Fibromyalgia

Jim’s Story- Chlamydia Pneumoniae and Chronic Fatigue/Fibromyalgia

The Tunnel of Illness

I want to update my story on the front end so readers know even before reading the "agony post" how much benefit I've gotten from the treatment. It is August 26th, 2006. Coming up on two years I've been on the Combined Antibiotic Protocol (CAPi) for Chlamydia pneumoniae (Cpni). A recent forum poster asked if anyone with CFSi has improved on the CAP. My response:

Damned right I'm getting better!When I started the CAP I was in a 2 year slide after 25 years of CFS, then added FMSi. For many years I'd struggled and somehow maintained a semblance of a life. Then over 2 years my pain, brain fog, restricted functioning, etc. slid to a point where I had to stop traveling and could for the first time see the possibility that I would become bedridden eventually.

Dr. in the house?

     Does anyone know a Dr. in mid-Michigan that will treat cpni-fibromyalgiai? Hitting a dead end.

Antibiotics to be available without prescription

This is the news:  In England, possible antibioticsi to be sold over the counter, to treat CHLAMYDIA!

This is the story form http://www.guardian.co.uk/society/2008/aug/06/health

Oral antibiotics are to be made available for the first time without doctor's prescription under guidelines approved yesterday by the medicines regulator.

A pill to treat chlamydia, the most commonly diagnosed sexually transmitted infection, will become available for purchase in pharmacies across England later this year.

Slammed in the head!

As I write this today I am not fully recovered but will try my best to convey what my latest experience involved. Am writing this with my right eye closed as a matter of fact. So anyway ... what I want to write about in my blog today is reflective of years of chronic illness that I merely pushed off as hormonal induced migraines that we women had to bear in life. Of course ... I think I know better now. Not that hormones cannot play a role in this illness but that I know the true instigator I believe.

JUST TO THANK YOU FOR THIS SITE!

GOD BLESS YOU FOR DOING THIS SITE!

Hope everyone gets the answers that are looking for, and the needed support; this thanks to you guys making this site possible for all of us!!!

It's marvelous!

Maria 

2400 mg. NAC daily - first week done deal.

Finally! Sweet success. I am able to take 2400 mg. NACi every day. Took me three months to get here. I have had to avoid using the FIRi sauna for two weeks and keep all things low key. Seems too much anything gives me burning red eyes, sore throat and wheezing bronchials. So I limit certain foods, too much sunlight, working too hard, too much stress, too much this, that and the other. But I am here ... I did it! Yay!

Doing the Bron-Y-Aur Stomp baby! Cool  MM

PS... will go change my signature now. My new badge. Wink

No sweat FIR sauna

Hope this is the right forum. If not, sorry, can you move it?

For a week I have been doing my FIRi sauna for 10-12 min. at 115 degrees. My back and the back of my arms get a tingly burning sensation (bugs twitch'n?) My concern is I never sweat a drop. Not one teeny tiny bit of sweat anywhere. Do I need to do something different? Has anyone else been "sweat deficient"? Wink 

Thanks in advance for any help you can offer me.  MM

Update added FIR sauna & moving along slowly.

We got our FIRi sauna set up last weekend and I have been eagerly but cautiously using it for 10 min. at the start of my day after drinking water to hydrate first thing. Probably the most interesting result thus far is it restarted the eye burning, sneezing, bronchial irritation with resulting cough. These are all at minor degrees but nevertheless it is a direct response to using the sauna I believe as nothing else has changed in  my environment. The heat from the sauna feels soothing on my sore back and shoulders but causes some itching and then later in the day they ache again especially at night. But less so than on the MPi and prior to starting the NACi, supplementsi, etc.

Pulse 2...(five days post-pulse)

Blogging for the record....  My second pulse was  1-250 mg of Tinii for 4 days.... May 24-27, 2008

1.   First two days I noticed an increase in energy

2.  Day 3  my LEFT knee and hip became painful and stiff. Up until this point I have not experienced problems with my left leg, it's been all in my right knee and sacriliac .   I could barely walk and was unable to go up or down stairs.   I still have major problems with my right leg - knee (can't squat or bend, difficulty walking up stairs.)

2.  Again increase in coughing... as well as chest congestion - benedryl helps

3.  Red rimmed/watery eyes.

4.  Third day I had a really bad headache (and I usually don't get headaches)

My first - established double doses of NAC 6-09-08

My first double dose of NACi. Oh boy. The day after. I was feeling quite cocky as I was managing one 600 mg. of NAC daily without too much trouble. But then my brain began to feel that most unwelcome feeling ... like beginning to puff up which leads to feeling poisoned. So remembering when I began NAC it helped a great deal with relieving that awful symptom  .... so yes ... why not?

Miying's 3rd + week on NAC

Third + week on NACi

5/04/08 - Sun. (600 mg. NAC x1)

Addendum - Pulse #1 - Day 21

Addendum to my blog.  It's day 21 post pulse. I am depressed and sick and tired of being sick and tired.  I guess it's finally hit.  I only took 1- 250 mg of Tindamax for 2 days.  Nothing really happened until now.  I was experiencing pelvic/gut pain but kept writing it off to the pulse.  so I then went the route of gyn and  urologist which has led me to:

1) I have a bladder infection  -- was prescribed Nitrofurantoin 100 mg BID. 

2) Per gyn - I  have BV and gyn wants me to use Clindesse -- I have not administered it yet as I am concerned I'll be on antibiotic overload and could possibly cause another pulse or yeasst.  I have no idea how it would interact with CPNi.

introduction and inquiry about topicals

Hello, and thank you for taking the time to read this post.

I was not able to locate information referencing contraindications to my Rx topicals.

Please pardon me if this is covered elsewhere.

I'll start with a bit about where I'm at and have been.

Mental

I'm a graphic designer who works from home. I have a happy homelife and a positive worklife. I believe that i am a healthy person, I just do not physically feel like one. I have long suspected that everything I experience is tied together, so am really happy to see this Web site. I want to live my life again: I want to go outside into the sunshine; ride a bike; shop in a store!



Physical

1st week - diary of my NAC experience

NACi Diary

First day = 4/19/08 - Sat.

Dont know whether to laugh or cry !

Morning everyone,

I saw a consultant rheumatologist last week as I was diagnosed with gout just before Christmas.

Whilst going through the initial question and answer, medical history  process with him I decided to advise him that I had been diagnosed with CPNi and was on an antibioticsi. He said that he did not know anything about cpn.

Anyway, I have just received a copy of the letter that he has forwarded to my GP.

Quotes

"She tells me that she received information on Chlamydia infection, she received a course of antibiotics with, perhaps, a little improvement in symptoms, though nothing significant.

"On examination she is a little overweight !"

"She has widespread tender trigger points."