Charles Stratton

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Main researcher/physician at Vanderbilt University whose fundamental science and research, along with his colleagues, has formulated the combination antibiotic approach to treat Chlamydiae pneumoniae

The Water Less Murky

Hoping to postpone this pulse for a month, I was enjoying my newly resumed "winter schedule" of many fewer hours in the barn and my measured walks.  Well, my body, particularly my legs, said  "No you don't, not yet!".  Yesterday, I took charcoal for the first time in a couple of months (!) but to no avail.  My legs quietly spoke, though did not clamor as in the past, that I would ignore their demands at my peril, or at least my inconvenience.  So, this morning I began pulse number 34, this time pure flagyli.  I can't say I don't have anything against tinii, but being of sounder mind than body at this time, I need what flagyl gives me - physical recovery. 

Pulses 32 and 33 were:

#32 - 5 full days of tini which by day 5 had me rubber-legged though energetic.  My back felt and sounded  like a bag of wooden balls, well-oiled and rattling around as though their job were to make as much noise as possible.    Not at all unpleasant, this was also a curiously clean feeling.  My walking continued to deteriorate in the next week.

flagyl and tini - the ongoing discussion

This was my 33rd pulse  (29 flagyli and 4 tinii)    On Sept 27 Dr R and I began 5 days of tini, each taking 500 mg 2xd.  Dr R has no observable physical changes so I will limit this to my own.  I was able to work all day every day in preparation for the show where we met Ken and Kelly,   All exhibitors must be on site because that is when the youth show is, so we had time to visit.  The next day we arose from our cots by the doe pens at 7am, showed all day, Richard packed up most of our "stuff" (of which there is an astonishing amount), and I drove us home the 200 miles, arriving about 1 am, when we milked and fed  By way of bragging, we went Junior Grand Champion, Senior Grand Champion,  Best Dairy Herd in Show and Premier Breeder.   As expected, my reaction to tini had me increasingly rubber-legged but full of energy.  Folliowing up on my suspicions of previous tini pulses, I began flagyl 8 days after ending tini with amazing results.  Since the State Fair is this coming week-end I abbreviated the flagyl to 3 days, because on the heels of tini I was afraid I would descend too far down the road of weirdness to return  and be able to walk well by then.

Essential Observations by Dr. Charles Stratton on Chlamydia Pneumoniae Infection and Disease

I am very excited to present the following article that summarizes Dr. Stratton's recent observations on Chlamydia pneumoniae infection. Putting it together has contributed greatly to my own understanding of Cpni as well as to my appreciation of Dr. Stratton's generosity with his time, and his great depth of knowledge of this area. Thanks to him for his contribution.

Jim K

Recent observations by Dr

Recent observations by Dr. Charles Strattoni on Chlamydia Pneumoniae (Cpn) Infection

Kryptonite

Recently there was a discussion of NACi and I went back and read the updated page on it.  I doubled my intake of NAC, from 2 to 4 per day, over several days and am thrilled at my reaction!  My energy level has been improving for months, but this was like skipping a floor or two while climbing the stairs (which I can do now, too, without even holding on)   It is not only my energy level, but some reconnections which make no sense yet.   I can feel and control muscle movements that I have not been able to do for literally years.  I am not talking day and night but a very definite giant step toward normality and confidence of ability.  I hope I can persuade Richard to double his this weekend.

All this brings Dr. R into the picture.  He is in the very center of pulse #4.  His bp is literally all over the place - mostly sky-high.  It spiked lately to 160/91!  Before that, for the last few months, it had mostly ranged around 120 - 135/60 - 85.  As needed, he has been back on 1/2 Norvasc - no sense pushing our luck.  His main reaction - nausea - has been replaced by slight zombieness and overall ennui.  Optimist that I am, I am struck once again at the battle this very nasty bug puts up.  If all this well-planned strategy had no effect, I would have to believe that there was no hope for winning.  Now, if only I can talk him into taking more Kryptonite....

An addendum of optimism

This is only an addendum to my blog of 3 days ago.  This is now the 5th day of my 30th pulse.  Everything we have said about being long,  hard, getting worse before we get better, having strength and determination to do what we have to every day just to get to the next day so that we can get to the next day and take more pills,  following a tiresome routine, exercising when we would rather not, eating well when the junk food is so tempting, etc., etc,......is true.  BUT, yesterday I did many goat pedicures, as Joyce calls them, and today, when Dr. R was called away for an emergency c-section (that is, after all, his job) in the middle of milking, I did it.  Then I did my own side of morning jobs, which has shrunk down to a minimum the last few years.   Even as I write this, I am in disbelief that I can do these not easy jobs and still be on flagyli - days 4 and 5!   A few months ago I was still being flattened by the end of day 2 and  staggery after 2 pills. 

