Bacterial load

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Quantity of bacteria built up in body tissues.

systemic enzymes

hello, i am writing on behalf of my girlfriend she is a patient of doctor W from bolton, she is being treated for possible lyme and other infectionsi. she was on doxyi for 10 over weeks, but she had to come of them  due to terrible non stop herxing. she has been given a new treatment plan including LDNi but she has not recovered at all from the doxy so is scared to start new protocol. she has tried chlostramine for about a month but had further herx from this. she takes charcoal.  i have been looking into systemic enzmes as a way to maybe help and was wondering if anybody out there has tried any as there is so many different types and there all so expensive. i think she suffers from hypercoagulation and these seem to help and hopefully help clean her blood.

CAP & Adjunct Treatment update March 11, 2009

Treatment Overview on March 11, 2009;

Diagnostic Evaluation May 24, 2007. Chronic Fatigue Sydrome - Progressive onset - 20 to 30 years to overwhelming fatigue, Fibromyalgiai, Mild Form.  C.Pn. positive by Lab test result > 1:512,  Bb positive by Lab test Western Blot after doxycycline taken for 3 -4 weeks for CPni, Borrelia Burgdorferi (Lyme Disease) was revealed as positve on Western Blot late July 2007.

Started CAProtocol 6-21-07 with Doxycycline, N-A-C and all supplementsi<,  CAP Progressed on 10-31-07 Macrolide-added, progressed 11-22-07 Tinidazole-added and also Cholestyramine HS PRN x 7d starting day 3 - 4 of pulse and continuing for +/- 7 days.

Intermittant Protocol

Intermittant Thereapy~~~ There recently have been quite a few who have gone to intermittant therapy (hurray!).  I know in recent discussions comments are made "to refer back to their individual posts" to see what that consists of.  It is difficult sometimes to query this site for such specific information re each member.  

Chlamydia pneumoniae--a new causative agent of reactive arthritis and undifferentiated oligoarthritis.

Chlamydia pneumoniae--a new causative agent of reactive arthritis and undifferentiated oligoarthritis.
J Braun, S Laitko, J Treharne, U Eggens, P Wu, A Distler, and J Sieper
Department of Medicine, Klinikum Steglitz, Free University of Berlin, Germany.
 
This article has been cited by< other articles in PMC.

Die off from oregano oil

 

My doctor has noticed I have been getting build up of yeast on my tongue and startred my on oregano oil. My question my be a bit over the top but can this cause severe die off symptoms?

I have read that oil of oregano is a natural and that it has significant effects on micro organisims.

 It is potent in being an anitbacterial,antifungul,and antiparasitic. The carvacrol must be at least 70% or higher to be effective.

 Since I just started taking it I have been feeling extreme fatigue, off balance, dizzy, severe brain fog. Major die off symptoms I believe? 

Is anyone using oregano oil and how Much?

Have you noticed increased symptoms and have you had to monitor your moppers more closely  to counteract the die off?

 

Feel like I have the flu

I've been on doxyi and zithi about 2 months now and have only been able to take a flagyli pulse for a day and a half.  I've been in bed for a week.  Does that mean the bacterial load is too high?  Also, I'm so hot all the time and also feel so swollen even though I take dyazide.  Feet are so swollen in my shoes, even my hands feel swollen.  Would that be heat shock proteini?  I upped my vita c to 12,000mg yesterday but didn't help.  It just messed up my stomach.  I'm taking all my meds, supplementsi, etc.  I just have to wait it out, right?  I did feel a little better about 2 weeks ago so I should feel better soon and not be so depressed.  I just wanted to fuss a little since I haven't posted for a while!  I'm going to bed with my heating pad (AGAIN!).  I live with an electric heat

Porphyria / Die-Off / Herx / Exaserbation

I'm back filling.  Seemingly dumb question, but, I don't know.

Do we incorrectly use Herx/Porphyriai/Die-Off interchangeably?  Are they the same thing?  Are they the same thing that non-Cpni'ers are referring too when they take antibioticsi and feel worse?  When we talk about charcoal and Ibuprofen and Glucose, are we talking about the same thing?  Or are these all different things?  I hope to get clarification, because, I wonder if I'm casually confusing 2 or more things as being one thing.  Did my question make sense?  Ken

Should I take the Amoxiciiliian???

My poor body is protesting again. Basically, I have been ill since November 3rd with a severe bout of bronchitis, almost as bad as when I first became ill in Nov. of 2006.

