David Wheldon
Submitted by Jim K on Sat, 2005-09-17 19:56.
The Tunnel of IllnessI want to update my story on the front end so readers know even before reading the "agony post" how much benefit I've gotten from the treatment. It is August 26th, 2006. Coming up on two years I've been on the Combined Antibiotic Protocol (CAPi) for Chlamydia pneumoniae (Cpni). A recent forum poster asked if anyone with CFSi has improved on the CAP. My response: Damned right I'm getting better!When I started the CAP I was in a 2 year slide after 25 years of CFS, then added FMSi. For many years I'd struggled and somehow maintained a semblance of a life. Then over 2 years my pain, brain fog, restricted functioning, etc. slid to a point where I had to stop traveling and could for the first time see the possibility that I would become bedridden eventually.
Submitted by katman on Wed, 2010-07-28 14:11.
Here I am back again with a couple of things I meant to say before. The first is just a funny coincidence - my blood pressure at my check-up was my weight over my age: 106/70. The other has nothing to do with our protocol. It is that next week we are getting solar hot water! We almost went entirely solar at the beginning but "chickened out" and decided to try this first. There is a federal tax rebate of 30% and NC has a 35% tax rebate in addition. A few days after our decision, we learned that a very famous dairy goat judge, breeder, and dairy owner is doing the whole thing. She is in CA and hers is the second largest solar profect in CA. This is incredibly exciting that all this is happening! Rica
Submitted by katman on Mon, 2010-07-26 14:24.
It appears that living right can do good things. And the young coyote is alive and well - she was not euthanized, but instead released, due to a catch-and-release program! Today was my annual physical, and I passed with high flying colors. Such adjectives as: phenomenal, amazing, beautiful, and several others were used. I was told again that my doctor has fully realized that there is a Vit D deficiency across the county - he used the word "epidemic" - where have I heard that before? Incidentally, mine is again down to 65, so I will increase my intake again from 8,000 to 10,000 for a while. My level seems to go up or down as my diligence - unwitting or not - ebbs and flows.
Submitted by MunchMan on Wed, 2010-06-16 14:33.
Hello Everyone, Ohhh where do I begin???
Submitted by farandwide on Mon, 2010-05-03 09:09.
About 6 - 7 weeks ago, my ability to walk more then 10 feet went out the window. I can't stand for long, can do much of anything that requires leg stamina to do. So I'm here to ask for me and anyone else who might run into this problem, what can I do to remedy the problem. Is there anything or is it just a case where I'm out of luck?
Now don't get me wrong, I know there is no magic cure out there. I just wonder what people have done with this sort of problem and whether it might help me to regain some of what I've lost? Thanks!
Submitted by Miying Meng on Sun, 2010-04-25 21:14.
2010 March - April Update Pulse date: Mar. 29th - Apr. 2nd. I finally did my first 5 day tinidazole pulse since July 2009. But first a refresher with a bit of my pulse history follows:
Submitted by katman on Wed, 2010-03-03 11:42.
This is a very short blog about a tortoise in the slow lane. For many years (how does this happen? - we shouldn't blink!) I had a solitary discussion about arthritis: (1) I was getting very old very fast. (I was 55) and everything hurt. (2) My hips are in agony. (3) My fingers and shoulders hurt all the time. (4) My neck is so stiff that I can't turn my head. It hurts even when I don't try to turn it. Most of my joint pain went away while I was "sleeping" that first couple of years. Then my hips were incredibly painful during walking - then it went away. My finger joints were worked on one at a time and have slowly stopped hurting, though still have some residual swelling, probably permanent, which I accept.
Submitted by katman on Sun, 2010-02-07 11:28.
Many times I read for the great pleasure gained and to satisfy my curiousity, but I discovered Greg Mortenson, Three cups of Tea, and now Stones into Schools. Along with wishing the Nobel Prize for Medicine for our cpni crew, I wish the Nobel Peace Prize for Greg Mortenson. And I am hardly ever much affected by movies, but last night we saw "Seven Pounds", with Will Smith, and will probably be affected for the rest of my life. As for my own cpn protocol against PPMSi, I still chip away daily with my five abxi plus caffeine. We all tweak and listen and tweak some more, but I seem to have stumbled on a tight turn of the screw, thanks to John (farandwide) and Paul.
Submitted by katman on Wed, 2010-01-20 14:03.
We spoke to Dr S just now. He was approving of my going back on flagyli, and, because of nausea, cutting back on caffeine. A couple of interesting and heartening bits came of the conversation. One is that I will continue with this protocol for another three months and call him again, sooner if there is news either way - worse or better - because I still react. But... my daily reaction is nowhere near five years and four months ago. For example, today is Azithromycin day - and Doxyi, Rifampin. Amoxycillin, flagyl, and caffeine.
Submitted by katman on Thu, 2010-01-14 11:54.
On rereading last week's blog, I am amazed at what I wrote about flagyli and not taking it. Sometimes I guess I am not as "with-it" as I believe. In May, Richard spoke to Dr. S., who put me on the usual: Doxyi, 200mg; Azithromycin, 250MWF; Rifampin, 600mg; flagyl, 1000: (these I had been on till I stopped everything on Jan 11, 2009); and then ADDED Amoxicillini 1000. I did this without fail for six months and then we called him again. But I was STILL reacting! Aaarrrgg!! He then left all abxi the same, with the exception of flagyl, which he replaced with caffeine pills.
Submitted by katman on Wed, 2009-11-25 11:44.
My six months of constant flagyli are over and I have survived it. Not only have I survived it, I have greatly benefitted from it.
Submitted by Louise on Tue, 2009-10-06 13:31.
CAPi month 28 Update, Progressed to Intermittent Cycles After 20 months on WheldonCAP I went on intermittent. My MD has chosen not to order trepeat labs for the CPnii and co-infectionsii or viruses, of which I had all of these done before the starting any abxii therapy.
Submitted by Malcolm on Wed, 2009-08-26 08:46.
Hi Guys, it has been a while since I last posted. So as an update.... I was diagnosed with Multiple Sclerosis in Aug 2006 after an MRI scan prompted by difficulty in walking. I started the Wheldon protocol in Aug 2007. I was full-time for just over one year and then I went intermittent. I have continued with intermittent with no problems and no reactions to the abxi. With regards my condition, I made huge mental gains on the abxi, but my walking issue has remained much the same. It is not very bad in that I can do most things, the hardest activity is walking. I can walk perfectly normally for about 30-40 minutes and then I start to have problems moving my right leg and lifting my right foot.
Submitted by Louise on Wed, 2009-08-12 06:16.
Just now I am packing for a three day spiritual retreat weekend that starts tomorrow. Yes, I am well enough to get ready and go. I owe my returned physical, mental and emotional improvements to my 20 months on the full Wheldon CAPii.
Submitted by katman on Thu, 2009-07-30 10:24.
One of us asked me what I could do now that I am a "1" instead of a "2", or as I used to be, a "6.7". The answer would be so long that it would fill a good-sized book. Let me start with the fact that I can swat the pesky fly (just did) that has been flitting around (and no longer is). I could follow that with some of the everyday other pesky things like sinusitis, inflamed gums, varied skin problems, dry skin, mental fog, and, most monumental of all, my walking. Not only those, but I can take a deep breath without coughing. Most "normal" people take that for granted, but I was not able to do that for years and years. And I had a "catch in my chest" which prevented me from breathing much at all when it was happening.
|
