Doxycycline

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An antibiotic used to interfere with bacterial replication.

Is this going the right direction?

This is probably going to be fairly long since it's my first blog entry.

 

I started an empirical CAPi in October on suspicion of a Cpni infection, as my 10 years worth of symptoms find a ton that fit in with a Cpn infection. Not long into starting, I went through a series of old symptoms that hadn't bothered me in years that reminded me that way back at the start of all these symptoms, I had legitimate concern of a lyme or other TBD infection. Bullseye rash, joint pain, muscle twitching, sore throat, increased floaters and neck pain. I saw my doctor about all of that, but it was explained away. Anyway, maybe 2 weeks into the CAP, I re-experienced all of that except the bullseye rash.

 

Not so many miles to go

My six months of constant flagyli are over and I have survived it. Not only have I survived it, I have greatly benefitted from it. 

Antibiotics "could help slow MS" according to the MS Society

Well, its a start I suppose: http://news.bbc.co.uk/1/hi/health/7136088.stm<

"Antibioticsi are cheap and easil available, which could make them an attractive treatment for MSi if they were shown to be beneficial" - Dr Laura Bell, MS Society

Adding antibiotics to standard drug therapy may slow down the progress of multiple sclerosis, research suggests.

Patients showed fewer symptoms and fewer signs of tissue damage when they took the antibiotic doxycycline alongside the MS drug beta interferon.

Experiment with Doxycycline

I got a new Doc, just down the street. Someone on http://www.ratemds.com/< said he had some experience with Fibromyalgiai. Lucky for me he is open minded. I complained of prostatei and GI issues. We tried 7 days of doxyi (100mg x 2) and a one shot of 1000 mg of Azithromycin. During the time of the Doxy I took 4800 FU of Bromelain per day. One 2400 FU pill to chase each Doxy. Only once did the Doxy make me throw up when I didn't eat it with some crackers (god awful).

Empty Capsules Triple "000" size V-caps or Gelatin Caps can be useful.

Nausea, stomach pain and vomiting from gastric irritation while taking Doxyi, Clarithromycin or metronidazolei(Flagyl) is a topic that has come up over and over again here.  

Empty Capsules Triple "000" size V-caps or Gelatin Caps was suggested several years ago for people who had trouble tacking Flagyl.    I picked up a bag at my local natural foods store.  Some people purchase Vit-C in bulk and fill their own capsules, they are used for other herbs as well.

doxy why not 300mg

I have read a lot of lyme disease forums where people take 300mg of doxy and it works great. why dont these protocolsi call for 300mg instead of 200mg a day. Just wondering.

Vertigo and Vergeance

One of us asked me what I could do now that I am a "1" instead of a "2", or as I used to be, a "6.7". The answer would be so long that it would fill a good-sized book. Let me start with the fact that I can swat the pesky fly (just did) that has been flitting around (and no longer is). I could follow that with some of the everyday other pesky things like sinusitis, inflamed gums, varied skin problems, dry skin, mental fog, and, most monumental of all, my walking. Not only those, but I can take a deep breath without coughing. Most "normal" people take that for granted, but I was not able to do that for years and years. And I had a "catch in my chest" which prevented me from breathing much at all when it was happening.

My day 42 update

Day 42 of the antibiotic protocol! Being on the antibioticsi (Dox + Zithi) is easy for me so far. The only noticible effect is a good one; more regular #2s. If yer colon ain't happy, ain't nobody happy 8).

I have split the antibiotics into 2 groups, and I take 'em within an hour of 3:30 AM and PM.

I take (only) 1200 mg of NACi daily; is there reason to increase that?

I'm going to visit the doc tomorrow - should I push for a B12 blood test?

My biggest issue so far is getting Signature changes to 'stick' on this site! If that's my *biggest* issue I'd say things are going well.

It ain't over til Sam plays it again

Jan 11, 2009 was a day of celebration followed by several months of very near (old) normalcy. I had done four years and four months of protocol and finished with weeks of the supreme test. Confidence and well-being reigned.

Then - in the way known to each of us - the stealthy creeping began - a little fatigue (it was the middle of kidding season), a little functional deficiency (it was the middle of kidding season and LOTS of hard work), some brain fog and lots of fatigue and foot drag (it was the middle of kidding season - though approaching the end - lots of hard work, long hours, and clipping and packing for the show).

For those of you who went to Sunday school...

Join with me in singing (to the tune of "Oh, How I Love Jesus"):

Oh, how I hate hydrazine

Oh, how I hate hydrazine

Oh, how I hate hydrazine

Because it upsets my stomach.

First session of intermittent therapy nearly completed.  

What Happens if you only use Azith or Doxy, then Flagyl??

I think it might be timely to post an explanation of the importance of the protocol; i.e., treating all life cycles in order to erradicate the CPNi.

 What would the treatment repercussions be of only treating with, say Doxy and then jumping to Flagyli (not including the macrolid)??  Or only Azith, then to Flagyl or Tinii?   I am concerned some newbies may be missing out on the correct treatment.   I know there is info in the Handbook/protocol pages, but perhaps something 'up front" may help???

Any of you experts/"elders".... wnat to throw out  some sound advice to the repercussions of leaving out a macrolide, or the doxy  in treating CPN?    Or is this beating a dead horse :)

 

JeanneRoz

I am just going outside and may be some time

My "stash" of antibioticsi is nearly depleted.  I have enough left to do two occasions of intermittent treatment and then that will have to have been sufficient.

I will continue the supplementsi (including NACi).

Those of you who recognize the quote will understand the desperation to find an effective treatment that led me here as well as my fear that I may be stopping just short of the depot with disasterous consequences. I do not in any way seek to connect my present circumstances to the quote's spirit of self-sacrifice.

 

With Apologies to Barbara Streisand

People

People who need Doctors

Are the sickest people in the world...

Now, I'm not trying to start a controversy here about the fact that there sick people who don't have access to medical care, just trying to come up with a subject line based in popular culture that is at least somewhat obliquely related to the subject of the post and might keep me in contention for the Bulwer-Lytton prize.

Anyway, some time ago I went to one of the Lyme disease sites and downloaded the names of some doctors who are willing to treat patients with antibioticsi

Unless All Dream Alike, You Must Not Ask Them to Remember It

I had an MRI in January 2009.  The M.S. specialist ordered it because I have been having mild headaches at the top of my head that precede things "happening". 

  • For example, I had a headache that came on before I temporarily lost my ability to write a cursive "D" (and hence lost the ability to sign my name).
  • I also had a headache come on and when it had passed, my need to get up at 3:00 a.m. to go to the bathroom had all but vanished. 

The MRI was done:

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