Since January 11, 2009, I have been off of all anbiotics except for one series of intermittent, to which I had no reaction. This is all so amazing, extending into the rhelm of the unreal - yet I am here, working hard every day, doing much of what I would like to - the main reason I can't do more being that there are only 24 hours in the day.

Well this is weird. I've been happily sailing along on the Wheldon Protocol. No major issues for a year. I got the nausea to start off with but found ways round that. Got the sun issues from the Doxyⁱ, don't know whether that's now in the past as we've not had much in the way of sun.

However, with this latest pulse I'm suddenly getting stomach spasms. It only happens at night and only if I'm lying on my right hand side. If I roll onto my left side it stops. It's exactly like having one of those electric exercise machines on that cause your muscles to contract.

I don't get them during the day at all, possibly because I don't lay on my right side in the normal run of things, it's a bit difficult to work like that.

Treatment Overview on March 11, 2009;

Diagnostic Evaluation May 24, 2007. Chronic Fatigue Sydrome - Progressive onset - 20 to 30 years to overwhelming fatigue, Fibromyalgiaⁱ, Mild Form.  C.Pn. positive by Lab test result > 1:512,  Bb positive by Lab test Western Blot after doxycycline taken for 3 -4 weeks for CPnⁱ, Borrelia Burgdorferi (Lyme Disease) was revealed as positve on Western Blot late July 2007.

Started CAProtocol 6-21-07 with Doxycycline, N-A-C and all supplementsⁱ,  CAP Progressed on 10-31-07 Macrolide-added, progressed 11-22-07 Tinidazole-added and also Cholestyramine HS PRN x 7d starting day 3 - 4 of pulse and continuing for +/- 7 days.

How embarassed am I? I just realised how long it's been since I was on here. Yikes.

I've been feeling so well and I've been so busy that time has just flown by, or is that the brain fog getting worse?

Well updates I suppose. One year on from diagnosis and I haven't had any relapses. I thought I was having one at Christmas but it turned out to be some ghastly virus as the OH got it as well.

Hi All

I'm about to start month 6 of the DW protocol as a CPnⁱ treatment.  I have previously had a RRMSⁱ diagnosis and am taking Doxyⁱ 2 x 100mg daily. Azith 1 x 250mg Mon/Wed/ Fri, Metronidazoleⁱ 2 x 400mg 7 days every 4th week, NACⁱ & Supplementsⁱ. 

I would like to substitue the Doxy for a non-photosensitive antibiotic (with tthe summer months coming up) and am wondering which ABXⁱ at what dosage, if any, is the best alternative to Doxy in terms of providing the same mechanism alongside the Azithromycin and Metronidazole.

Could anybody make any suggestions, please?

Thanks
Dan

Intermittant Thereapy~~~ There recently have been quite a few who have gone to intermittant therapy (hurray!).  I know in recent discussions comments are made "to refer back to their individual posts" to see what that consists of.  It is difficult sometimes to query this site for such specific information re each member.  

It's been  while since I've posted or really spent much time here.  I don't know why exactly, just have had other things occupying my mind and time.  Even so, I thought I would post how things have gone these last 2 or 3 months, or some short blurb about it.

Both pulse 29 and 30 went better then earlier pulses.  I suspect the reasons are because I started using a gel capⁱ to enclose the dose of Flagylⁱ and I've been becoming aclimated to the greater dosage amount then I had been last summer.  And of course, each pulse knocks the CB load down more so there's always that.

I have lived in Japan for two years now - my plans for coming were set before my diagnosis. I began Rebif while in America, but it proved to be an expensive monthly hassle to get across the ocean and through customs. I soon switched to the BBD Diet, but after a major relapse about six months ago I began looking for something else.

After my big relapse I began looking for a neurologist who would be willing to help me begin the Wheldon protocol. Reading of the many roadblocks set before those with the disease in MS-prevalent countries, my hopes of finding an open-minded doctor in Japan were slim at best.

hi

Dec 24, 2008 marks the completion of my 18th month of treatment.  I am antibody positive for CPnⁱ and Bb.  I started treatment on bacteriocidal level of Doxycycline 400 mg/day for almost 4 months before cutting back to 100 mg BID and adding Roxithromycin 150mg BIDⁱ daily.  Those first 4 months were incapacitating and perhaps advantagious it is water under the bridge and I would not recommend it to others.