David Wheldon

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British physician who has created a combination antibiotic protocol for Cpn based on Vanderbilt/Stratton work.

Doing things by halves

Well here I am again but this time on the brink of the first pulse.

I just took my jaunt over to the Pharmacist. After the last debacle I was a bit of a coward and took this scrip to another branch of the same group which is smaller so I figured that there'd be less people to get embarrassed in front of.

As it turned out, when I arrived it was empty so I didn't have to adopt the disguise but I did have a chance to have a long chat with the Pharmacist. What a nice man.

Bits are dropping off

Well end of week 8 and this seems to be doing nothing for my brain. I'm still completely ditzy and yesterday Forumed when I should have Blogged.

Energy levels are odd. Some things I can do with great gusto, others have me puffing and panting like an old boiler. For example, Saturday evening I was running a gig in Bedford. It's at a club on the 3rd floor of a building and there's no lift. (3rd floor UK... 2nd floor US).

Chronicles of a Rifampinaut: Pulse 24

Day 2 of pulse 24.  Nothing remarkable to report, the pulse is going much the same as most of  my prior pulses have gone.  I have a bit of heaviness and burning in my legs but otherwise feel about the same as I did before the pulse.  This being the second day, that could easily change come Monday when the work week begins again, as does my work schedule.

I stopped INHi about three weeks ago and have been having less inflammationi.  What I had before made it really difficult to function on some days, I just wasn't able to get around the way I was before INH and since getting off of it.  I think the combination of abxi was just too much.  I even did two pulses while on continuous INH.  Better to scale back a bit.

Something's missing

OK you loony pill poppers, I have a question.

Anyone else experiencing faster nail growth on CAPi? I seem to be cutting both finger and toe nails far more frequently than before.

The other weird thing is my armpits have gone bald. Not that I'm complaining, I hate having to shave them but we're off out tonight so I hopped in the bath and pulled out the razor, directed armpit toward mirror and...

rubbed eyes, looked closer. Rubbed mirror. Went and got glasses. Peered again. Checked other armpit...

Nothing.

Now I've never had a huge pile of undergrowth there but I did at least have some. 

Ow ow ow ow and more ow!

Oooops, missed a week, slapped wrist.

End of week 7.

Week 6 shot past in a blur as I was so busy. I guess that says a lot as I was actually able to be busy and not constantly get bugged by the MSy shakes.

Week 7 I've been just as busy and week 8 gets worse as I'm busier, however, I've had a couple of reminders that I'm not 100% over the last few days.

Number 5 is alive!

Five weeks down, ??? more to go and this week I've actually been feeling really good. The eyelid flicker has decreased since I increased the CQ10.

I've spent most of the week gardening. Done a lot of heavy digging and sack dragging and I hardly experienced any left side weakness. Once or twice whilst trying to stomp the shovel into a particularly recalcitrant patch of earth I noticed a reluctance from my leg to provide the necessary force but other than that, fine.

I had been expecting problems as last weekend I ran out of NACi and my new supply didn't turn up until Thursday. As soon as I started taking it again, back came the sinus headaches so I suspect my previous euphoria was NACless related. Still feeling fairly energetic though so onwards and upwards.

Testing, Doctors and self treating

Forgive me if this information is covered somewhere else but I have not been able to find it. I have CFSi/ME/Fibro and am desperate to find somewhere to get tested for mycoplasma and someone to treat me.

I can not find a clinic in the UK where Dr Wheldon works. Does he only treat MSi patients? Does he have a contact email? Does he recommend other practitioners?

Can anyone tell me how I can get testing done in Europe? I am from the UK but live in Switzerland. I am soon to be moving to Belgium!

If people can not find a Doctor to help them, do you self treat?

It feels like there is a carrot being dangled in front of me that I can't reach.

