Fibromyalgia

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Chronic pain characterized by tender points, sleep disorder, fatigue

Jim’s Story- Chlamydia Pneumoniae and Chronic Fatigue/Fibromyalgia

The Tunnel of Illness

I want to update my story on the front end so readers know even before reading the "agony post" how much benefit I've gotten from the treatment. It is August 26th, 2006. Coming up on two years I've been on the Combined Antibiotic Protocol (CAPi) for Chlamydia pneumoniae (Cpni). A recent forum poster asked if anyone with CFSi has improved on the CAP. My response:

Damned right I'm getting better!When I started the CAP I was in a 2 year slide after 25 years of CFS, then added FMSi. For many years I'd struggled and somehow maintained a semblance of a life. Then over 2 years my pain, brain fog, restricted functioning, etc. slid to a point where I had to stop traveling and could for the first time see the possibility that I would become bedridden eventually.

The Elephant(s) in My Room – Blog Update

I haven't posted much and my last blog update was in May of this year. I wish the reasons were because I was enjoying a recovery and had my health back, but it's not.   I now join the ranks of some of the others here who came to this site about the time I did.  

 

Last week I had Bioenergetic Testing done which indicated I have:  Bartonella Henselae, Babesia Nosodes, Mycoplasma Fermentes, Borrelia Burgdorferi and high levels of systemic yeast (as well as EBVi, HHV-6 and CPNi) -- "my elephants" and reasons for not recovering. 

 

I need a Dr. in Michigan

Please help me find a dr. in Michigan to help with fibro issues.  My internist does not believe fm exists.  I have all symptoms except ibsi.  I heard there was a dr. in Oxford, MI and one in West Bloomfield, Mi that treats with cpni protocol but can't find him/her.  Any info is appreciated.  Thank you.

Searching for a Dr. in DC Metro Area

Hello, I'm new to the site and very glad to have found it. I was actually diagnosed with Cpni back in the late 90s and given a dose of antibioticsi. However, I did not get better and over the years tried to resign myself to the symptoms. However, lately I've developed new symptoms and on a renewed search was led to looking at infectionsi and came across the link with Cpn.

I suspect I still have this infection and would be very grateful if someone could send me names of some Drs in the Washington DC metroi area, including Northern Virginia and Maryland who might be familiar with treating this.

Thank you!

Update 4-22-11

Hi folks

I just wanted to do a short post - I am doing much better. The diarrhea is gone completely and my FMS sxi have receded quite a bit. Thank you all for the input and help- I really really appreciate the support. I plan to do the Vit C. flush tomorrow if it comes in the mail. Otherwise it will have to wait for several weeks as I am traveling. 

I do have another question about one of my new sx which has emerged over the past week. On waking up in the morning, I feel like I have more energy and am more alert. However, around 1230 or so, I totally get mentally fogged up and start feeling physically fatigued. Once or twice emergen-c has helped, if I have rememberd to take it. Any ideas why I get fogged up all of a sudden and why emergen-c helped. 

 

Advice

Hi folks

I need some advice and hope that y'all can help me out. I did my last Flagyli pulse  in Jan and actually did not complete it fully because of diarrhea. I then recently decided to try Tinii based on folks here recommending it because it has less of an impact on GI stuff. I took 2 tabs of 500mg Tini on Friday. Saturday morning I woke up feeling like a truck ran me over. I had major die-off sxi that weekend and then Monday I ate some bad food and had really bad diarrhea all over again. This is despite taking 2g of Charcoal on Sunday and Monday. I've been feeling quite poorly after that - actually had quite a few of my FMS sx come back on Tues & Wed. Today was a bit better. 

I'm wondering why I had such a strong reaction to such a small amount of Tini?

Update

Between reading the material here on the website and the s/e of the Abxi (heart-pounding, significant feelings of anxiety), I started feeling really overwhelmed and confused. I started wondering if I should change the protocol, adopt the pyruvate protocol, and so on. I think I drove myself crazy. Then I got swamped with work and decided I needed to take a break from reading about cpni obsessively and focus on work (gotta pay the bills :-)). I'm sorry I disappeared without responding to people's responses to my previous blog posts. 

My 2007 (pretreatment) Chlamydia Pneumoniae Differentiation Antibody Panel (IgM, IgG, IgA) results

From the initial May 2007 lab report of my                                                                   Chlamydia pneumoniae Differentiation Antibody Panel (IgMi.

3 Years, 8 Months, 2 weeks and 2 days.....(Revised 2/14/2011)

It has been 3 years, 8 months, 2 weeks and 2 days since I started CAPi<i<.   I have reached a point, not by choice, but rather by necessity, that I have had to back off the protocol for a while. 

Doctor In Idaho/Eastern Washington

Hi folks

Would you know of any medical practitioners in the Idaho/E. washington area who are familiar with the CAPi? My doctor is willing to prescribe the meds but does not agree with the protocol and so can't be of much help. Many thanks.

 

trying new things

So I have cut back the Doxi to 100 mg once a day and taken out everything else. I also increased my intake of probiotics and am going to try a probiotic with s. boulardii. Its supposed to be really effective for AAD (I am assuming that is why I have diarrhea). I bought activated charcoal today and am going to try that. I also find that sometime around 830-9 pm my heart starts pounding, I become very anxious, and feel nervous. Its physically really uncomfortable. I am assuming all the sxi are porphyriai and hope that the charcoal will help with it.

Newbie with FMS.

Normal 0

Lithium Orotate - Mood Enhancing Mineral

Lithium Orotate, a discussion forum topic relating to supplementation with low dosages of Lithium Orotate, a mineral which is available over the counter for mineral supplementation. 

Please post links to information you find useful for personal investigation of this topic, both the pros and the cons and the cautions in the use of low dose Lithium Orotate mineral supplementation. 

This is the start of a forum topic for the purpose of discussing you personal experiences and/or your personal opinions regarding it's supplemental adjunct use.

Thanks in advance for helping to expand this forum topic by adding the pro, con, and cautionary aspects of the use of Lithium Orotate as an adjunct mineral supplement.

some questions

Hi There!

My last entry is quite long ago and as i have some questions too its time for an update.

first the good news: my scrotal pain improoved quite well but still gets worse sometimes while pulsing or after walking to much. right after pulses it gets better mostly. 

my older symptoms are more or less the same though (ibs-b (with sibo and consequently malabsorbption and low weight), cfsi , light fibro,chest pain, very cold limbs ).

the ibs eventhough taking probiotics even got a little worse i think. im a bit affraid the abxi are messing up my gut flora too much.

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