Amoxicillin

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Antibiotic used to kill the EB form of Cpn.

BP and the Sun

Here I am back again with a couple of things I meant to say before.

The first is just a funny coincidence - my blood pressure at my check-up was my weight over my age: 106/70.

The other has nothing to do with our protocol.  It is that next week we are getting solar hot water!  We almost went entirely solar at the beginning but "chickened out" and decided to try this first.  There is a federal tax rebate of 30% and NC has a 35%  tax rebate in addition. 

A few days after our decision, we learned that a very famous dairy goat judge, breeder, and dairy owner is doing the whole thing.   She is in CA and hers is the second largest solar profect in CA.  This is incredibly exciting that all this is happening!

Rica

Few things are perfect - my physical was close

It appears that living right can do good things.   And the young coyote is alive and well - she was not euthanized, but instead released, due to a catch-and-release program!

Today was my annual physical, and I passed with high flying colors.  Such adjectives as: phenomenal, amazing, beautiful, and several others were used.  I was told again that my doctor has fully realized that there is a Vit D deficiency across the county - he used the word "epidemic" - where have I heard that before?  Incidentally, mine is again down to 65, so I will increase my intake again from 8,000 to 10,000 for a while.  My level seems to go up or down as my diligence - unwitting or not - ebbs and flows.   

Call From the Doctor's Office

I really don't get a good feeling when my doctor's office calls. This time it was because my thyroid test was way out of whack and they were not happy that I wasn't knocking down my Cpni levels. God lord, I work with loads of sick kids all the time. Cpn and who knows what is floating around my classroom. Groan! Will I ever get my Cpn levels down to nothing? Well, They want me to take Amoxycillan to kick things along.

As for the thyroid I am convinced it was the release of heavy metals that caused it to go galloping off. Or it could even be an ovarian cyst. Anyway, I'm in for more tests.

Man's best friend

I suffer from a mild case of MSi which my neurologist has me on Betaseron.  I have had the symptoms for 20 years and what started as RR is now SP (especially in my right hip) 

Recently, I was going to pick up the mail and I passed a little girl and her dog.  As I raised my hand to say hello, the dog (which was a large puppy) jumped up and mouthed my arm (not seriously - just a scratch).  A short trip to emerg and I was prescribed a three day course of Clavulan (Amoxicillian and clavulanate potassium)  

recovery?

About 6 - 7 weeks ago, my ability to walk more then 10 feet went out the window. I can't stand for long, can do much of anything that requires leg stamina to do. So I'm here to ask for me and anyone else who might run into this problem, what can I do to remedy the problem. Is there anything or is it just a case where I'm out of luck? Now don't get me wrong, I know there is no magic cure out there. I just wonder what people have done with this sort of problem and whether it might help me to regain some of what I've lost? Thanks!

Biofilm Testing

I picked up a comment in another post (by K23la) regarding Biofilm Testing and it perked my interest.  I 'm not sure what advantage it would be to know specifically what pathogens are hiding in the biofilms we have  as the removal process is, I believe, the same. Perhaps some of the more scientifically-minded  here may have input.   

The test  is available at Fry Labs in Arizona and your own prescribing doctor can order it (the test kit will then be sent free).  If you order it yourself, the test kit is $15.00.

The cost of  the Fluorescent DNA Stain is $350.00.   All information is available at http://www.frylabs.com<

The persistent tortoise

This is a very short blog about a tortoise in the slow lane. For many years (how does this happen? - we shouldn't blink!) I had a solitary discussion about arthritis:

(1) I was getting very old very fast. (I was 55) and everything hurt.

(2) My hips are in agony.

(3) My fingers and shoulders hurt all the time.

(4) My neck is so stiff that I can't turn my head.   It hurts even when I don't try to turn it.

Most of my joint pain went away while I was "sleeping" that first couple of years. Then my hips were incredibly painful during walking - then it went away. My finger joints were worked on one at a time and have slowly stopped hurting, though still have  some residual swelling, probably permanent, which I accept.