Doc told me to double up on my azith and take it daily -- which I did. I also became SEVERELY constipated being in bed most of the month. Was starting to have "spells", nausea other wiggy symtpoms, so I took milk of magnesia... I got relief but it also threw my colon into spasms. Luckily I had some hycosomine from a previous "spastic bladder" after a bladder scope. The drug helped the spasms which I am contining to have 2 weeks later. I continue to have nagging pain in left descending colon area and splenic flexure area.

18 Months on CAP

Dec 24, 2008 marks the completion of my 18th month of treatment.  I am antibody positive for CPni and Bb.  I started treatment on bacteriocidal level of Doxycycline 400 mg/day for almost 4 months before cutting back to 100 mg BID and adding Roxithromycin 150mg BIDi daily.  Those first 4 months were incapacitating and perhaps advantagious it is water under the bridge and I would not recommend it to others. 

Cpn panel updated with D25, D1,25 test results

I recently had a blood test done for Cpni panel to see what I could learn. I realize these tests are not considered accurate. But I was curious & had the opportunity ... so why not?

The panel included C. trachomatis, C. pneumoniae & C. psittaci.

Both the C. trachomatis and C. psittaci results came back normal reference range and said "ANTIBODY NOT DETECTED".

However the C. pneumoniae came back marked high on two fronts.

IgG  1:512 H   (reference range: 1:64)

IgA   1:64  H    (reference range: 1:16)

IgM <1:10

Interpretation = PAST INFECTION

Raising Cellular Oxygen with a simple breathing techinque - endorsed by long time CFS clinician Paul Cheney

This could be a very powerful tool in raising cellular oxygen (and all the immunei benefits from including killing pathogens).

Dr. Paul Cheney recently gave advice to use a specific breathing technique that would help increase the enzyme "2,3 DPG".

DR. CHENEY: Increase Your Oxygen Intake<

Two steps forward thr3e back

I have been moving along with my medications at a snails pace but what has been exceptable to my system. When I first started the capi the NACi had me so sick I was unable to function at all so I went ahead and started the Doxyi. with some difficulty but tolerable and moved onto the Azithromycin, M/W/F.

My doctor insisted that I start the NAC at my own pace but it needs to be added to kill the EB'Si. So, once again two weeks on only 1200mgs. the symtoms of nausia, dizzy, yuck flu feeling has stopped me in my tracks. The inflamation has made it hard to walk or function at a 4/10. Then to add insult to injury I have had to hold the Azithromycin due to overall illness.

Paula Has Gotten Worse

A couple of weeks ago, she suffered from a couple of crashes, whilst on her daily trip to the bathroom.  Luckily her daughter was in the house both times, to help her back to bed.  At that point we decided to get a commode put in the bedroom.

Over the course of the 2 weeks, she was able to use her usual jars by the bed for the "No.1" and the commode for her daily "No.2".

About a week ago, she started taking a 3rd dose of powdered activated charcoal (2 teaspoons at a time).  I have ordered some Colestyramine to try at a later date, when it is delivered.  We are doing this to try to bring down her porphyrin levels as much as we can.  Her porphyriai symptoms included:-

Terrible fatigue

Added Yaeyama Chlorella

Presently I have been on Minocycline for over two weeks. The inflammation has been increasing in small increments daily. I was not keeping on top of the load of toxins/porphyria with my usual doses of glucose, Emergen-C and charcoal. So a couple of days ago (9/20) my recent supplement order was delivered which included some Yaeyama Chlorella to try out. Only after two days of use before lunch I am impressed of how effect it seems for me. It is the perfect pre-lunch mopper. Which is a time of day I really need help. It is when it is not convenient to take any of the other moppers I use. But to be clear, I definitely will continue all of them at the usual times I take them as well.

1st week on Mino & wondering?

Well, I don't have to tell you that I am pleased things turned out pretty good for me. The first few days of Minoi were misery but then things began to settle down. The last couple days I haven't had to take extra Emergen-C but I am still stiff and achy. Plus my eyes are so red some folks at the store look at me as if I am crying OR stoned... sympathy or disdain. Of course either way I don't appreciate the vibes so quickly move on. Also I have daily coughing sessions and about gag at times trying to break loose the mucus stuck in my bronchial airways. (sorry) Sometimes it just feels like a hair stuck in my throat. It is worse for me in the mornings.

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