Charles Stratton

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Main researcher/physician at Vanderbilt University whose fundamental science and research, along with his colleagues, has formulated the combination antibiotic approach to treat Chlamydiae pneumoniae

From Here to There

Yesterday I had my several-times-a-year checkup. My doctor is ecstatic over my progress. He has been pleased almost since the beginning, but is now even more delighted.  

Here an inch, there an inch, after while a mile

It is a very long time since I wrote a blog, so please forgive me if it is a ramble. As MacKintosh says, many of us have moved back into real life. I certainly have. But there is so much need here on this incredible site that those of us who have had so much returned to us have a real obligation to try to give encouragement to those who are struggling with this horror. 

Decorum on a Forum

 

Decorum on a Forum

I have been reflecting on this topic for some time as I participate on this site. (I have been a member here since 2007.)  Some activity over the last several months, and as of late, prompts me to express my feelings here in my blog

We are a diverse group and come here to participate for many different reasons - some out fear, some to confirm their sanity, others frustration with doctors, others to find support, and to ask questions.  This IS the ONLY dedicated CPNi support site.   It was my lifeline when I was so very, very ill and still is one of the few places one can go to have comrades who understand what this process is about.   

some questions

Hi There!

My last entry is quite long ago and as i have some questions too its time for an update.

first the good news: my scrotal pain improoved quite well but still gets worse sometimes while pulsing or after walking to much. right after pulses it gets better mostly. 

my older symptoms are more or less the same though (ibsi-b (with sibo and consequently malabsorbption and low weight), cfsi , light fibro,chest pain, very cold limbs ).

the ibs eventhough taking probiotics even got a little worse i think. im a bit affraid the abxi are messing up my gut flora too much.

My CAP proscribing physician has retired, seeking recommendations for AZ, CA or WA preferably but others considered

After 10 months on the Stratton version of the protocol there are definitely signs of improvement, sadly my prescribing physician (rheumatologist) has retired and moved out of state so I need to find a replacement.

Out of the fog - again

In my seventh year of CAPi, I am once again emerging from the fog.  It is seventeen months since I began, for the second time, to attempt to climb out of the hideous hell-hole of M.S.

Cesare's struggle with his aching back made me realize that my neck does not have paralysing pain any more.   After months and months of not being able to move my head, then graduating to most-time, then part-time, pain, my neck is very close to normal.   That was my final area of great pain from the abxi going after the involved areas of my body's infection.

BP and the Sun

Here I am back again with a couple of things I meant to say before.

The first is just a funny coincidence - my blood pressure at my check-up was my weight over my age: 106/70.

The other has nothing to do with our protocol.  It is that next week we are getting solar hot water!  We almost went entirely solar at the beginning but "chickened out" and decided to try this first.  There is a federal tax rebate of 30% and NC has a 35%  tax rebate in addition. 

A few days after our decision, we learned that a very famous dairy goat judge, breeder, and dairy owner is doing the whole thing.   She is in CA and hers is the second largest solar profect in CA.  This is incredibly exciting that all this is happening!

Rica

Few things are perfect - my physical was close

It appears that living right can do good things.   And the young coyote is alive and well - she was not euthanized, but instead released, due to a catch-and-release program!

Today was my annual physical, and I passed with high flying colors.  Such adjectives as: phenomenal, amazing, beautiful, and several others were used.  I was told again that my doctor has fully realized that there is a Vit D deficiency across the county - he used the word "epidemic" - where have I heard that before?  Incidentally, mine is again down to 65, so I will increase my intake again from 8,000 to 10,000 for a while.  My level seems to go up or down as my diligence - unwitting or not - ebbs and flows.   

looking for a doctor

Hi am looking for a doctor in New York who could administer Dr Strattons protocol.

 

Any list?

 

eve

recovery?

About 6 - 7 weeks ago, my ability to walk more then 10 feet went out the window. I can't stand for long, can do much of anything that requires leg stamina to do. So I'm here to ask for me and anyone else who might run into this problem, what can I do to remedy the problem. Is there anything or is it just a case where I'm out of luck? Now don't get me wrong, I know there is no magic cure out there. I just wonder what people have done with this sort of problem and whether it might help me to regain some of what I've lost? Thanks!

The persistent tortoise

This is a very short blog about a tortoise in the slow lane. For many years (how does this happen? - we shouldn't blink!) I had a solitary discussion about arthritis:

(1) I was getting very old very fast. (I was 55) and everything hurt.

(2) My hips are in agony.

(3) My fingers and shoulders hurt all the time.

(4) My neck is so stiff that I can't turn my head.   It hurts even when I don't try to turn it.

Most of my joint pain went away while I was "sleeping" that first couple of years. Then my hips were incredibly painful during walking - then it went away. My finger joints were worked on one at a time and have slowly stopped hurting, though still have  some residual swelling, probably permanent, which I accept.

Books and a Movie

Many times I read for the great pleasure gained and to satisfy my curiousity, but I discovered Greg Mortenson, Three cups of Tea, and now Stones into Schools. Along with wishing the Nobel Prize for Medicine for our cpni crew, I wish the Nobel Peace Prize for Greg Mortenson. And I am hardly ever much affected by movies, but last night we saw "Seven Pounds", with Will Smith, and will probably be affected for the rest of my life.

As for my own cpn protocol against PPMSi, I still chip away daily with my five abxi plus caffeine. We all tweak and listen and tweak some more, but I seem to have stumbled on a tight turn of the screw, thanks to John (farandwide) and Paul.

Whatever is Required

We spoke to Dr S just now.  He was approving of my going back on flagyli, and, because of nausea, cutting back on caffeine. 

A couple of interesting and heartening bits came of the conversation.  One is that I will continue with this protocol for another three months and call him again, sooner if there is news either way - worse or better - because I still react.  But... my daily reaction is nowhere near five years and four months ago.  For example, today is Azithromycin day - and Doxyi, Rifampin. Amoxycillin, flagyl, and caffeine. 

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