Hello everyone. I hope everyone is doing well and having progress in there treatment. As for myself I am actually quite scared. I was making great progress and im about to start the flagyli here soon. but here is the story. As you know I got sick back in October. I started feeling better after a couple months ttreatment of doxyi and zithro and then I had sex with my wife. The next day I felt like I was going to die. My wife got a full general std panel along with me and it all came back negative. so then it was the scenario with the doctors again with no answers but then I started the Wheldon protocol in May.

Hi All,

It's taken 3 blood draws due to lab errors and over a month to get the final results. I still think there are some lab tests missing from the original order but I'm not even going to bother to try to find that out now after this slapstick comedy of a lab requisition. It's been insane. In fact, when the ID Dr's office mailed me my results I received an empty envelope so I ended up having to pick them up personally from the office. Of course, the ID Dr believes all of these tests to be "normal."

 

 I hope someone can help me find something to help with my energy level.

Lately, it has been getting so bad that getting up out of bed feels lilke a chore. I know with cpni it steals your ATP and I'm taking all the suppliments along with  D ribose, but still feel exhausted. The doxyi. causes me to sweat a lot so I have been taking more water to maintain fluid levels. Does the healing process cause thyroid issues? My doctor has given me a script for checking T3 levels although, I've also read that the levels can still come back in the normal range even it they my be off.   

I’m not much of a blogger. My generation grew up with email and have been slow to adopt the new forms of electronic communication. But I am so grateful to this community, its founders and ‘old-timers’, and all of you that daily support and inform members of this site, that I think it’s about time I start to tell my own story. There is something very important about telling our stories to each other, knowing there are listeners who have been through their own ordeals and understand.

 

My GP has agreed to give me a lab order and I can go to either Lab Corp or Quest Labs but he says he has no idea what specifically to test for and which diagnostic codes to use for diagnosis to have the tests paid for by Medicare.  

Someone had mentioned Mayo?  Do they have a walk in lab if they are preferred as long as one has a requisition from their Dr? (I would prefer to use Quest if possible)  

Do you have some suggestions for testing? Does this have to be done before using NACi? Are there additional tests that would also reveal information such as Mycoplasma and what would those be called specifically.

Well, it seems somewhat unlikely that my liver enzymes have decreased enough to avoid a Protocol Vacation.   I will likely get a partial report on my lab studies in the next few days.

So I am beginning to look at the possibility of being asked to cut back or even completely take a break from the protocol as my AST and ALT are in the 3-4 times the high normal range and this has been the case for almost 4 months now. 

I know that folks have stopped for numbers lower than mine which are both over 140.  My several past blood draws have been ever so slightly higher each time yet still slowly climbing.

I would appreciate anyone who has found themselves in this position to share how it was handled in your case.  

When I saw my dr a few days ago we went over my labs results that had come back. The Western Blot for Lyme disease. IgGi was negative. Good news, right? But strangely enough, IgM was positive by both standards - unconventional Igenex (where the labs were actually done) and CDC.

I was floored, I really didn't believe that I may have Lyme.  The dr told there may be a false positive and we ordered a confirmation test with Igenex.

The reason I think it is strange to have IgM (+) b/c my sx started so long ago and logically it's IgG that should be (+) if I have Lyme.

Help!  My partner's cpni tests are negative!  IgG, Igm, IgA, Quest Diagnostics. 

I test positive; in the last 8 yrs, he's been getting more and more of the symptoms I have --- I KNOW cpn is very contagious --- is it THAT hard to get a positive antibody titer for cpn?

I am afraid that now his doc won't prescribe the Abxi.   Also, could he somehow not have caught cpn, and all his coughing, achiness, fatigue, sensitivities, skin eruptions, joint stuff, swollen glands, sore throats, neurological issues, increasing general ill health --- all the stuff he had NONE of before me --- could it really have NOTHING to do with cpn...?

Good afternoon!

I've been having fibromyalgiai symptoms for the past 4 days- neck, left shoulder, back of head, band across my head from 1 temple to the other, down my spinal cord. I haven't dealt with fibro symptoms in several years and I can't remember what I can do to relieve my pain and stiffness.

I've been taking Lortab (Hydrocodone with acetaminophen) and/or Ultracet, aspirin, using a topical analgesic oil rub and a moist heat wrap. I'm also stretching. I've considered the chiropractor and massage therapist just haven't made appointments yet.

Is anyone else with Celiac Disease or knowledge of Celiac Disease a user on this website?

 

Interesting site. 

http://www.pathguy.com/lectures/lvr-test.htm 

I am looking for information regarding

Various Liver Enzymes in realation to effect of

CAPi. 

I would appreciate any sources of available

information on the web.

Personal Mail me if you wish.

Thanks. Louise

Question re how to read lab results???

I was tested as "high" for Chlamydia P. IgA even though the reference range and my test were the same:

                                In Range     Out of Range      Reference Range

Chlamydia P.IgM      <1:16                                      <1:16                                                                                                           

Chlamydia P. IgG     <1:32                                       <1:32

Can anyone tell me how to interpret these lab results?  A doc has called it positive, but I am unable to find any discussion on this website to confirm it.  And the medical papers I have read elsewhere say it is difficult to diagnose due to high background of IgGi antibody prevalence and lack of standardized testing methods.  They also questioned IgA as a marker for current infection.  I might add that I do have another bacterial infection that is being treated with some of the same antibioticsi as chlamydia, not not all of them.

 

IgM less than 1:10
IgG 1:256
IgA 1:64

Is this current infection or not?

 

 

My 11 year old son was bitten in August '06 by a flying insect and in October the area where he was bitten became very inflamed and painful; he could hardly walk for a couple of days. It got better again with just the odd twinge now and then, but slowly over the months the pain times increased and so did the level of pain and weakness. He was tested for all manner of things but only Agglutinine Cold, Mycoplasma Pneumoniae, Aldolase and Chlamydia Pneumoniae were positive, the latter being tested for the first time in May this year. In June he was admitted to hospital for further tests and the doctor announced that everything (without treatment) had gone - his blood was A1.

I've recently suggested to two different people that they go and have PCRi tests for Cpni performed on a sample of their blood.  I'm a bit concerned that maybe I shouldn't have suggested the test because I lead them to believe that the test would give them infallible results as to whether or not they have a Cpn infection.  Is that true or not true?

I read something posted here somewhere about the dependability of other testing approaches like micro immunoflorescence (sp?), I believe.  I know that some of the other testing methods aren't very dependable.  What I'm wondering is how PCR testing shapes up by comparison.  Is it a realiable diagnostic approach as opposed to an empirical trial with NACi or one of the bacteriostatics?

Thanks,

John