Fibromyalgia
Submitted by Jim K on Sat, 2005-09-17 19:56.
The Tunnel of IllnessI want to update my story on the front end so readers know even before reading the "agony post" how much benefit I've gotten from the treatment. It is August 26th, 2006. Coming up on two years I've been on the Combined Antibiotic Protocol (CAPi) for Chlamydia pneumoniae (Cpni). A recent forum poster asked if anyone with CFSi has improved on the CAP. My response: Damned right I'm getting better!When I started the CAP I was in a 2 year slide after 25 years of CFS, then added FMSi. For many years I'd struggled and somehow maintained a semblance of a life. Then over 2 years my pain, brain fog, restricted functioning, etc. slid to a point where I had to stop traveling and could for the first time see the possibility that I would become bedridden eventually.
Submitted by Lynnp on Thu, 2010-03-04 16:11.
I have been on the capi for about 14 months now and am still not noticing any getting better. I am depressed most of the time (on antidepressants for years), still just weary, too weak to do anything physical most of the time, no energy, etc. Still a lot of yeast (taking all the stuff for it) plus 1 Diflucan a day plus Kefir (like yogurt, plus acidophulus pills, etc.) I am on Valtrex for Epstein Barr and hhv-6 and am thinking about asking for Valcyte. Doc doesn't like to use it but just maybe if I can feel better from those things I might do better on the cap. Or should I not take the cap while taking the Valcyte?
Submitted by lee mcghee on Fri, 2010-02-26 07:44.
Hello everyone. Its been a while since I posted. Hope everyone is making progress in there protocols i. I cant thank everyone and the doctors enough for there support without them I would still be very sick right now. Its still a long road ahead for me but I feel so mucu better and I think the worst is over. After 2 years of being on the protocol. I finally stopped the antibiotics 3 months ago. Thank God Im doing ok. I still cant believe today that im not on them. I still get some mild symptoms but so much better then I was. I excersize and eat a strict diet of fish, vegatables and fruit. overall im feeling good. I did get thrush froma a candida infection a couple weeks ago. I still get pain in my throat once in a while.
Submitted by jeanneroz on Thu, 2010-02-25 11:27.
I know nothing of the credibility of this particular source but the homeopathic philosophy seems to be applicable as I reflect on going through this process so far.
Submitted by Louise on Tue, 2010-02-23 19:15.
Submitted by Louise on Sat, 2010-02-20 07:50.
"...Research articles to show that the toxins found in microorganisms play an important role ..... , in particular, lipopolysaccharidei ( LPSi) the bacterial toxins from gram negative bacteria that inhabit the gut of those with... (bacterial infectionsi). LPS toxicity works synergistically with mercury and other heavy metal poisonings to expand damage. These heavy metals increase harm from LPS. In addition, LPS decreases glutathione levels making it even more difficult for the body to detoxify heavy metals." The entire website and articles can be found here; http://www.microbialinfluence.com/
Submitted by Louise on Fri, 2010-02-19 06:33.
Submitted by jeanneroz on Thu, 2010-02-11 10:15.
Last Wednesday, I decided to start the InterFase Plus for the treatment of biofilms. I was curious to see what, if any, type of reaction I would have. The recommended dosage (on the bottle) is 2-8 capsules per day. Additionally, I have a schedule obtained from an autism parent given to her by the autism doc, Dr. McCandless, but it is too agressive IMOi, for me so I decided to only take it on M/W/F, the days I take both Azith and Doxyi. (I switched back to Azith, from Roxi January 2010).
Submitted by Louise on Mon, 2010-02-01 08:17.
Submitted by kimberlyskach on Tue, 2010-01-26 22:45.
What if I'm healing quickly? I feel like I am living a miracle. After 25 years of interstitial cystitisi and fibro, the CAPi has me basically well within 4 months. I had the high antibodies for cpni. I had started Cortef for adrenal exhaustion and thyroid meds for Hasimotos...so I was already about 70% well from tackling those issues. I contacted Dr. Stratton and he gave me his protocol (doxyi, Biaxon, Flagyli) and I seem to be healing quickly. I tried stopping after 2 months and the pain came back in 10 days....it was horrible! I just finished 2 more months and am commited to going at least 6 full months.
Submitted by Louise on Tue, 2010-01-19 22:39.
I'm finally getting all my adjuncts from my Dec 09 visit lined up and started. My MD seems to be on track with DrP, Lauricidin was highly recommended to me by my provider. Here is a written source that can give some information regarding its benefits. Thanks Raven for sharing your information, I ran it by my provider and he already knew about it and certainly approved of it's addition to my treatment plan. http://www.cpnhelp.org/files/Lauricidin_notes.doc (taken from Joyce's blog titled Lauricidin) Book review; http://www.lauricidin.com/bookreview.pdf
Submitted by Louise on Tue, 2010-01-19 21:09.
Submitted by Lynnp on Fri, 2010-01-08 13:28.
I bought some cranberry kefir at Christmas at the local supermarket. Tastes a lot like yogurt but what I've read makes it sound better for you because there is extra stuff in it. I make my own yogurt (sometimes) and thought about making kefir but you have to order a starter. Oh, maybe I could make a starter with some purchased kefir like I do with organic purchased yogurt. Any thoughts?
Submitted by Lynnp on Sat, 2010-01-02 13:36.
Has anyone here had to have cervical spine surgery? Mine is C 5 & 6 and has gotten progressively worse the last 9 mos. Blamed it on the fibro but is now too painful to ignore. I am going to have a nerve block this Wednesday to see if that helps. The doc looked at my mri and said I shouldn't be hurting so badly, that I had plenty of room in the spinal canal. He must not understand about fibro pain. I had lower lumbar back surgery in 1994 and got the fibro after that so I am somewhat fearful of more surgery. But, if this doesn't help, I'll have to have it done. I am so tired of screaming pain. Constant Biofreeze, lidocaine patches, walking around the house with a microwave heat pad on my neck and sleeping with a heating pad. As you all know, constant p
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