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An antibiotic used to interfere with bacterial replication.

Beginning of CAP treatment

HiThis is the first week fo my CAPi and I am onto day 5.  I plan to keep a blog of the ups and down so that I have a record of the progress I plan to make.  I am a huge optimist which I hope will get me through this.  All seems to be going well so far.

Doxycycline Questions - Capsules vs Tablets, Mono vs Hyclate

I recently had a discussion with someone about doing CAPi and possibly switching to doxycycline in the future to save some money and lo and behold when I did a price check in my rx mail order there are FOUR different possibilities I could get each with its own price. 

Ok, now the price isn't even that much of an issue (not much difference) but if I don't get the "right" information on the rx, it's a nightmare to try to change or fill with the mail order service.  

So, which do you all use?  Here are the 4 types available in 100 mg strength generics:

Doxycycline  monohydrate tablets

Doxycycline monohydrate capsules

Doxycycline hyclate tablets

Doxycycline hyclate capsules 

Kissing Your Sister

During 2008 I did so many pulses while I was traveling that doing the last one at home seemed to be missing something.

Anyway, pulse #16 completed.

Have a Merry Christmas, Happy Holidays and Joyous New Year.


18 Months on CAP

Dec 24, 2008 marks the completion of my 18th month of treatment.  I am antibody positive for CPni and Bb.  I started treatment on bacteriocidal level of Doxycycline 400 mg/day for almost 4 months before cutting back to 100 mg BID and adding Roxithromycin 150mg BIDi daily.  Those first 4 months were incapacitating and perhaps advantagious it is water under the bridge and I would not recommend it to others. 

Hi, have MS and C Pneumoniae OR the birdie one

Hello all.  I am a newbie. I have been referred to a doctor of infectious disease due to a fever of unknow origin.  I became sick on Nov.

sauna use

I was looking at getting an infered sauna, doe anyone have anything to say good or bad about using a sauna along with treatment.

Does PrimaCare count as an Emergency Room?

Ended up at Primacare the other night.  I was lifting my wife's uncle's Civilian Conservation Corps (CCC - bet most here don't recall what that was) footlocker when the handle broke and it landed on my left foot.  The bruising and swelling looked a lot like a similar break a few years ago so I hobbled into Primacare; a local "doc in a box" that I knew from past experience had an x-ray machine.  Turns out that I had not broken the foot.

The worst part of it is that I can't blame any of this on the reaction to the last pulse since the aftermath has been completely unremarkable.

Fifteen down - and how many to go?

Fifteenth pulse completed today. 

Overall, had the same experience as the last few pulses of getting "supercharged" after starting the flagyli.  Also, had very severe shortness of breath a couple of times reminiscent of my experience in Chicago.  If I had not already had the experience of making a trip to the Emergency Room in Chicago last year, I would have probably ended up going to check out what the E.R. looked like a Houston's Memorial Herrman hospital.  I've heard its a good one.  Anyway, the dyspnea passed and I'm now just waiting for the endotoxinsi to hit.

I also have to remember to keep it a secret from my son that flagyl turns the color of urine orange since that's his favorite color.  



All - at least mostly - in my head

Unexpectedly, in my 55th pulse, I got - as Jim K colorfully calls it - slammed.

Last Monday I returned home from an exciting week of over 6000 miles air travel and a wonderful visit in Palm Springs to see my daughter open her beautiful new veterinary clinic. I met some of her clients and patients and told many of them of our own ground-breaking site with its adventures. There is NO litter in Palm Springs. My home-coming was very different from those in the past in that I did not need "recovery days" after landing and then driving 170 miles home after a 15 hour all-day two flight day from coast to coast. Amazing.  Not only is there "one is never so blind as one who will not see", but there is never one as grateful as one who has been to hell and back.

Porphyria Hell!

Paula has had some bad days this past week.  There were times she thought she was dieing.

Those dieing like symptoms were:-

A) Rapid heart beat that wouldn't slow and she would wonder if her heart would take it.

B) Her fatigue would get so bad that she would have trouble catching her breath.


These symptoms would last between 30mins and an hour.  It was during this time that she would also get the classic porpyhria symptoms including paranoia issues.  This led me to believe that the 2 major issues above could also be porphyriai related.


I got my second round of test back

The second set of test came back the same spotted feveri and cpni I have started on Doxicycline and Azithromycin. I am doing most of the supplementsi Naci, D3 ect... I  take neurontin for pain.

I am actually sleeping better than I have in along time, My knees are so very sore,I have a hard time getting up of the  couch, I am walking a little better, I feel like my whole body is bruised, my abdomen is all bloated, my legs are all swollen, my upper arms are swollen and sore, it hurts if I raise them to quickley, I dont have much of an appetite yet I have gained alot of wieght,

Short of breath in Toledo

A week after pulse #14 completed and I was in Toledo when I started having shortness of breath problems just like those that sent me to the hospital back in September 2007 (see prior blog posts for all the gory details). 

Since I knew that this was probably just a visit from Dame Endotoxini the Mistress of Misery, I just upped my charcoal intake and made sure I didn't miss any WelChol tablets and it has pretty much cleared up on its own.

Guess this means I'm killing something.  Can't wait for November to start pulse #15.

Doxycycline Asthma -- week 1 -- Allergic to Erythromycin

Hi.  I wanted to say that I haven't used an Asthmai inhaler in 2 days, this is the first time in MONTHS that i haven't had to use an inhaler multiple times per day every day.

 I started on 100mg doxycycline twice daily about a week ago -- I also have Flagyli which I am planning on pulsing after a month or so of doxycycline. 

I got some Clarythromycin however I am not sure I should take this or Azithromycin because I had an allergic reaction to Erythromycin about 16 years ago.. a severe reaction, my hands swelled up to the size of baseball mitts.  I am afraid Zithromax could cause the same problem because these are all in the same family.

Started CAP 10/22

Finally made it to the appointment with my doc that he prescribed doxy and azithromycin.  Started the doxy 10/22.  My doc said something about doing a 12 week course-I'm just going to go with it for now and approach the 1-3 year time thing later.  I am having minor surgery on 10/31 and was told to stop all vitaminsi, herbals and supplementsi one week ahead of time.  I don't really want to backtrack, so being a nurse, I am not a very good patient and will probably go ahead w/ most of the reccomended supps-esp. NACi and vit D. 

The disappearing lesion

Since the early seventies, I have been able to make my body go numb. The first times I fell because I didn't know what was coming. I have been able to do this at will for many years, but took care not to fall down. Fortunately, the feeling always returned.

As stubbornness is the nature of us on this site, I have only listened to Richard in the last six or so months when he admonished me not to do that! I can also dislocate my hip but he says not to do that either! (Takes all the fun out of life - no?) (No)

So - what IS the point - simply put: the ability is gone. I cannot do it anymore AT ALL. Not even a tingle and certainly no numbness. Yes, the quiet improvements continue - and the energy is very, very nearly back to my norm or 55 years. Keep at it - it pays.

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