Books and a Movie

Many times I read for the great pleasure gained and to satisfy my curiousity, but I discovered Greg Mortenson, Three cups of Tea, and now Stones into Schools. Along with wishing the Nobel Prize for Medicine for our cpni crew, I wish the Nobel Peace Prize for Greg Mortenson. And I am hardly ever much affected by movies, but last night we saw "Seven Pounds", with Will Smith, and will probably be affected for the rest of my life.

As for my own cpn protocol against PPMSi, I still chip away daily with my five abxi plus caffeine. We all tweak and listen and tweak some more, but I seem to have stumbled on a tight turn of the screw, thanks to John (farandwide) and Paul.

What you leave behind

I last completed a maintenance pulse in November 2009. 

I had my annual visit with the neurologist at the medical school in Houston in January 2010.  EDSSi now "about a 2" versus the "about 2.5" it was in January 2009.  As he considered my progression (or lack thereof), he asked whether I was taking antibioticsi.  I told him none since November 2009 which left him scratching his head since he can't account for my "atypical progression".  (For the record, I previously discussed antibiotics with him and he dismissed it since he is of the belief that M.S. is caused by a virus).

Whatever is Required

We spoke to Dr S just now.  He was approving of my going back on flagyli, and, because of nausea, cutting back on caffeine. 

A couple of interesting and heartening bits came of the conversation.  One is that I will continue with this protocol for another three months and call him again, sooner if there is news either way - worse or better - because I still react.  But... my daily reaction is nowhere near five years and four months ago.  For example, today is Azithromycin day - and Doxyi, Rifampin. Amoxycillin, flagyl, and caffeine. 

A Handle Resubmitted

On rereading last week's blog, I am amazed at what I wrote about flagyli and not taking it. Sometimes I guess I am not as "with-it" as I believe.

In May, Richard spoke to Dr. S., who put me on the usual: Doxyi, 200mg; Azithromycin, 250MWF; Rifampin, 600mg; flagyl, 1000: (these I had been on till I stopped everything on Jan 11, 2009); and then ADDED Amoxicillini 1000. I did this without fail for six months and then we called him again. But I was STILL reacting! Aaarrrgg!! He then left all abxi the same, with the exception of flagyl, which he replaced with caffeine pills.

"Getting a Handle"

Caffeine has played a big role in my life for the last eight months or so, with no end in sight. However, there are small reprieves that show themselves now and then. As a matter of fact, I am beginning a "now", now, and it is good. Caffeine is easier than flagyli, but not a carefree walk in the park. Since I began with flagyl and only used caffeine after nearly five years, I can't say for sure that caffeine would have been easier then. It has its own problems - but problems associated with this protocol, at least for me, would never compare to what life - or the lack thereof - would be like without it. Heartfelt and eternal thanks to all who have had a part in bringing it to the world.

Not so many miles to go

My six months of constant flagyli are over and I have survived it. Not only have I survived it, I have greatly benefitted from it. 

1 year and 9 months on CAP.

I didn't even notice how time went by. It's been 1 year and 9 months since I started CAPi. When I started, I thought I'd be on it only for a year. Then I hoped to stop at 2 years mark but now I see that I may need a bit more time b/c I still have a few unresolved symptoms.

I am guilty though for taking about 3-4 weeks break from treatment this summer. It happened sponteneously. I ran out of meds, didn't refill on time, we needed to go away for vacation, oh well, many excuses. The truth is that I am burnt out.  I put myself back on track but I can't wait when the treatment will be over. 

NAC vs. Amoxicillin, is there something to determine?

Okay, it has been suggested by someone that NACi may in fact not be doing what it supposed to be doing, namely, replacing amoxicillin in the CAPi.  The role for both is to eradicate the EBi stage of Cpni, which is intra-cellular, floating around in the blood, plasma, and other fluids in the body, seeking to find a cell to infect and become an RB.  Both NAC and Amoxicillin come along and interrupt the di-sulphide bonds that hold an EB closed when floating around.  When it opens, it begins to need food and starves.  That how we kill an EB.

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