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Morgellons Disease - You Think We with CPN Have a Hard Time Convincing our Doc's!!! - this is interesting and sad

I was scurfing the internet about a topic of interest to me and ended up in links pertaining to Morgellons Disease -- has anyone heard of this?  I hadn't but my heart went out to those suffering because  no one believes them and they are being labeled with "Delusions of Parasitosis".  We all know how most of the mainstream medical field views CPNi and CAP can you imagine what it is like for these people?   One doctor (below) has noticed improvement in the symptoms of those treated with antibioticsi -- and some think it's a co-infection with Lyme.  But for now -- it's all in their "heads" by most allopatic's.  Even the CDC is not recognizing it.

Anthony Azenabor: CPn "rigidizes" macrophages, subverts anti-bacterial action

This scientist is specializing in the Chlamydiae, so he's going on my 'watch list.' Here is a popularized treatment of his publications<, and I will look for the original papers.

This is going to be a molecule-by-molecule fight, evidently.



Darn Coldsore......

a miniscule marker in my treatment, but I have NEVER in my life had a coldsore..... and I now have one that appeared this morning out of nowhere.  Guess the antibiotic's are finding the infectionsi in my body!  Last week,  I was getting small, inflammed red bumps (looked like a pimple coming on)  randomly around my mouth... just a few.

Past two weeks have been EXTREMELY difficult -- my fatigue and weakness have me down almost all day.... I am having "wiggy" porphyric episodes again (waves of anxiety... chest pain, coughing), which seem to dissipate with sublingual b12 and Vit C (as long as I stay in bed and don't move around).  My lymph nodes in my left arm, shoulder and neck are swollen and very tender....



I’m getting a bit discouraged. My fatigue is worse – I am sleeping 11-16 hours per day.  If I force myself to awaken with an alarm, I am pretty much toast the rest of the day (even with naps).

Tetanus Shot

Has any one had one recently? I burned myself pretty bad yesterday (making tea of all things) and went to Urgent Care today as I had about a 3 inch blister on wrist that my husband and I popped - but it was a mess. They gave me keflex, cream for burn and wanted to give me a tetanus shot. The Dr. asked me if that would be ok - I said I am not sure can I call my doctor. She was not in and I heard him tell the nurse to give me one.

6 Month Milemarker on CAP

Actually, 6 months and 2 days... the 27th of September marked six months of my being on CAPi.  As Ruth mentioned in a previous post about herself, I am no longer a newbie!  I am now reading posts of those coming on board, reflecting on my past experiences!  It's a strange feeling indeed -- firstly, to realize how many of us there are "out there".  It is wonderful that people are finding this website -- the word is getting out.

As I read of those coming on board it's a curiosity to gauge the different levels of tolerance the individuals have.  Some are able to ramp up on the meds quite quickly and others, like me, struggle to build up to each level.  I guess this is also indicative of our unique immunei systems and the CPNi load each of us carries.

My cat is on a CAP!

My cat is 18 years old. She has had increasingly frequent urinary problems which manifest as blood in the urine but otherwise appears to be in good health. I have taken her to the vet several times. The last time I took her to a different vet because mine was on vacation and this one said if it occurred again we should run all kinds of tests to be sure other things aren't wrong. I'm thinking, ummm, an 18 year old cat - and it's probably Cpni anyway!

End of Third Month Update

End of My 3rd Month Update:

I am now beginning my 4th month of ABXi and felt I should blog what has been happening. I finally reached the full 200 mg of Doxyi/day, the week of July 8th and was feeling pretty decent actually. I had 2 weeks of feeling normal "so to speak". Not "whispers" as you call them, but they were shouts!!!

Doctor in Australia who is happy to prescribe CAP treatment


I am pretty new to these pages. I live in Sydney and I am looking for a doctor who would be happy to prescribe CAPi treatment. So far I am awaiting my PRC blood results for Chlamydia and Mycoplasma. I am expecting them to be positive as I suffer from range of symptoms quite similar to those listed and voiced on these pages.

So far I haven't been able to locate any doctor who would have any experience with this treatment protocol. Please let  me know where to  look for help.

Thank you.

Frustrated, Depressed -- Needing to Vent

This week has been one of depression/frustration.... probably due to my impatience and lack of control.  But also because I don't understand what is going on with my body and this bacteria!  Family members keep looking at me at asking "when are you going to get better"... I stopped trying to explain. Having to use a wheelchair this week -- I've experienced the stares from people and small children and now understand what those of you with MSi must endure from society.


I am Hilly and have been suffering from Lyme Disease and other tick related diseasesi for some time.  I also have Morgellons, and feel I probably have chlamydia pneumonia although it has'nt been diagnosed as such.  


Hi all, first appologize for my English, I am writing this mail from small country in Europe (The Czech Republic) and must admit am reading these sites for a while now. I must say I am so glad to see a way to cure which works and am even more amazed it is on internet. Unfortunatly my doctors do not share such exitement with me but I am sure after some time they will understand (once they are willing to open eyes and mind).

"The Heart Attack Germ Book"

I ran across this while surfing the Web today.... anything worth reading in it?<

Blessings to all,


A Year of Pre-Protocol

I started taking the recommended supplementsi one year ago, went through NACi flu, and I have felt generally better except for periods of high stress. After a lifetime of frequent acute respiratory infections and maintaining a constant low-grade sinus infection, since starting the supplementsi, I have been free of those acute infections and free of the symptoms of chronic sinus infection (except for a nagging little dry cough). There have been times of minor allergy symptoms when the mold spore counts, or mountain cedar and ragweed pollen counts were high, but they have gone away when the counts lowered instead of launching me into an acute sinus infection as they had done in the past.

Thinking outside the box-is there a future better way?

As one reads the entries on this site you learn of many challenges and hardships faced as one deals with the numerous reactions to the protocol. Many are due to the die off aspects.

It makes me wonder if somewhere in the future there could be another way that might be more tolerable and perhaps quicker. I'd like to toss out a few thoughts for different approaches that maybe someday might work(or not). Given the vast knowledge and experience of the members of this site, I invite and encourage other thoughts. Maybe there is an audience out there that might explore some of these ideas if they were captured here - you know - "plant the seed" or "put a bug in ones ear".

Here goes:

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