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Chronic pain characterized by tender points, sleep disorder, fatigue

question about M.E., fibro and chronic fatigue

Is m.e. the same thing as fibromyalgia? Chronic fatigue and fibro are about the same aren't they?  I have horrible fatigue and a lot of pain.  So, do I have both or just fibro?  I have never understood the difference as I have both.  My rheumatologist diagnosed me with fibro in 1996.  I had about 3 mos of horrible fatigue and pain, even had trouble breathing and bedridden most of that time.  I think that was the full blown onset of it but I felt bad for about a year before.

Horrible neck pain, can't turn head very well

I carry pain worse in my neck and shoulders with the fm.  Since I am on abxi I have had physical therapy and my shoulder got better but ran out of visits.  My neck (left side only) hurts all the time even with lots of heat and massage.  Could it be cpni causing the pain??? I take ibuprofen, even percocet at times.

massage update

Went for an hour massage today, first time.  Very relaxing.  Also, my sinuses opened up and got rid of some infection.  Put heat on my neck afterward as I seem to carry a lot of pain (maybe cpni? there.  I am always using a heat pad or massager on my neck though.  Always painful there.  I did feel better for a while afterward but now very tired.  I will try to go every other week and see how I feel.  Wish I could afford every week but can't.  I will keep you posted as to how I am doing.

full body massage

I am starting a massage treatment next week.  The lady says she knows how to do a massage for fibromyalgia.  I have heard that the toxins will come out and you will feel horrible for days and fluey (made up a word!).  Is this a good idea?  I would thing it would help me get well.  Anyone else do this?

Progress update (1.5.09)

ADD ON: 01/05/09 - Last night I finally added on the second daily 100 mg. of Minoi. Yay!

Confused about antifungals

I have read that yeast overgrowth can cause or be a part of fibromyalgia.  I started continuous antibioticsi in 1990 for chronic sinus infectionsi.  In 1995 I got FMS.  Diagnosed in 1996.  Could I just treat for fungal, say lamisil and nystatin along with all the supplementsi?  Has anyone here done that?  Or could I take doxyi, biaxcin and nystatin pills, with lamisil?  2 doxy a day 100mg, 1 biaxcin every other day, nystatin and lamisil every day?  Has anyone here every done it that way?  I'm not sure of the difference between nystatin and lamisil - nystatin is for the colon I think and Lamisil is for deep tissues?  Or maybe I should try and talk my doc into giving me flagyli now.  The thrush is bad, ibsi-c is very bad.  I'm taking yeast something  by Solaray, vsl#3 probiotics, and

Second Month on Mino about done.

First of all ... I do not know why I ever complained about not sweating! I had daily & nightly fevers in Sept. Sweating was the way of my existence and drinking water was all I could think about as my thirst was so great. This past month the fevers are letting up. I only sweat a few hours a day usually after dinner or during the night. Occaisonally now I skip a day or maybe two or three at the most. Just when I think the fevers and sweats are going I get hit again. So this has caused me to stay home indoors a lot the past couple months cause my nap time is definitely therapeutic. By afternoon I am drained. However, I jump at the chance and have managed to drive two or three days during the good hours of my better days. Otherwise I think I would go stir crazy.

Something Viral or different NAC?

For the past week I have been struggling with what appears to feel like a chest cold (or those  CPNi elementary bodies are reactivated?)  This is such a strange feeling, in that, even though I have been "sick" with all the repercussions of the protocol, I haven't had anything like a cold, flu, or viral type illness since being on CAPi.  I have been running a low grade fever, coughing and feeling very flu-like.  Considering I don't get out of the house much, if it is viral my husband probably brought it home.

Help with yeast

Are  Inhi< and molybdenum for chronic yeast?  Isn't molybdenum some kind of metal?  I think a lot of my problem with fibromyalgiai< is yeast.  I'm on the special carb diet and I noticed when I eat something with honey(which is allowed on the diet) that I feel worse.  I take Diflucan a month or two at a time and then rest on it.  I know it's bad for my liver but I haven't found anything b

No Fun being in OZ

My mobility is becoming worse and I am also having neuropathy-type foot drag -- occasionally the  toes on my right foot fold over and I don't feel them right away until I've scraped them on the floor or stairs! And my feet, (even though I  think they are "up") aren't and I trip... I am unsteady.  My husband is constantly having to steady me and help me maneuver on the occasions we leave the house or he pushes me in a transport chair.

These are NEW symptoms which have developed over the last two pulses.   I have had problems with my right knee since the beginning of capi but these symptoms are different. My left knee and leg are now affected.

Cpn panel updated with D25, D1,25 test results

I recently had a blood test done for Cpni panel to see what I could learn. I realize these tests are not considered accurate. But I was curious & had the opportunity ... so why not?

The panel included C. trachomatis, C. pneumoniae & C. psittaci.

Both the C. trachomatis and C. psittaci results came back normal reference range and said "ANTIBODY NOT DETECTED".

However the C. pneumoniae came back marked high on two fronts.

IgG  1:512 H   (reference range: 1:64)

IgA   1:64  H    (reference range: 1:16)

IgM <1:10

Interpretation = PAST INFECTION

Need help for my sister. Why CPn test POS and then NEG?

I've written about my sister before.  She asked to be tested for CPni at Cleveland clinic and came back positive, something like 1/125 or close to that.  Cleveland Clinic asked her if she wanted to be treated with 1 abxi for a few weeks. 

She has lung and sinus problemsi, fibromyalgiai, fatigue and serious heart and vein problems and inflammationi.  Basically the falling apart syndrome.  I tried to get her started on CAPi, but she didn't follow through, claiming she didn't have time to get sick.  She did take NACi for awhile.  Now she is really sick, with pretty bad heart problems.  She has been diagnosed with everything under the sun over the years, but then they always end up changing their minds and saying it probably isn't what they thought it was.

the here &, what it is


It has been some time since I have updated my blog so here goes.  What to say???, breath, wind me up &&& …. I have been disengaged on the site as I just haven’t had the mindset to handle the stress.  I apologize for this as I know that my support has made a difference to some.  I found myself reading the posts and was getting stressed out & frustrated with it all.

Added Yaeyama Chlorella

Presently I have been on Minocycline for over two weeks. The inflammation has been increasing in small increments daily. I was not keeping on top of the load of toxins/porphyria with my usual doses of glucose, Emergen-C and charcoal. So a couple of days ago (9/20) my recent supplement order was delivered which included some Yaeyama Chlorella to try out. Only after two days of use before lunch I am impressed of how effect it seems for me. It is the perfect pre-lunch mopper. Which is a time of day I really need help. It is when it is not convenient to take any of the other moppers I use. But to be clear, I definitely will continue all of them at the usual times I take them as well.

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