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An antibiotic used to interfere with bacterial replication.

Chlamydia Pneumoniae sufferer

Hi All,

I started to feel unwell in August 2010 (temp changes / frequent hot & cold sweats / neusea / shooting pains in the upper abdomen / fatigue) and forever had most of the symptoms since.

Blood tests for all the thyroids / ultrasound of the upper abdomen and a gastroscope all came back clear. Fortunately my 6 month visit to my respitory physician came whilst the GP was stil looking for the cause (Been on CPAP therapy for Sleep Apnoea since September 2008). Without using the blood tests to prove Chlamydia Pneumoniae - he told me my symptoms were very classical to many patients of his and gave me a script of 100mg Doxycycline.

Who out there is functional? (Non-Ms'ers)

For the benefit of perspective......I am curious.  We get varied responses on physical reactions to pulses, ABXi, etc.; BUT,  in the big picture, how many of you ( on a day-to-day basis), are still functioning below normal.... or non-functional?   How many are unable to work, drive, take care of the home, cook, etc.?

Some of you speak of your pulses taking you down, but yet have the physical capabilities of going to the gym, carrying out day-to-day activities and working.  (Which, by the way, is fantastic)  This query is in no way meant as an offense to anyone.  

 Since I am unable to do a poll, is anyone willing to share?


How long on CAP:



Physical levels of endurance: 



Time to Add Rifampin?

What started as a severe sinus problem is now in my chest (again).  I am still having debilitating malaise, deep chest coughing, running a low grade fever off and on.  I have been taking Tinii continuously now for a little over a month (as well as Doxyi and Roxi).  I am still doing the neti pot, Mucinex (seems to help), nasal sprays, etc.   I still have what appears to be swelling in the mandibular area of my face.


Out of the fog - again

In my seventh year of CAPi, I am once again emerging from the fog.  It is seventeen months since I began, for the second time, to attempt to climb out of the hideous hell-hole of M.S.

Cesare's struggle with his aching back made me realize that my neck does not have paralysing pain any more.   After months and months of not being able to move my head, then graduating to most-time, then part-time, pain, my neck is very close to normal.   That was my final area of great pain from the abxi going after the involved areas of my body's infection.

Means to enhance absorption of Doxycycline and other means to enhance CAP

As a CAPi for Cpni is to be maintained over many months, the abxi can pose a problem to organs like liver and kidneys, as those are part of the elimination route. Higher doses also carry a higher risk of other side-effects. Hence, enhancing the effect of abx taken is beneficial.

doxy cause insomnia?

I was taking 200mg of doxy daily, all in the morning just out of convenience. Now that my doc upped it to 400mg/daily I've been splitting the dose morning and evening, figuring 400mg in the morning would be too much for my stomach and liver to handle all at once. But since I've starting taking more doxy I haven't had a good night sleep. I don't really have trouble falling asleep because I have a bad habbit of staying up until I'm so tired I can't hold my eyes open. But once asleep I toss and turn and wake up frequently. When I am asleep I'm just on the edge of being awake. I've hardly had any dreams so I know I'm not getting much deep sleep at all. After a week or so of this it's starting to wear on me. I'm dragging all day from lack of good sleep. Has anyone had this problem with doxy?

I have M.S. but its in remission?

Got the results of my latest MRI today.  The radiologist report said that in comparing with the previous MRI (January 2009) there was no change in the number or size of the lesions and as in 2009, none of them were enhancing.  

Every other person I know with M.S. is deteriorating but I'm getting slightly better and the doctors won't believe me that the antibioticsi had anything to do with it (even - as with my neurologist - they ask me specifically whether I have been taking them).  

If there is any downside to the CAPi, it is that without it I would probably be retired on disability by now (and due to a quirk in the way they changed our retirement plan at work, the disability annuity is slightly more generous than regular retirement).   

Doctors in Melbourne, Victoria, Australia ?

Hi all,

I've only recently discovered this information about CPNi.

 I have asthma, it's not particularly severe, but it effects my life and has been getting worse instead of better, despite ever increasing medication dosages.

I went to a doctor about the connections between asthma and CPN and he seemed open to looking into it. I directed him to this site so he could do some reading and went back to him a week later. He didn't seem particularly convinced but agreed to prescribe me some Azithromycin and Doxycycline. The dosages didn't follow any of the recommended treatments but I thought if I tried it out and had a reaction then I could go back.

doxy side effects

My question is this:  how long do I put up with something that's a known side effect in hopes that my illness will improve?  Every time I take doxy I quickly get jock itch and sore throat bad enough that I don't think I can continue.  But I'm very fearful that my asthmai will send me to the ER so it's a real catch 22.

What does anyone else do?




BP and the Sun

Here I am back again with a couple of things I meant to say before.

The first is just a funny coincidence - my blood pressure at my check-up was my weight over my age: 106/70.

The other has nothing to do with our protocol.  It is that next week we are getting solar hot water!  We almost went entirely solar at the beginning but "chickened out" and decided to try this first.  There is a federal tax rebate of 30% and NC has a 35%  tax rebate in addition. 

A few days after our decision, we learned that a very famous dairy goat judge, breeder, and dairy owner is doing the whole thing.   She is in CA and hers is the second largest solar profect in CA.  This is incredibly exciting that all this is happening!


Few things are perfect - my physical was close

It appears that living right can do good things.   And the young coyote is alive and well - she was not euthanized, but instead released, due to a catch-and-release program!

Today was my annual physical, and I passed with high flying colors.  Such adjectives as: phenomenal, amazing, beautiful, and several others were used.  I was told again that my doctor has fully realized that there is a Vit D deficiency across the county - he used the word "epidemic" - where have I heard that before?  Incidentally, mine is again down to 65, so I will increase my intake again from 8,000 to 10,000 for a while.  My level seems to go up or down as my diligence - unwitting or not - ebbs and flows.   

Help! Finished fifth pulse

I finished my fifth pulse on 6/20/10 and didn't feel well when I finished. I had my blood draw on 6/22/10 and the ast went from 21 to 41 and the alt from 50 to 73. My doctor says he cannot continue treatment untill the numbers get better. The funny thing is the bilirubin which has never been in range in a decade 1.6-1.7 is now all of a sudden 0.9 and that doesn't make sense to me. I finally start to get well and... . I need help to understand if this is normal. I had the Doctor repeat the test just now but won't have results for a couple days. I have CFS. Help. I am in Sacramento ,Ca. I understand Dr. Stratton is here. Is that true? Dave

New and asking for help

Hi all

Looking for doctor to treat in Northwest Florida

Looking for doctor to treat in Northwest Florida
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