Day 2 of pulse 24.  Nothing remarkable to report, the pulse is going much the same as most of  my prior pulses have gone.  I have a bit of heaviness and burning in my legs but otherwise feel about the same as I did before the pulse.  This being the second day, that could easily change come Monday when the work week begins again, as does my work schedule.

I stopped INHi about three weeks ago and have been having less inflammationi.  What I had before made it really difficult to function on some days, I just wasn't able to get around the way I was before INH and since getting off of it.  I think the combination of abxi was just too much.  I even did two pulses while on continuous INH.  Better to scale back a bit.

Okay, I finished my 23rd pulse on Friday and then just did the regular daily medications over the weekend.  Perhaps I should say regular weekend medications as my last dose of azithromycin was Friday.  In any case, I thought I would recap some things I noticed during the pulse and things I've noticed over the weekend.

What I've noticed is not any improvements in my symptoms...unless you consider having more pain and discomfort an improvement.  Pain...that's a relative term.  It's more like inflamation and soreness then pain per se.  Hard to describe how it feels but I think many of you know what I'm referring to - a hotness in one's extremities (my legs mostly). 

Yes, it has been seven months since I began taking Rifampin although it seems more like eight.  It's entirely possible my count is off, it's not terribly important that it would be off by one.  In any case, I'm now on the most intensive CAPi I've ever been on.  I'm now taking Doxyi, Azi, INHi, Flagyli, and Rifampin, along with NACi all at the same time this week.  I started my 23rd pulse on Sunday night, a day and a half later then I generally try to schedule the start day/time (Saturday mornings).

Hi to all!

I got the biaxin receipt yesterday from my doc and start with it! Instead of Azi.

Do you all take the biaxin and the doxyii at the same time together?

And below is the product I ordered.

Is calcium pyruvate the right one? There are other pyruvates as well.

I am switching to the new protocol. I read where it says to check the titres for cpni in the blood. My husband and I tested positive he for iggi and igm me for just igm. I don't understand how you can use this as a guideline. I never test positive unless it is after a pulse. Dr. W also states that negative titres mean little. Any help here?

Emerging Stratton Protocol 4/2008: a new approach to an old set of problems

Reported by Jim K

Zdenicka, as you will see, is a spirited, passionate and stubborn young woman. Her story is very heartening to read, and she holds nothing back in speaking of the trials of dealing with standardized medical treatment with a non-standard condition and protocol. Fortunately, her father Coufal was an early member here and started the Czech version of Cpnhelp, so she had an avenue to find her own help. I've left her very thorough description as she has written it, an amazing job for a non-native English speaker, so that I don't sully the pure charm in her rendition. (Jim K, Editor)

I'm into my fourth day of a 5 day pulse. I forget what count this is, maybe the 22nd or 23rd? I know that April signified my official 2 year anniversary since starting the CAPi with NACi and Doxyi, way back when.  And here I still am, no better then when I began and sometimes worse.

Now, that being said, I haven't given up on anything.  I think that maybe I'm just starting to really figure things out about the CAP and how it can work for me.  What I mean by that is this...

Up until recently, I've been going through the motions, being very diligent to take NAC and abxi on a set schedule.  I still am; however, now I think I've found something in myself that I wasn't aware of before, a reaction I wasn't noticing.

Six days after surgery for double mastectomy in Jan, 08, I "did a pulse", thinking since I would be out of action for a while, I wouldn't waste time doing nothing. Boy, did I get the pot stirred! I think all the flagyli went straight to the surgical site - and I understand that cpni bugs are found in cancer cells. I don't know if this is common, but maybe the experts can comment. In my last blog I mentioned that I am the third known case on our site of this kind of cancer (DCIS or a close cousin), and have since learned of at least three other stage four cancer cases of close friends or relatives of members.

With Springtime finally here and things going so well for me I thought it was about time for an update. Since the inclusion of Prilosec OTC and Calcium Pyruvate six weeks ago I have improved tremendously! I also added in Inositol and Ribose, and have doubled the Norwegian fish oil caps to support my nervous system while I discontinue antidepressants. I am still waiting for the other shoe to drop but here are the changes: 1. Able to successfully discontinue Wellbutrin XL 2. Able to tolerate Flagyli pulses now [timely and full dose] 3. Able to tolerate 600mg NACi daily[first time since I began CAP] 4. Beginning to gradually reduce Zoloft and Trazadone 5. No more strep-throat type neck aches, etc 6. Previously chronic low grade temp. is now a RARE event

Hi

Can anyone tell me which doctors in the UK will administer the Wheldon or Stratton protocol? I know one in the North of the UK (Dr AW) but are there any others. If you want to send me the details by e-mail that would be great.

Thanks

Dar

Attachment of Stratton 05 patent 6,756,369

I've been in email contact with Dr Neil Abbot of ME Research UK (UK charity run ME research body www.meresearch.org.uk )

I was wanting to send him the Stratton patents.  Of the 3 on this page :-

http://www.cpnhelp.org/mitchell_stratton_patent_

which would be the best one to send him?

FYI the main research that they do, is looking for the genetic markers of people with M.E/CFSi

They have also done some research into irregularities of cell apoptosisi in people with CFS.  I told him that cpn prevents cell apoptosis.

Thanks,

Mark

Yes, I broke into my stash of INHi from last fall and took my very first dose of INH tonight with my second dose of Rifampin for the day, hence the Rifampinianaut. Isoniazid is the full name of INH and I just couldn't bring myself to label myself the Rifampiniazid. Of course, if one want's to be completely accurate, I would have to also work in Doxycycline, Azithromyocin, N-Acetyl Cysteine, and Metronidazolei. Hmmm....the Metroxyzithricetylfampiniazid, lol!!! O-kee, D'O-kee, I think not, lol

Hi,

Paula wanted me to ring a local talk show about the links between M.E/CFSi and cpni.  The show is Metroi Radio and the host is Alan Robson.

Paula is concerned about the number of people with severe M.E. who are unable to use the internet and wanted me to talk about this site, just to give some people some hope.

I was on the show for 33 minutes.  It started out pretty well, especially when I talked about Paula's history of M.E.

Problems started because of his ignorance.  He may have been playing devil's advocate, but he seemed to believe that CFS is caused by depression.  He even quoted a nurse who contacts the show regularly and says that it is caused by depression.