Well that was daft, and amazing. I worked out how many pills I'd taken since starting CAPi. 903! Then I worked out how many more I'll take if I'm on the same stuff for two more years. Over 30k! Seems impossible but given I've already taken 903 without too much hassle then I suspect the rest will go down just as easily.

I figured I could start a countdown calendar or do one of those songs......

31,390 pills on the wall

31,390 pills

chuck 43 down, swill them around

31,347 pills on the wall

Anyway, after 903 pills, and first full week of Zithi, results?

Well that's week 2 done. 200mg of Doxyi and all the expected horrors really haven't happened. YAY ME!

I've had no gastric problems at all since I developed the morning biscuit and oils routine I mentioned in my last post but I have noticed I was putting on a bit of weight. This is a me thing. I've always avoided breakfast as I found it piled the pounds on so the biscuits had to go. I'm now having a fruit feast. Somebody recommended a goat but I couldn't possibly eat a whole one.

OK, day 4 of 200mg Doxyi and it's going great but today I've had the sinus headache all day and I'm sweating buckets and peeing for England. I also seem to be a bit bloated. I know the weather has warmed up but by heck, if it's like this now what happens when summer finally gets here?

I'm taking all the supps and chlorella, probiotics etc. am I missing anything?

Question 2.

Has anyone ever checked out the calorific value of all these supplementsii? I seem to be putting on weight and as I spent some considerable time losing 21lbs I'd rather not get it back again. 

Well I thought I'd update this at the end of one week of Doxyi at 100mg. There's really not an awful lot to write home about so far but I figured it was worth posting so that there is a balance to all those who get completely clobbered and people who also get little reaction don't think they're a hopeless case.

I've had no problems. No nausea, nothing. I have noticed a couple of changes though.

Zdenicka, as you will see, is a spirited, passionate and stubborn young woman. Her story is very heartening to read, and she holds nothing back in speaking of the trials of dealing with standardized medical treatment with a non-standard condition and protocol. Fortunately, her father Coufal was an early member here and started the Czech version of Cpnhelp, so she had an avenue to find her own help. I've left her very thorough description as she has written it, an amazing job for a non-native English speaker, so that I don't sully the pure charm in her rendition. (Jim K, Editor)

I'm into my fourth day of a 5 day pulse. I forget what count this is, maybe the 22nd or 23rd? I know that April signified my official 2 year anniversary since starting the CAPi with NACi and Doxyi, way back when.  And here I still am, no better then when I began and sometimes worse.

Now, that being said, I haven't given up on anything.  I think that maybe I'm just starting to really figure things out about the CAP and how it can work for me.  What I mean by that is this...

Up until recently, I've been going through the motions, being very diligent to take NAC and abxii on a set schedule.  I still am; however, now I think I've found something in myself that I wasn't aware of before, a reaction I wasn't noticing.

Six days after surgery for double mastectomy in Jan, 08, I "did a pulse", thinking since I would be out of action for a while, I wouldn't waste time doing nothing. Boy, did I get the pot stirred! I think all the flagyli went straight to the surgical site - and I understand that cpni bugs are found in cancer cells. I don't know if this is common, but maybe the experts can comment. In my last blog I mentioned that I am the third known case on our site of this kind of cancer (DCIS or a close cousin), and have since learned of at least three other stage four cancer cases of close friends or relatives of members.

With Springtime finally here and things going so well for me I thought it was about time for an update.

Since the inclusion of Prilosec OTC and Calcium Pyruvate six weeks ago I have improved tremendously! I also added in Inositol and Ribose, and have doubled the Norwegian fish oil caps to support my nervous system while I discontinue antidepressants. I am still waiting for the other shoe to drop but here are the changes:

1. Able to successfully discontinue Wellbutrin XL
2. Able to tolerate Flagyli pulses now [timely and full dose]
3. Able to tolerate 600mg NACi daily[first time since I began CAPi]
4. Beginning to gradually reduce Zoloft and Trazadone
5. No more strep-throat type neck aches, etc
6. Previously chronic low grade temp. is now a RARE event

I've been in email contact with Dr Neil Abbot of ME Research UK (UK charity run ME research body www.meresearch.org.uk )

I was wanting to send him the Stratton patents.  Of the 3 on this page :-

http://www.cpnhelp.org/mitchell_stratton_patent_

which would be the best one to send him?

FYI the main research that they do, is looking for the genetic markers of people with M.E/CFSi

They have also done some research into irregularities of cell apoptosisi in people with CFS.  I told him that cpni prevents cell apoptosis.

Thanks,

Mark

Yes, I broke into my stash of INHi from last fall and took my very first dose of INH tonight with my second dose of Rifampin for the day, hence the Rifampinianaut. Isoniazid is the full name of INH and I just couldn't bring myself to label myself the Rifampiniazid. Of course, if one want's to be completely accurate, I would have to also work in Doxycyclinei, Azithromyocin, N-Acetyl Cysteine, and Metronidazolei. Hmmm....the Metroxyzithricetylfampiniazid, lol!!! O-kee, D'O-kee, I think not, lol

Hi,

Paula wanted me to ring a local talk show about the links between M.E/CFSi and cpni.  The show is Metroi Radio and the host is Alan Robson.

Paula is concerned about the number of people with severe M.E. who are unable to use the internet and wanted me to talk about this site, just to give some people some hope.

I was on the show for 33 minutes.  It started out pretty well, especially when I talked about Paula's history of M.E.

Problems started because of his ignorance.  He may have been playing devil's advocate, but he seemed to believe that CFS is caused by depression.  He even quoted a nurse who contacts the show regularly and says that it is caused by depression.

It's been a long time since I've been around on the site but decided today to write something, so that I could record where things are and have it to refer to in the future.  I'm sad to say that I'm no better off now then I was 4 months ago, at least as far as I can tell.  There are brief periods where I feel really good but that's nothing new, I've had that since before starting the CAPi almost 2 years ago. 

However, I do have to recognize that I'm still relatively early in the use of Rifampin, having started it in late August.  I'm on the end o my 7th month of using it.   Well, maybe early isn't the right term but I don't have a darth of experience with it although that's in process.

has anyone had a diagnosis of chronic strep? If so what treatments/protocolsi were you treated with.

I am now into my 7th pulse and it is going very well. Slight stomach unsettling, but not much.

It is really amazing how much energy I have. My wife said last night that she keeps marvelling at how well I look, and this is even though I am spending long hours at my computer. I have really moved on from the intense fatigue I experienced at the outset of this program, I also seemed to have lost my huge appetite for sweets (I have stopped buying them). So I feel that I have really progressed well.