Pulse number 30

Yesterday was a REALLY bad day, but today  I have risen to a new level.   This is the 3rd day of my 30th pulse, 3 of tinidazole, but a primary "diet" of 27 of flagyli, which I have learned does not have to be capitalized because it will get you whether of not you pay it obeisance.

After  a seemingly endless series of months (23) of this tortured protocol, I survived yesterday,  even though at times I doubted I would, something ended and I came to the light at the end of a very long  tunnel, and there was no train, but only  sunshine and peace. 

A few months ago I took tini for the first time and after 3 pulses of that my sleep very suddenly became normal, after many months, maybe years, of insomnia, helped by melatonin">i. It may have been coincidental.  I had not needed melatonin for weeks and weeks until night before last when I began this pulse and revisited the land of insomniacs.  There were a bunch of us there.  Today I took my 1st flagyl of the day, 3rd day of my usual 5, and 40 minutes later I was not staggering or even very "weird", as I have always been.  Now, three hours later, fortified by my peanut butter and jelly sandwich on double-fiber whole wheat bread, I am writing this and planning the rest of my day which includes "doing feet", something that never gets finished in a herd of livestock.  The amazing part is that I can think of doing it during a pulse and alone.  It is becoming more and more apparent that there are very sudden shifts (there's that word again) in our progress,  even after 2 years.  Many of us have had them - "Oh, I couldn't do that before!" but I did not expect to have one now.   

Pulse 15

Pulses are growing more tolerable. This is my 3rd four-on/seven-off cycle, and it wasn't too bad. I suspect the doctor will add the fifth day at our next contact.

One thing does concern me, though. Those sooty patches are spreading! I had a longish day on the last day of the pulse -- church in the morning and family activities until 8 pm. (Just a lunch and talk that went on and on: nothing unusual for us.)

We got home and I set the table for dinner, sat down to eat, and had to get right back up -- I thought my hands were dirty. After I washed them again, I looked more carefully, and they had patches the color of the skin around my eyes. It cleared up somewhat as I sat and ate and had a quiet evening.

Then today, two days post-pulse, Dianna noticed a patch on my right shoulder. My hands and face were sooty, too. Just as an experiment, I tried hyperventilating for about 30 seconds, and it worked! I pinked right up! Dianna said my lips pinked up as well. 30 seconds later, I was sooty again. Did it twice, just to be sure.

Schedule on an intermittent therapy

I have been on the protocol for 9 months now.  Before that, I took Mincocycline for a year.  I never experience any strong reactions on this type of treatment and I really don’t know if it has helped or not.  I do experience some very minor changes in my symptoms.  They seem to “shift” to different parts of the body.
Next month, I thought it would be prudent to scale back on the amount of days in using abxi.
Does anyone have any recommendations on the amount and schedule?
 
Thanks

 

Letter to Medical

Since my first attempt at this is floating with the astronauts I will jump right in:   Dr J has watched this mis-adventure from before day 1 and was therefore in a very good position to suggest that he write a letter to either the Med Journal or the board - I really don't remember and it really doesn't matter -  about "us".  He suggested I gather information about "a hundred" of us with MSi about our progress on a scale, length of time,  and maybe meds.  I said "How about 10"?  He said ok.  He suggested not "diluting" it and confining it to MS because that is what he has seen and if we spread it out to other diseasesi it will lose some of its strength.  So anyone who is interested in furthering this attention-getting outcry, please "sign up".

No "Herx-ing" - no metronidazole -

 I was on the Stratton Protocol for cPni from Dec. 1998 - January 2004.  I had chronic fatigue and a multitude of symptoms/illnesses. I am curious in reading now about all of the problems people are encountering with tolerating the various antibioticsi and the "herx-ing" which seems to be so very common.  I am not sure I have read of anyone who didn't have die-off symptoms of some kind, and I believed now, looking back that I might have had a few, but I was not cognizant of it at the time. Are there others?  And if so, I think we need to let people know that this CAN and DOES happen for some people, that you won't feel worse in any way after beginning the protocol, but instead feel gradually better and better.

