does the right side of my neck, right shoulder and down the right side of my back.  This has me distracted so badly I am hardly functional.

Other crazy things that happened are the twitchy witchies on my left eye and lots of breakouts all over the back of my neck, forehead, chin, my back and even down the front of my chest in between my breasts.  I understand that I have lymph nodes on my chest there and that they may be infected...hence the breakouts.

I don't feel so bad about the breakouts, my husband looks like a teenager again with them all over the sides of his face and down his neck, and he hasn't even done a pulse!

Low IgG and IgM and Intravenous Immunoglobulin

Hi everyone,

Part of the bloodwork that I had indicated that I have several deficiencies in my immunoglobulins.  Specifically, I have a very low IgM, IgG3, and IgG4. (My total IgG looks normal, but those two subclasses are below normal levels.)

Have any of you had any tests with those sorts of results or any other Ig deficiency?  Have the tests improved because of/during your time on these antibiotics?

Do the IV antibodies have any chance at all at getting at the cpni inside cells?  Hmm... also, if it does get to them, do I run some sort of risk by having them go nuts on the cpn?

If you have had experience in general with IVIG, I would like to know how you responded.

I believe my doc is willing to treat me with intravenous immunoglobulins to bring the IgG up.  However, if the IgG is low because of CPN or something like it, I'll definitely need to keep on the abxi.  However, I'm scratching my head as to how to tell the difference between the IVIG fixing me and the abxi fixing me. (I have read stories of people who only needed one or two infusions and they were actually completely "cured"... it seemed that their body just needed the temporary boost to get their own systems going...)

RCPN & Thoughts on the Thyroid

First of all, since my last blog post - I have made a Dr.'s Appt.  I think with some of the craziness I've read I'm going to coin a new term "Responsible CPNi'ing" or RCPN...

Is taking 30 days of Flagyli, Zithi and Doxyi right out of the start gate RCPN'ing?  No.  In my case, is self treating an out of control thyroid RCPN'ing?  No.  So there.  I'm a rather blunt person.  Anyway, I'm totally RCPN'ing because I want to get better in the safest and quickest way possible.

Now about the thyroid.  Today a totally strange thing happened to me.  My thyroid gland swelled up some and it hurts.  In the meantime, my heartrate and the other hyperthyroid symptoms I've been having are starting to retreat.  This works for me, I'll trade the Minnie Mouse heartrate for a swollen thyroid anyday.

Scraping My Hull on the Bottom

It's been a grueling cycle of days lately. Moving is difficult. My right knee is stiff and painful when I use the stairs. My right hand is semi functional due to pain and swelling. I have been to the accupuncture doctor a few times and she seems concerned.

I read online that strep infections often travel with Epstein-Barr and that may be why I am having more respiratory symptoms. After I talked to Dr. P's office, they told me to see a local doc to get an opinion. I have an appointment tomorrow with a pulmonary guy I saw before I went on the CAPi. I'm sure there is more going on than just the EBVi.

My nerves have been singing loudly--especially the ones on the face and side of the head. I've been taking Valtrex and read online that Curcumin causes apoptosisi of EBV infected cells so I'm making tea from fresh tumeric root and taking the curcumin capsules too.

Multiple Sclerosis Risk and Epstein-Barr Infection

Here's an article that finds a stronger link between EBVi and MSi than previously thought:

http://www.hsph.harvard.edu/press/releases/press04102006.html<

Raven 

shingles

I broke out with shingles last week. I'm on Valtrex for a week. Does anyone have any advice?

I thought I was going great guns. I'd progressed to the point that I no longer have NACi flu. Should I discontinue CAPi until I am completely recovered from the shingles?

Uncovering a Henchman

I received a call today from Dr. Powell's office that my recent Epstein-Barr virus test was acutely positive for recent infection. Treatment will be about 5 months of Valtrex. I am so grateful they found it. I have been dragging around for about a month and a half and it was getting worse. This explains the return of insomnia,chills, muscle and nerve pain, aching body and fatique that has been building over the last weeks.

I feel like a great weight has lifted and I have so much hope that I can return to how wonderful I felt this summer!!! 

Raven

CAPi since 8-05 for Cpnand Mycoplasma P. for MSi and/or CFSi. Now also Epstein-Barr virus. 

Mycoplasma: How Hard is It to Kill?

I'm just wondering---with all the focus on this site about Cpni---what is really going on with Mycoplasma Pneumonia. I have found several sites that talk about using certain antibioticsi to eliminate it but then also found some articles talking about drug resistant strains popping up in Japan recently.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&lis...<

 

The Road Back Foundation is a site devoted to antibiotics for arthritis. They have some info on treating Mycoplasma P.

http://www.roadback.org/index.cfm/fuseaction/home.main.html<

 

Anyone else have any information?

Raven 

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