Arthritus

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Inflammation of joints

9 Months...and now Reactive Arthritis

I haven’t posted for a while, but as you may have noticed I still visit and peruse the site and throw in my occasional two cents worth!    

I would like to say I have improved so much, am back to work, have a life.. but that’s not the case.  I am one of those “sickies” that started this protocol at my worst, added antibioticsi which made me even MORE sick (die off, porphyriai and endotoxinsi) – it’s been a long 9 months.

Anyone knows Dr in Maryland or closest states? Dr Carter in Florida?

Hello, everyone,

I had posted once on the forum, including a very brief description of my story. Now it's time to start a blog as I understand, I am here for A LONG HAUL. I am not sure where to start as there is so much to all my illness.

I guess, my arthritis/tendonitis and myalgia would be the main complaint. Then hypertension">i, then sinusitis, hypothyroidism, heart palps, chronic cystitis, PID, hand cysts, mild cough, brain fog and fatigue. All of this started one by one since I was 8 yrs old but only recently after doing a bunch of research and this year being dxi with Reiter's syndrome I put 2 and 2 together and figured out that Cpni infection could cause all or any of my conditions.

Need to talk to someone soon

Need to talk to someone soon.  I'm feeling a little desperate at the moment.  Don't know how to IM, willing to learn or willing to just e-mail back and forth. 

Antibiotic Protocol - Rheumatologist Annual Meeting

The Road Back Foundation is exhibiting again at the American College of Rheumatology's annual meeting in November in Boston. After the meeting, on Sunday, November 11th from 9:00 am to 2:00 pm, a number of Road Back volunteers will be gathering to brain storm about the work of the Foundation. If you are interested in participating (i.e., have some skill and time to contribute to the Foundation), there are two spots open. If interested, please send a brief bio and your experience with AP treatment/the Foundation to info@roadback.org<

www.roadback.org<

MRS.

I am Hilly and have been suffering from Lyme Disease and other tick related diseasesi for some time.  I also have Morgellons, and feel I probably have chlamydia pneumonia although it has'nt been diagnosed as such.  

I'm back

Hello everyone, I am back, got sick had a bad time but now much better.

Cpn triggering Reactive Arthritis

For 3 months I've had terrible swelling primarily in my hands, calves, and feet - believed to be Reactive Arthritis triggered by Cpni. I am HLA-B27 negative, but positive for Cpn. I have been Doxycyline 50 mg twice a day now for one week.

Does anyone have any applicable experience or advice here?

Thanks,

Randy

INH & C Pn?

<><>I am new to this forum and Cpni info in general. In Sept '06 I was diagnosed w severe Psoriatic Arthritis,and was tested for TB (PPD) prior to taking a biologic drug. The test was positive, and although no TB was found I went on INHi as profilaxis 300mg a day for 9 mo. I never took the biologic agent because of info regarding latent TB and these type of drugs.

<><> to make a long story short: after 3 mos of INH my symptoms receded dramaticly, and now after 6 mos have almost totally disappeared. No one (Dr.s) can tell me why the INH is helping me. Someone on the RoadBack Foundation bboard (Antibiotic treatment for Arthr/other Auto immunei etc) suggested I post here.

Vitamin D inre Hyperostosis & Atherosclerosis-Any Info?

Anyone reading this should keep in mind that I don't have one of the more aggressive types of chronic inflammatory illnesses, and I'm still pre-CAPi. After 7 months of taking 3200 I.U. vitamin D along with calcium and magnesium, I have cut back the D and the two minerals to only what is in the Centrum Silver I take every day.  I cut back because I learned that in addition to osteoarthritis, I also have DISH (diffuse idiopathic skeletal hyperostosis) with bone spurs. Before learning about the hyperostosis, I had been proud and happy that my bone density was above average, and I congratulated myself on a lifetime of consistent milk drinking. I couldn't help but wonder if the several months of D, calcium, and magnesium supplementation had not made the hyperostosis worse.

Turmeric in the Treatment of Arthritis

Here's an interesting abstract of a 2006 study done on Turmeric as a treatment for Arthritis:

http://tinyurl.com/wzlxy<

Researchers were able to verify the action of turmeric in rats.

Raven

CApi since 8-05 for Cpni and Mycoplasma P. for MSi and/or CFSi. Now treating for EBVi with Valtrex. 

Arthritis and Infection: Dr. in S. Calif.

Here's an interesting web site by a doctor in S. Calif. who treats arthritis with antibioticsi. Mostly talks about Mycoplasma.

http://www.thearthritiscenter.com/index.htm<

Raven

CAPi since 8-05 for Cpni and Mycoplasma P. for MSi and/or CFSi 

Any Germans here?

Hi,

are there any Germans here who  have the diagnosis chronical infection with C. pneumoniae?

As I don't think, that a long lasting therapie with multiple antibioticsi is possible in Germany, especially when it is sort of experimental,  your help would be appreciated.

thx in advance

gitta

 

 

Essential Observations by Dr. Charles Stratton on Chlamydia Pneumoniae Infection and Disease

I am very excited to present the following article that summarizes Dr. Stratton's recent observations on Chlamydia pneumoniae infection. Putting it together has contributed greatly to my own understanding of Cpni as well as to my appreciation of Dr. Stratton's generosity with his time, and his great depth of knowledge of this area. Thanks to him for his contribution.

Jim K

Recent observations by Dr

Recent observations by Dr. Charles Strattoni on Chlamydia Pneumoniae (Cpn) Infection

Anyone treating Cpn for arthritus?

I was diagnosed with rheumatoid arthritis and cfsi about 5 years ago.  I have taken minocin for my rai<i< for about 3 years and thought I was doing quite well.  I had not really addressed the cfs or c. pneumoniae during this time.  I didn't even mention the cfs to anyone much.  It sounded like a fancy name for being lazy and I blamed most of my fatigue on the rheumatoid arthritis.  The minocin I thought was keeping the ra pretty much in check, but the fatigue had gotten much worse and I decided to start doing everything I could to make some headway in truly feeling better.  I talked my doctor into the protocal for c. pneumoniae and I have just started taking the zithro along with my minocin.  I had already added the NACi< of course.  I was wondering if there was anyone here who also had rhuematoid arthritis?  I'm suffering probably herxing from the ra and maybe the cfs at this time.  I'm having some discomfort in the bronchial area and more swelling in joints.  I will add the flagyli<i< in about 2 more weeks.  I'm not doing my diet as I should and I will try to cut out the white stuff better.  Just wanted to share that treading water with minocin has certainly proved not to be all I should have been doing all this time.  Good luck to all.
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