 My other question is the fact that I never used metronidazolei (I had an allergic reaction the first time I tried it and was told by Dr. S not to continue with that)...and now it seems this is a necessary med to really conquer the cPn.  Yet, I am well. I have been off the meds for 2-1/2 years and feel fantastic.  No residual problems at all.  Has everyone used the flagyl?? I know my friend did and others she knew on the protocol did.  Do we know of others who did not use it and still got well again?

Astrodiana's story: Cure from Chronic Fatigue Syndrome with Dr. Stratton's original protocol

In 1998, just as Dr. Stratton was dismantling his research lab, a client of mine told me about him.  I simply didn't have the strength to even consider it, but she had been on the protocol for almost a year, and was feeling great. I had known her for a few years and I knew that she had terrible brain fog, lack of strength, was completely lacking in energy and unable to function in daily life. This began for her about 10 years earlier in college.   Her Dad is a doctor, and so he had sent her from doctor to doctor of every type imaginable, all his friends and she wasn't getting any help to speak of.  She looked and sounded like a new person when she called and told me about Dr. Stratton’s research with Chlamydia pneumoniae... and she arranged it all for me and got Dr. Stratton to agree to test my blood....I went to my doctor and got the blood draw and had it Fed-ex'd to Dr. Stratton’s lab...three weeks later, I got my results:

Pulse 12 questions.

This was my first time with a four day pulse. We went camping last weekend, and I shouldn't have started it, but I did, and I was a drag to Dianna. Wish I'd held off two days. Perfect hindsight.

Now, it's the third day after, and I have patches of sooty-looking skin around my eyes, under my cheekbones, around my mouth, and at my temples. Does anyone else get this? It seems worse when I am feeling toxic, but I can't hook it to any one symptom. No matter whether it's wobbling, or "crazy legs", or dropping things, or shortness of breath, or brain fog, or just general fatigue; if any of them are bad, I'm sooty.

Dianna sees it before I do, sometimes. Sometimes I'm sooty, but can't really say any particular symptom is troublesome, but I know enough to lie low on those days. If I am sooty, and push, at least one symptom will walk up and announce, "Hi, I'm _____, and I'll be serving you (out) today."

Astrodiana's Remission from CFS/FM in treatment with Dr. Stratton

Diana was one of the last people tested at Vanderbilt before the Cpni lab closed and was evaluated and treated by Dr. Stratton with the help of her local physicians. Her full story is fascinating as it charts a course many of us with CFSi and FM are all too familiar with. She also provides so glimpses into the bigger studies Dr. Stratton participated in suggesting up to 50% of CFS patients may be Cpn related.

Astrodiana has her full story at this link:

http://www.phoenix-cfs.org/Story%20Diana's.htm<

Diana will be condensing this story for this site, but in the mean time I thought you'd like seeing the original missive. 

Dr R and the Ghost Blog

If I were the real thing I would not be a ghost writer but this story must be told and will be as accurately as possible.  

Dr R has now been off of 1 of his 3 bp meds for a week and today his bp was 112/59 - pulse 59.   Even in his deepest sleep and 3 meds I bet it was never close to the highest of the past month or more.    The usual was at about 149/89 - last January, before beginning abxi.  Now it has ranged from 144/84 to 136/75 to 116/69 to 107/65 with the lower range being much more usual.  Today both of us are less tired than in the past week.  I asked him if he knew what that meant, and of couse he said no.  I said "You are following the pattern of the rest of us - this is the third week of the cycle and you are sick, too".  Then I stopped him and looking him straight in the eye, said "Even the most skeptical of you guys will have to think something is happening"    So, we leave in 1 week for the Nationals and I think will "do" tinidazole  instead of flagyli.  This will be #3 pulse for Dr R. Doing flagyl at the Nationals  might be kind of like the astronauts going outside the ship without a tether.

Finding surprises

It finally happened.  After 23 flagyli followed by 3 tinidazole and another flagyl pulse without a break there was no change at all that I could tell.  So the 3 weeks went by and I began my next flagyl and the 3rd day my walking was close to where it had been months ago.  I did not know if I had lost precious ground from switching to tini or it was working silently.  I may have been looking in the wrong place:  my sleep is deep and delicious with no melatonin">i  for a month.    I am now in the midst of my 27th flagyl and barely notice it - incredible.    So probably tini was doing behind the scenes work but the physical side was unchanged with no improvement at all for me.  Maybe the neurological  problems will respond to it for some or beginning with tini is gentler.  Certainly flagyl was brutal for me at times but also for me that time seems to be OVER!  My time for shouting that from the tops of tall buildings and trees may be here.  I hope that my walking will  continue to get better but my energy level is pretty good and the Nationals are looming.
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