I already have to self treat for heavy metal poisoning but it would be so nice to have a bit of help.

post pulse 23

Okay, I finished my 23rd pulse on Friday and then just did the regular daily medications over the weekend.  Perhaps I should say regular weekend medications as my last dose of azithromycin was Friday.  In any case, I thought I would recap some things I noticed during the pulse and things I've noticed over the weekend.

What I've noticed is not any improvements in my symptoms...unless you consider having more pain and discomfort an improvement.  Pain...that's a relative term.  It's more like inflamation and soreness then pain per se.  Hard to describe how it feels but I think many of you know what I'm referring to - a hotness in one's extremities (my legs mostly). 

Let's Twitch Again

I'm feeling a bit like a 1960s pop hit at the moment. Four weeks in on CAPi, two weeks on Zithi and all is going fine....... except for the twitch. It's my right eyelid and it's annoying. Actually, annoying isn't the half of it, it's driving me nuts.

I've had something like it before when I'm over tired but this is nothing to do with lack of sleep; since I've had the Melatonin">i I sleep like a log. I'm pretty sure this is to do with CAP. It's the same eye as I had the worst of the Nystagmus in before I was diagnosed with MSi.

Chronicles of a Rifampinaut: the Seventh Inning Stretch

Yes, it has been seven months since I began taking Rifampin although it seems more like eight.  It's entirely possible my count is off, it's not terribly important that it would be off by one.  In any case, I'm now on the most intensive CAPi I've ever been on.  I'm now taking Doxyi, Azi, INHi, Flagyli, and Rifampin, along with NACi all at the same time this week.  I started my 23rd pulse on Sunday night, a day and a half later then I generally try to schedule the start day/time (Saturday mornings).

903 pills down, 30,000 to go

Well that was daft, and amazing. I worked out how many pills I'd taken since starting CAPi. 903! Then I worked out how many more I'll take if I'm on the same stuff for two more years. Over 30k! Seems impossible but given I've already taken 903 without too much hassle then I suspect the rest will go down just as easily.

I figured I could start a countdown calendar or do one of those songs......

31,390 pills on the wall

31,390 pills

chuck 43 down, swill them around

31,347 pills on the wall

 

Anyway, after 903 pills, and first full week of Zithi, results?

Onwards and..... onwards?

Well that's week 2 done. 200mg of Doxyi and all the expected horrors really haven't happened. YAY ME!

I've had no gastric problems at all since I developed the morning biscuit and oils routine I mentioned in my last post but I have noticed I was putting on a bit of weight. This is a me thing. I've always avoided breakfast as I found it piled the pounds on so the biscuits had to go. I'm now having a fruit feast. Somebody recommended a goat but I couldn't possibly eat a whole one. Wink

Turning into a puddle

OK, day 4 of 200mg Doxyi and it's going great but today I've had the sinus headache all day and I'm sweating buckets and peeing for England. I also seem to be a bit bloated. I know the weather has warmed up but by heck, if it's like this now what happens when summer finally gets here?

I'm taking all the supps and chlorella, probiotics etc. am I missing anything?

Question 2.

Has anyone ever checked out the calorific value of all these supplementsi? I seem to be putting on weight and as I spent some considerable time losing 21lbs I'd rather not get it back again. 

 

Week 1 done and dusted

Well I thought I'd update this at the end of one week of Doxyi at 100mg. There's really not an awful lot to write home about so far but I figured it was worth posting so that there is a balance to all those who get completely clobbered and people who also get little reaction don't think they're a hopeless case.

I've had no problems. No nausea, nothing. I have noticed a couple of changes though.

A Young Woman Comes Back to Life: Zdenicka's Story

Zdenicka, as you will see, is a spirited, passionate and stubborn young woman. Her story is very heartening to read, and she holds nothing back in speaking of the trials of dealing with standardized medical treatment with a non-standard condition and protocol. Fortunately, her father Coufal was an early member here and started the Czech version of Cpnhelp, so she had an avenue to find her own help. I've left her very thorough description as she has written it, an amazing job for a non-native English speaker, so that I don't sully the pure charm in her rendition. (Jim K, Editor)

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